Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Ive tried going back to work and could could cope a couple of hours im a waitress in a busy beach cafe but they want me back 4 days a week didnt feel ready theyve asked me to resign getting more depressed people who seemed all concerned now seem to be getting annoyed im not back to normal is their normality after this experience had aortic dissection oct 2012

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Comment by JEN WILLIAMS on September 23, 2013 at 13:06

I have noticed that a couple of people on here have said about having eyesight problems. Are you on statins?

I was given statins in hospital and noticed that my eyesight was going blurred. I can only see out of one eye, had an arrow in my right eye on my fifth birthday, so I do not take things that can affect my eyesight.

I suggested to GP that I ought to reduce my statins by half, and he told me I did not have to take anything if I did not want to! This was in June. So I was then taking 10mg of Atorvastatin. Then in August my legs started hurting, particularly the calves and thighs. I was hurting when I walked. So this month I stopped taking the statins, and my legs are now okay, and my eyesight has improved.

Haven't seen my GP since June, so he does not know yet. I went to the hospital on July 1st and saw a doctor there. In a fifteen minute consultation he fielded 3 phonecalls, as he was on call, so I did not feel as if he was all that bothered about me.

Comment by Jeff Frank on July 30, 2013 at 20:33

Hi Mandy -

I just read your old post again.  I hope that things have worked out on the job and that you are feeling better these days.




Comment by Meier on May 28, 2013 at 14:54

I also have problems with my eyesight, on average twice a month. This started after recovery from the Aortic Dissection 1.5 years ago. I then have blurred vision, just like a migraine aura:

It starts when I'm in a relaxed state (e.g. after exercise) and lasts quite exactly 30 minutes. Can't read or drive during this half hour. After that I have a little bit of a headache during the rest of the day, but not really migraine-like. My doctors believe that this occurs because of the blood pressure medication. They are not 100% sure, though. The carotid arteries hint made by Elaine is interesting, though.

Comment by John Greenstreet on May 21, 2013 at 18:31
Hi Mandy,
Welcome to this site. I too live near Southampton so guess you were in Southampton General too - right?
Whilst I was in SGH I too had a flickering in my left eye, which is a 'lazy' eye, which I put down to some of the drugs I was being given. It hasn't occurred much since leaving hospital in October 2012.
By the way, it's OK to allow yourself a little self-pity, but not too much! I had my AD a year and a half after losing my wife of 30 years to cancer, so I too had a few moments. I wrote a letter to my GP expressing my thoughts and delivered it in person. It made a huge difference in that she now takes a more pro-active interest in my well-being, rather than just the clinical care.
This site will help so let it all out! I did!
Comment by Julia Holley on May 21, 2013 at 9:09

I have just celebrated my 3 year anniversary on 14th May.  I am still recovering and agree with those who say they will always be `different` to who they were before.  Physically I am still recovering and mentally I still have one or two down times, but generally I am in awe of myself for surviving such a physical catastrophe.   My experience made me acutely aware of how short life is and how every day is a gift.   I love my life a thousandfold more than I did before. 

Show these people this forum to help them understand.  Most people are ignorant of our condition do not blame them, educate them.  You never know it may save someones life in the future. Time heals   Julia

Comment by mandy bungay on May 16, 2013 at 7:58
Thankyou for your comments im having a problem with my eyes vision is th same but get a very strange flickering in my good eye and heavy feeling in my weak eye no answers from proffesionals no one seems to want to help find out sorry always moaning but npy getting any support unless l instigate it had to chase up 6 month ct report had no follow up since3 april hear i go again am trying moving house going on holiday looking after grandson so much to look forward to but mood still low
Comment by Gregory Smith on May 7, 2013 at 16:07

Mandy, here's what worked for me. Rather than wallow in self-pity, I told myself what a hero I was. I'd survived something which kills most sufferers. I should be knighted for my achievement and so should you. You are one terrific person. There's not many that were able to do what you did, so give yourself a pat on the back and a big round of applause. Things will only get better from now on.

Comment by Kimberlee Jones on May 6, 2013 at 20:01

Do not feel ungrateful! We all wallowed in self pity for a time. It took me over 3yrs to get out of that place. Just get the help you need. Once you come out, the world is a beautiful place. *hugs*

Comment by mandy bungay on May 6, 2013 at 17:53

i knew i would feel like this so i started with counselling as soon as i could  and was coping with it  but at the moment  i  just seem to wallow in self pity your probably right richard i need to change i used to be a bit of a misery before this happened i feel ungrateful because ive been given a second chance but find it difficult to be in company .thankyou for your comments  

Comment by Richard Deal on May 6, 2013 at 12:21

hey mandy,

like kimberlee said, each person is different! you will never return to your pre-dissection self, but you'll get pretty close if you make the effort. i think you might need to go and seek mental support from a psychologist, as you don't seem to have popped your head up over the rim of the dissection's big black dog bowl and this is just piling on top of it.

i actually feel better now than i did before the dissection - i never used to exercise, i drank a lot, i smoked a lot, i ate what can only be described as rubbish - now i am smoke-free, i still enjoy the odd drink here and there, i eat well, and i cross train around 50kms per week - but i still have to stop once in a while and give my body a chance to catch up.

work at it a day at a time, you are just over 6 months post-dissection, and these things take their time...

take care,



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