Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
I started looking through the paper work I have gotten since my surgery, so I started looking up what all the big words meant like Thrombocytosis, Leukocytosis, Mondor's disease and my list goes on.
I do know that I developed a blood clot in my upper chest post surgery (not any where near the incision and such) along with the 2 dvt's in my left leg and that is what led them to research my blood tests and that is when they found out that I had this factor 10 which is Lupus Anticoagulant disorder --- but not the Lupus disease itself.
I have to have a special blood test done instead of the standard INR to measure how thin my blood is as whatever this issue is, interfers with normal testing.
As for the Mondor's - what I've read up on the internet can leave me either concerned or just annoyed until it finally goes away on its own. So far none of the doctors involved from surgery on, seem concerned about it, beyond them wanting me to get a mammogram --- but with the 2 ribs removed and the swelling from my latest surgery, it isn't on my top of priorities, nor do I feel it is doable --- same with an ultrasound as the thought of them pressing on the lump could make me cry just at the thought!
As for the factor 10 issue -- it may just go away on its own also --- like it could just be one of the many responses my body has had to the incredibly invasive surgery.
Along my list of these also includes acute renal failure, abnormal liver function, anemia, and infarcts in my spleen and so on.
It's enough to spin one's head around.
But as I approach 6 weeks post surgery, I'm holding on to the positive as much as possible. So far my insides appear to be functioning as they should, beyond the whole thickness of blood issue.
I see my GP on Wednesday to make sure my overall blood work and so forth is normal.
Does it amaze any of you, that after the surgery and once we are discharged from the hospital, that it's like you are all on your own? After them being so concerned about my white count and so forth while I was in the hospital, to not be in touch for months if at all, to not want to make sure my kidneys and liver are still working normally and such - kind of throws me for a loop.
I am thankful for everything they have done and that I'm (hopefully) on the right path. I'm thankful to be on this side of the surgery and not having to play the waiting game. I am starting to sleep more and eat more which of course helps with the healing process --- it's still slow - and I get tired (especially if traveling to appts or too many things happening at home at the same time). But I can walk - yahoo -- not running yet but that's okay -- and I can type with sense (seeing that blog I posted after my surgery lets me know how much better I really am) -- at the time I was typing that I really thought I was making sense!
So many things can transpire before, during, and after surgery --- such a learning process --- and the internet can help a little, but can also freak you out.
Take care everyone --- I'll keep reading --- and all of you are always in my prayers!!!
Add a Comment