Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

One of the many specialists that ran tests told me "for you, cardio exercise would be counter productive". I asked him to repeat his comment to my husband, which he did. My dissection was so extensive that getting my heart rate up could be deadly. I am wondering if anyone on this site has ever been told this? 

My cardiologist has said regular walking or slow swimming would be OK, but even that would increase my heart rate. This fact scares me into being sedentary which isn't good for me either. I am about 35lbs over weight which is another bad factor. Add to this the fact that I have a prolapsed mitral valve which caused me shortness of breath at the slightest level of activity. Because of all that I have mentioned, I have chronic fatigue. I am four and a half years since my AD and never thought the fatigue would still be problematic. Although, I wonder if the Mitral Valve was repaired if the fatigue would be resolved.

I would appreciate any input from our group. I feel like no one understands my issues.

Warm Regards to all

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Comment by JEN WILLIAMS on January 9, 2014 at 16:11

I was told to carry on what I was doing, as my dissection had almost closed of its own accord although I have been left with an aneurysm. The problem was that I wasn't doing anything!

When I was told by the practice nurse to join an exercise group, on the NHS, I was then told I could not as none of them are medically insured to cope with me if I should have another dissection. So I was told to go walking on my own, but make sure I have a mobile with me at all times. I go to Beamish Museum and then I can get on and off the trams when I feel tired.

Comment by Dale Santos on January 2, 2014 at 20:44

You're not alone. My cardiologist and surgeon have both advised me to keep my heart rate under 90 at all times. That means no cardio workouts -- ever. Leisure walks and some weight training (I've now been given clearance to lift 20 lbs after 4 years) are all I do now. 

It's hard to believe we're still facing issues this many years after surgery, isn't it? I'm 4-1/2 years post dissection too and every day is still a challenge. 

Comment by Deborah Levering on December 3, 2013 at 20:36

Thank you Graeme. I am setting a goal for myself to begin a walking program. I appreciate the encouragement. I realize that I have to begin doing something besides sitting here at my computer all day:) Wishing everyone a happy holiday season.

Warm Regards

Deborah

Comment by Graeme on December 3, 2013 at 13:31

Deborah, no one here is a medical expert which in its self is an advantage! I would however set yourself a daily regime of light exercise..walking would be the preferred type of exercise I think would be fine for you, either outside or on a machine. Stick to it and listen to your body..thats what I did for the first couple of years and now its an integral part of my life ..walking 2-3 miles a day (having eager dogs help!!) It works and its not invasive or OTT...

cheers

Graeme

ps I STILL get tired even after 10 years now..but have learnt to live with it especially as I am on the go all day with a pretty frenetic work sked.....a 1 hour nap does wonders! And...learn to live with the anxiety...its natural to worry but you HAVE to get on with your life... ;-)  

Comment by Kimberlee Jones on December 2, 2013 at 21:43

I hope things improve for you Deborah.  Just have faith in your docs they will not do surgery until necessary.  I knew a new valve and more surgery were in my future, I just didn't think it would be this soon. Take it one day at a time and never forget to just breathe.

*hugs*

Kimberlee

Comment by Deborah Levering on December 2, 2013 at 21:23

Thanks Kimberlee. I am glad for you that your last surgery is over and that you are doing OK. I just can't imagine having to go through that open heart surgery more than once. Although, I didn't have post op pain with it like I have my Jan. '13 back surgery. Still suffer from back pain and all for naught:( I go see my Cardiologist every 9 months. I am just preparing myself for the time when he says he needs to repair the Mitral Valve. But, guess surgery would be better than this constant shortness of breath and frequent dizzy spells. I think I would be able to tolerate some walking for exercise if it wasn't for the Mitral Valve leaking. You take care and stay on here. I am wishing you a speedy recovery. Warm REgards. Deborah

Comment by Kimberlee Jones on December 2, 2013 at 12:53

I was told I could do light cardio(this was after my dissection) I was also having problem with fatigue(mainly due to a leaky aortic valve, I think) I just had my surgery to replace valve 5 weeks ago and at this point still tired all the time.  So time will tell.  As for what you can or cannot do, hear the docs, listen to your body.  Your body will tell you what is too much and what isn't. 

*hugs*

kimberlee

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