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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Lars Patterson
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Lars Patterson's Blog

COMING TO TERMS WITH MORTALITY

Since my Aortic Dissection in September 2010,  followed by two operations and a stent being put in,  I find that I live in almost daily fear of another dissection.  I have become very aware of my own mortality and I find it at times very stressful to live with. There are days when I am exhausted.

Posted on August 16, 2011 at 12:01 — 8 Comments

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At 9:09 on August 24, 2011, Julia Holley said…

I realy understand how you feel Lars, my experience in May 2010 was slightly different to yours but I feel like I am living on a knifes edge.  Spending a month in ICU completely immobile has left me with weaknesses  in all my limbs and I feel sure I have been given someone elses body and I dont like it. Being awake for the last 2 weeks in ICU and being aware of all the indignities (nappies, tubes, hoists, catheters etc) and not being able to touch so much as a drop of water has made be realise how lucky I was to survive at all.  In my dreams (I still travel extensively in my dreams) I have my own body with my previous capabilities.  I am very wary at all times of stress because I can feel now when my BP starts to rise and try very hard to control it with breathing excercises.  My BP was excessive before my AD.

Its always the way with these major traumas one thing leads to another.  I had to have a trachy tube to breathe after my op as I had  pneumonia in both lungs, pleurisy and multi organ failure.  Now I find I have a major problem with my thyroid gland and its not working properly.  Just another thing to get sorted out.  As I live in Spain I have to work on an appointment for a while before going to get the translation of how I feel into some comprewhensive Spanish that they will understand.   I have also found that whereas I was a happy go lucky sort of person before now my fuse is one hell of a lot shorter and my tolerance level has changed massively.

 

My aorta is still dissected so I know how you feel about that too.  I just feel lucky when I wake up OK in the morning. Its all very frightening but you must try not to dwell on it as that stress producing.  Just think of what you do have and not what you might lose.  That how I manage and its worked for a year.  Fingers crossed!!!!!!

Take care and enjoy every moment.   Julia x

At 16:07 on August 6, 2011, Kimberlee Jones said…

Welcome Lars.

 

*hugs*

Kimberlee

At 10:17 on August 6, 2011, Graeme said…

Hi Lars!

A warm welcome to the Aortic Dissection Forum. Please don't be backwards about coming forwards on the forum - we all have different stories and information to share - and all of us are here to help you as well as one another!  I look forward to seeing you round and about on the forums and on the site soon!

 

cheers

 

Graeme Archer

Founder

Aortic Dissection Group 

 
 
 

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