Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Well definitely no sugar coating.  I need a graft in the ascending aorta and the first part of the arch, it can be done in one procedure but the valve will have to come out and a new one put in. Estimated 10% mortality rate, 5% stroke risk + 2% infection risk + risk of post op bleeding and return to theatre. This information swiftly followed by what to do in the event of a searing pain in my back! I think the worse news was that it can happen again further along the aorta, dear God I cant do this every 5 years!

I had the carotid doppler studies done today and I'm waiting for an appt for an angiogram (I'm just praying that I dont need bypass surgery as well). 

Once the workup has been done I'll be put on the list estimate 8 weeks from then.  

It all feels very unreal I dont know what I'm more scared of dissecting while I'm waiting for surgery or having the surgery, I'm guessing you'll all say dissecting! 

Anyway sod all the statistics, I'm 100% alive today and thats all that anyone has. 

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Comment by Graeme on January 19, 2015 at 11:59

Norma

bugger the statistics and get on with your life. I should be dead many times over if I followed the statistics! 

hang in there - we are all here for you! 

cheers

Graeme

Comment by Wayne Settje on January 13, 2015 at 3:09

Good luck and God be with you and your surgical team. 

Comment by Kimberlee Jones on January 12, 2015 at 20:49

Remember we are all here for you!  I know how scary this is for you, you are a survivor and a warrior and you will do amazing!!!!  I recommend you stop reading statistics, a big part of surviving is you and your desire to be here...*hugs*  You are not alone and if you need to chat let me know.

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