Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
I put off going to a recommended physical therapy place by a friend who helped me through my first surgery, because I did research online and found a pain clinic that sounded like a fit for me. I'm still trying to deal with post surgery effects - especially my sciatic nerve and my legs. I'm 12 weeks post, have cut down to 1 or 2 pain pills a day from the original 12 - back on the treadmill (granted not more than 2.4 at this point for a half hour) but it gets my blood flowing and helps me loosen up and not hurt so much.
The nurse was running late so believe it or not, I sat in the exam room for an hour in the gown. Several times I thought I'd just leave. But chicken me, I didn't. (plus deep down I was hoping to finally get help as it took 3 weeks to get an appt with this place).
She finally came in, asked me about my pain - then told me I was addicted to my pain pills. She didn't even listen or ask about my surgery, nor did she even examine me. I told her that the pain I have isn't stabbing - beyond the electric shock feelings I get where my incision is -- but that it radiates out from my spine and gets to the point of all I can describe is crawling out of my skin. Then she tells me again, that I'm addicted to my pain pills.
I tried to tell her that I've had this pain since my first surgery -- and I haven't been on pain pills until this last surgery on July 7th. Some days are better, some days are worse (barometric pressure changes, full moon, if I've over done it either that day or the previous) - so it varies. I don't wake up and pop a pain pill. If anything - I get withdrawal symptoms when I take the pill.
I left and cried all the way home as they just didn't listen. Oh, she did give me a referral for physical therapy as I was walking out the door --- but that is what I thought I was going for in the first place -- not a piece of paper saying I could come back and get physical therapy --- I could have gotten that from my MD over the phone as he knows way more about me and my situation.
All night it bothered me - and this morning - I got up and realized that it wasn't the practitioner --- they probably really do help people --- but it was the time. Time is money -- -she didn't have time to listen. She assumed she knew me and progressed to "diagnose" me, without really looking or listening to me as the patient.
Oh, and get this --- she offered to prescribe me a different pill --- or refill my pain pills (ahhhh not!! --- if I needed that I would ask my GP). So here she's telling me I'm addicted to my pain pills, yet she's going to give me more? or try to get me on something else?
Now mind you, I've had alot of phenomenal Doctors and Nurses throughout the last 7 years dealing with my AD --- but this wasn't one of them.
Somebody else probably has a totally different view point of her/the doctor, and this pain clinic --- but for me, it led me to question why I had to waste those 3 hours.
I'm on a mission now -- not sure where it will lead, but our society has to change. Not everything can be cured by surgery or drugs. Yes, my aorta needed both - I'm not arguing that --- but time/money vs. listening/healing - are counterparts and it needs to change.
Thanks for listening --- maybe this is part of why I have had to go through what I have the last 7 years - who knows - but obviously I'm here for a reason (and first and foremost is my kids/husband and family) but there is something with this medical stuff - and until I figure it out - I feel like it will just keep perpetuating until I do.
And yes, I have a call into the pain clinics patient services --- my insurance company will pay for my visit, but I don't think they deserve it.
Not to mention how I like that they can waste an hour and a half of my time (I had to be there 30 minutes prior to my appt or I wouldn't be seen) before they actually saw me --- when they threaten that if you don't cancel your appt 24 hours in advance - you will be charged for the visit!
Wow - what we put ourselves through because we are desperate for help --- but I'm finding that you have to trust your gut, and don't fall for the bells and whistles.
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