Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

After my discouraging experience with the new doctor many things have happened: my son 27 year old was in bad motorcycle accident in Chicago on June 4th. Therefore things have been crazy for the last three weeks. He had several broken bones, a puncture lung, lacerated splint and liver. After several days of internal bleeding, he finally left the hospital on Tuesday, June 21st. He was safe from the neck up because he was wearing a helmet TG. 

 

I was finally able to see the thoracic surgeon that operated on me in 2009 a week ago. He had good news: he does not want to do any kind of surgery at this time. It is more dangerous to operate than to leave it alone, he stated. If I happen to have another blockage, which the possibilities are very high, he will consider putting me on a blood thiner, which is also very dangerous because it can cause brain bleeding. In another episode of clotting I could loose my left kidney because it is the one directly feeding from the bad lumen. However, in comparison to the risk of another surgery, it is nothing. I am very comfortable with his opinion. The idea of another surgery was really scaring me. With closer monitoring and me doing my part, hopefully things will be ok for a while.

 

As we know, this is something that will never end for as long as we are alive. We have to struggle with the unknown and hope for the best. In the mean time, I am trying to care for my son since he will be in recuperation for a long time. Really I am just helping my daughter since she is the one really taking care of him. She is a wonderful daughter and sister. In 2009 she took care of me and this year she is taking care of her brother. She is a teacher and this is the second summer that she will have to spend taking care of a sick family member. 

 

I hope everyone is doing well. With all that is going on right now, I have not have too much time to check on you. My husband has instructions to let you know if something happens to me. I feel it is important and helpful since we are all linked by the same faith. 

 

Love

 

Maria T.

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Comment by Maria Trinidad Herrera on June 26, 2011 at 2:23

Thank you so much Graeme and Kim for your encouraging words. I am so lucky to have found this group because you are now my family.

After my surgery I was so lost. At first I did not want to know anything about it, and felt angry and devastated. It was so difficult to accept that my life had changed for ever. I was doing everything right and felt invincible. I felt so vulnerable.

Then as I began to feel better, the desire to know what was done to me took over. It was then that my husband suggested to look in the internet. I googled Aortic Dissection Support Group. The first click and I found Graeme. I will never forget his face, he was smiling, like always. I was so happy when he accepted my as a member. This place gave me the courage to face and accept my new life. My friends were very surprised because of the way I handled my surgery. I went back to work within 4 months and did not seem depressed. Graeme, you were such and inspiration to me. I remember you and Richard, who explained my surgery in detail.

It is wonderful to see how our family has grown in such a short time. Thank you again for your kind words and wishes about my son. He is a high spirited young man and is recuperating fast. "God does not give us more than we can handle," people say. I am trying to be strong, taking care of him without forgetting about myself. 

 

Love

 

Maria T

Comment by Graeme on June 24, 2011 at 8:21

Maria

Even though we have never met face to face you occupy a very special place in my and my Nikkis hearts as you were one of the first on board this site and we have followed your life through the last few years, and especially the happy occasion of your daughters wedding. We are so very sorry to hear about your sons accident and we send all our love and wishes for a speedy recovery. However, he will recover.. he is young and will bounce back. Many years ago our son was in a very bad road accident and was knocked off his bike by a bus and his helmet saved him too, he lost his spleen however but it is remarkable the way he recovered and now leads a happy normal life.

 

We are also relieved that another op has been ruled out for you. Blood thinners (coumadin/warfarin) are not that bad, I and many on the site here with mechanical heart valves have been on them since our AD's and as long as you are sensible about life and your diet I/We lead pretty normal lives!

 

As I sit writing this this beautiful sunny morning in England and look out my office/study window at the duckpond and lots of ducks outside on the lawn waiting for their morning meal from my wife I make myself remember that life is good - no matter what is thrown at us - as we seem to allways get on top of it.

 

You stay well special lady.

 

:-)

Hugs..

Graeme  

 

 

 

Comment by Kimberlee Jones on June 24, 2011 at 3:15

I'm so sorry to hear about your son, I can't imagine going through what you are right now. I'm happy to hear he is doing well and on the road to recovering.  Just don't push yourself too hard, it's a good thing your daughter is helping out. You are truly blessed to have her.

 

Not having surgery must be such a relief, it sound like your docs have a plan and it does sound good. Please keep in touch, I've been worried about you and now I know why.

 

I will keep your son in my thoughts as he recovers.

 

*hugs*

Kimberlee

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