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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Liz
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Ulcers due to poor circulation caused by meds.

My partner, currently waiting to have surgery on a TAA,Replacement of Thoracic aorta, then after that replacementOf his abdo aorta - he has extremely swollen legs, ankles and feetAnd today his legs…Continue

Started Jan 25, 2011

Just a quick update - as the big day nears.
4 Replies

Had a call from cardiac surgeon yesterday & appointment with them Has been arranged for Wednesday. Cardio team taking involvementWere assuming that the pre suggestion of a second AVR is…Continue

Started this discussion. Last reply by Kimberlee Jones Jan 13, 2011.

"elephant trunk" surgery. Any info or experience :-)
2 Replies

My partner will be having an " elephant trunk" surgeryOn his thoracic aorta - wondering if anyone has had the same? Continue

Started this discussion. Last reply by Kimberlee Jones Dec 16, 2010.

Locations and sizes of type b AD
7 Replies

Just curious to know The locations and sizes of your ADsMy partners is the entire length of descending his ascending was Already repaired previous. When u have an AD is it common That it would be the…Continue

Started this discussion. Last reply by Liz Dec 14, 2010.

 

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At 10:27 on December 16, 2010, Graeme said…

Hi Liz..

 

Thanks for the update on your partners situation... Also you have some damn fine surgeons on the case according to my research.... according to my knowledge the elephant trunk procedure is pretty complex ( .. any AD repair procedure is!) and there is a lot of reference material for the procedure online...here's a reference from the famous cleverland clinic and probably the definitive paper on the procedure from the Society of Thoracic Surgeons... its heavy reading and  it seems the procedure is very complex but results are on the whole excellent... 

So..Xmas in Melbourne - (my old home town) - lucky you..it will either be about 15 degrees - or 40 (!) '4 seasons in one day Melbourne' would be infinitely better than here in the UK at present as we batten down again for another 8 inches of snow this coming weekend... !!

Liz, have a great Xmas with yours and the family..and Feb is not that long to wait..enjoy the summer and take it easy... keep us posted in the new year as well..

 

Happy Xmas and here to a GREAT New Year and a new life in 2011!

At 15:31 on December 13, 2010, Graeme said…

Hi Liz

 

and a great big welcome to the Aortic Dissection site..and yes i am a proud Aussie living in the UK with my wonderful british wife...and am a huge fan of the NHS who saved my life 10 times over with my AD back in 2003..

I am originally from Melbourne, moved to Sydney, then Port Douglas for 10 years,  since then have lived all over the world but was 'lucky' (if you can 'be lucky enough' to have an AD??) enough to dissect here in the UK in 2003... 

 

By Thursday I guess you mean this coming Thursday OZ time for the big op..Please let me/the group know SOONEST how everything pans out.. also what hospital and what surgeon is doing the op?

 

Don't be afraid to reach out to any of us here - (MY PARTNER WAS ALSO A  ROCK WITH MY DISSECTION!)  and we are all here to help you and to help one another - ok!

 

Once again - welcome aboard!

 

best..

 

Graeme Archer

Founder

Aortic Dissection Group

At 15:22 on December 13, 2010, Kimberlee Jones said…

Hi Liz, we always welcome the other half! After all they are going through this too. You also need to find friendship and comfort from people who understand. Those who have gone through a dissection are very aware that their partner is going through it too. Sounds like you and your partner have already gone through quite a journey and now another journey has begun. Both of you are in my thoughts and please keep us updated. Stay strong, I can only imagine how difficult it is for you. *hugs*

At 12:12 on December 13, 2010, Liz said…
Hi I'm so pleased to have found this group and grateful
That you've accepted me - being the other half ! So thank you.
I've done so much reasearch since my partners type b dissection that
Surprised us about 8 weeks ago. Admittedly I didn't really know 
What an aorta was to start with!! So - where were at at the moment in our journey
He had an avr when he was 27 they also repaired his aortic arch then.
He is now 40 and his dissection is the entire length of his descending aorta.
The day before he was due to cone out of hospital the vascular or cardiac surgeon
Informed us of that he actually also has a TAA of 5.8 cms.
They said that he would need surgery we just want some "healing" time before.
The surgeon suggested a waiting period of 6 weeks and then to reasses.
Well last Friday he had the ct scan and on Thursday we have the big appointment - the 6 week
Mark.
He has Also been informed that his already mechanical valve
Needs replacing and they will therefor do this all in the one hit. So Thursday is a big day in our calendar

We've been very positive, and I think normality helps us feel secure. Which can only be a good thing.
We shall now just deal with what comes our way!

He's been feeling good :-) he has very very swollen ankles and feet,
Were under the impression that this is his medications.
Though again Thursday will help us here.

The last 2 days, he seems to have developed a bit of a chest
Infection.. Though doesn't seem to be keen to get to a doctor.

He often feels some numbness in his legs, but he's pretty sure that
Was normal to him prior to AD.
 Whilst in hospital he did start to go into kidney failure as the
Renal arteries had become blocked. He had angio to pop stents in.
That ended up being a difficult procedure as they were dealing with scar tissue.
As they will be when they do his second AVR and to repair aneurysm.

He has marfans syndrome. Which he'd always had a good understanding of,
But had been very b
At 3:09 on December 13, 2010, Kimberlee Jones said…

Welcome Liz! Looking forward to hearing your story.

At 1:43 on December 13, 2010, Richard Deal said…

hey there liz,

welcome to the group! what a lucky man your other half is to have someone like you... also i imagine graeme will be thrilled to have another aussie on board to help him fight us pommies off.

you can tell other members about your boyfriend's (?? sorry, i have forgotten already, and i can only see your sign up form and information at time of approval, any other time i am just a normal member) story in the blog section if you want. also, take a look in the forums at the ongoing discussions and don't be scared to post comments or ask questions of any of us - we are all here to help eachother!

take care,

r

 
 
 

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