Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

My story: I was 34 weeks pregnant(12/14/05) and developed what I that
was indigestion(a small pressure feeling in the middle of my chest) Now
it was not painful or really bothering me but I could not take my mind
off it. I called both my midwife and my doctor and both advised me to
take some maloxx. After being awake a...ll night because my brain was in
overdrive when my boyfriend woke up the next morning around 7am or so I
told him I was going to try to take a nap and if the indigestion was
still there when I woke up I would go to the ER. The thing is no sooner
did my head hit my pillow I heard a voice say "You go to sleep now, your
never waking up." Well of course that got me motivated to go to the ER.
When I got there it was surprising empty and I went straight back to an
ER room and saw the dotor almost immediatly. Well of course since I was
in my last trimestor of pregnancy they believed I probably had a blod
clot. They sent me to x-ray and then to nuclea...r med. to test for a
clot(I could not have a CT due to preg.) and as an afterthought the
doctor sent me straight from NM to Echo. It's all really blurry in my
mind now, all I know for sure is that I wasn't in Echo for more than
10min before they had a cardiologist there. Here's what I know after the
fact: I went straight from Echo to OR where they deliverd my daughter
at 11:30am on the 15th. The kept me under overnight and preformed
surgery the next morning(16th) They repaired my aortic valve and
replaced/graphted my aorta from the valve to almost mid arch. That was
almost 5 year...s ago, my problems today? Well, shortly after my surgery
I developed another dissection right past the original, the dissection
is small and is stable. I have a CT scan once a year and they keep a
close eye on it. My aortic trunk is also enlarged and is also being
watched. Most recently last month they discovered my aortic valve has a
moderate leak, for now they are also watching that and I will get
another echo in 3m. Overall I feel ok. I feel weak and exhausted all the
time, and I get sharp pains in my chest, they are brief pains but scary
non the less. I am on BP meds, yet I do not have high BP, because of
this I get minor dizzy spells. Overall I really can't complain though,
I'm happy to be alive, even happier that I get to raise my children....
Yet I still live my life day to day scared, sometimes I feel like a
ticking time bomb, I just don't know when I'm set to go off.

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Comment by Kimberlee Jones on April 9, 2010 at 19:36
Thank you so much for your kind comments Marion. I have a wonderful husband who helped me get through those tough times. He never could quite be there emotionally/mentally because he didn't understand, but boy when it came to taking up the slack for me, he was super dad. He also stuck through the tough times as I sort of lost my mind with all of this. I must say finding this site and being able to talk with others has helped to restore my sanity in many ways.
Comment by Marion Millington on April 9, 2010 at 19:28
Hi Kimberley

I too am sorry that I missed reading your blog for some strange reason, as I try to visit the site at least every other day.

I never stop being amazed by the stories that bring us to this site, they are all amazing but yours is particularly poignant as I can’t imagine how it feels when one of the best moments of your life collides with one of the worst. How on earth you managed to look after your children while you were recovering is beyond me, the one thing I found very early on was that for the first time in my life I started putting my needs first and my baby was 28, so I know that for you that must be impossible, you have my complete admiration.

Many people on this site not only live with what happens but also what might happen in the future and you seem to be carrying a particularly heavy burden in that respect, so I hope you find some, support and comfort on this site with people who share the same emotions, experiences and concerns.

If you need to chat just give me a shout

May your day be full of laughter and hope

Marion X
Comment by Kimberlee Jones on April 5, 2010 at 15:59
Trial explosion....made me laugh so hard my sides hurt.
Comment by Richard Deal on April 5, 2010 at 14:26
i always kick myself when i poke my nose into the blogs and see one that i missed... d'oh!

wow! i cannot imagine what it must be like to wake up after having a dissection repaired and having a new human life waiting for you. i guess you had something good come out of the dissection in the purest sense...

do you not think you were more of a ticking time bomb before your dissection...? now at least you have had a trial explosion!

i hope you are feeling better than yesterday, and a little worse than you will feel tomorrow ;)

take care,
r

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