Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
Hi every one!
I wanted to give you an update to my last postings.
After waiting all this time for the doctor to call me in regards to my endograft, today I found out he left the medical unit he was working for. The last time I heard from him was April 15, 2011. In a voice mail message he assured me he was making all of the arrangements for my surgery. I have been calling often for updates. I was informed he was on a trip and he will be back on May 13, 2011. His nurse informed me my test were sent to the surgeon that did my AD in 2009 for him to review. His office informed me the two doctors discussed my case and have decided to monitor me closely for now, and he will be calling me soon to explain. I was very surprised and frustrated today when I called for an update, and they did not know what to tell me because he made no other arrangements for my care. He did not even have the courtesy to notify me of the results of his conversation with the other doctor. After a meeting with my family and explaining the seriousness of my condition, he left me hanging.
Any way, I just want you to know that although I struggle some days ( as we all do), I am doing fine. I am glad there is no surgery for now. I was very afraid. My doctor (AD), wants to wait and do another CT scan in August without doing anything now. In the mean time, I have to take it easy: no flying and no vigorous exercises. From now on the doctors in Chicago will take over my care. I am done with local doctors. This is the second one that fails me. In addition to the stress our condition causes, adding doctor's unprofessionalism... it can be too much.
Thank you for all your support! I love all of you and hope everyone is well.
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