Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

This is copied (without comments) from the forum section.

Hey there,
My name is Richard and am 32 years old. I live and work in Karlsruhe, Germany, but I am originally British. I would like to share the story of my dissection with you. I apologise for the length... I seem to have an attack of digital diarrhoea...
On the 8th of July 2008 at around about 10 o'clock in the morning I had a type I (ascending and descending) aortic dissection. I had just been up to the 6th floor in the office to the food machine and was sat down at my desk on the 4th floor eating a ham sandwich when I felt this hideously painful sensation run from my heart, up the back of my throat, down my left arm, and down both my left and right legs. The pain is very difficult to describe for those of you reading this that are lucky enough not to have had a dissection, but I guess if you picture that the wall of the aorta is tearing itself apart as it dissects, you would be able to go some way to imagining the pain. The aortic dissection also caused the trunk of my brachiocephalic artery (and right carotid artery), and my left subclavian artery walls to dissect too.
Luckily for me I was at work, because if I was at home I would have gone to bed and tried to sleep it off. My colleague saved my life by marching me off to the works doctor. Maybe I should mention that I work at a site with 2 factories and about 5000 employees - hence the works doctor... When I got to the works doctor I was attached to an ECG and my blood pressure was measured (left only i think 40/10??) and an ambulance was called. The nurses faxed the ECG off to the doctor who was in Mannheim and he had me given 2 aspirin... This was the worst possible thing he could do from the dissection point of view, but due to the dissection my left anterior descending coronary artery was 65% blocked - so maybe it helped stave off cardiac arrest. Anyway - I took my aspirin like a good boy and wondered what on earth was going on inside me. 5 minutes later I heard a siren getting louder and louder until stopping and 30 seconds later a pair of paramedics entered and after looking critically at the ECG and hearing about the aspirin said they had to get me to one of the local hospitals quick sharp. I remember thinking at the time how considerate that they had bought a stretcher with them, because by this time I was so confused by the waves of fear that kept rolling in on me I doubted I would have been able to walk out to the ambulance! Anyway, I was loaded up and then whisked off to the St. Vicentius clinic here in KA for a heart catheter.
I was able to regain a little of my composure during the ambulance ride and I took comfort, probably falsely, in the fact that they were transporting me at what seemed to be close to the speed of sound with all sirens and any other noise making paraphernalia blaring. The reason I took comfort here is because I remember reading somewhere that people who are having heart attacks generally get a nice leisurely ride with no sirens to reduce their stress levels... so, hooray for me I thought, it wasn't a heart attack!
We pulled up outside the hospital and I was taken straight up to the heart catheter facility. There I was relieved of my jeans for a short amount of time whilst someone cut my leg open and fed a tube up inside of one of my blood vessels to my heart. This sensation was the third most painful thing to happen to me on that day. They positioned everything so that they could see what was happening with the coronary vessels and proceeded to inject the contrast medium through the catheter. They couldn't see anything much wrong initially, but they were having difficulty getting the catheter in position for the crucial picture of the aorta...
Once they managed to get the medium into the aorta however, I remember what seemed like a "business as usual" situation degenerated quickly into panicked expressions and frantic telephone calls. It was explained to me that they could see from the catheter that I had an aortic root aneurysm and that they would have to operate on me as it was at risk of rupturing. They were trying to find me a place on an operating table as we spoke. I had still not heard the word dissection, but I had just experienced the fourth most painful thing that happened to me on that day when they whipped out the catheter. Little did I know that the second most painful thing was coming my way when they tried to stem the flow of blood out of the incision where the catheter had been inserted. Apparently blood vessels are very elastic, or they use a slingshot to "shock" them into stopping bleeding... at this point about 25 minutes had passed since that fateful sandwich. Bonus for me: very quick and accurate diagnosis...
I asked a few more questions about the surgery and what was happening and it finally dawned on me that in an hour or so I would be in open heart surgery. Someone came in and said that they had found me a place on an operating table and that the helicopter was on its way across from the another local hospital to take me to the operating hospital. At this point my brain went into overdrive and I suddenly felt so very alone lay there on the catheter table bleeding into my jeans. I asked if it was ok for me to use my mobile phone, which to my surprise it was, I phoned work and let them know what was happening and where I was going, and then I made the hardest phone call I have ever had to make.
"Mum, it's me... I'm currently in hospital after having a heart catheter and they have to operate on me. I am just waiting for the helicopter to get here now... Can you come over? ...I love you...". I do not remember all of the conversation because it was simply too emotional for me. After realising that I would be opened up and that it was a very serious situation I developed an awful fear and the only thing that was permanently going through my head was "this is it" and that somehow the conversation I was having was not how I saw my last phone call being. I remember Mum commenting on the helicopter saying that "it must be serious" and then the next thing I remember is being trollied up to the roof where the helicopter was waiting for me. I tried to play down how serious what was happening to me was on the phone because there wasn't much point everyone worrying about it, especially if they couldn't get a flight over... which it turns out they couldn't on the 8th.
The helicopter ride from Karlsruhe to the Mediclin Herzzentrum Lahr took 20 minutes, I am told. All I remember is being inserted into the helicopter through a tube in the tail, and being extracted in exactly the same way. I cannot remember being wheeled into the hospital, or being prepped for surgery or anaesthetised. In fact, from the extraction from the tail of the helicopter to my next conscious moment I "lost" 6 days.
The operation to repair the aortic aneurysm made everything clear as to the cause - the first time I heard the word dissection was when I was lying in the ICU and the doctor there explained what had happened but not what they had done. I had had a type I aortic dissection of the intima and the media which was caused by the fact that my aortic valve was biscuspid instead of tri-leaflet. This is detectable with a stethoscope apparently, but is never really checked for because, let's face it, who would think of such a thing?
The operation to repair everything took 9.5 hours, of which there were 22 minutes where I was hypothermically placed in a state of circulatory arrest while the heart valve and the mangled aortic arch was replaced - I have a Conduit Medox Model 514/27mm "masher" and a dacron arch. The surgeons had trouble stopping the bleeding (apsirin...) and so pumped a few coagulants in me before they "zipped" me back up. They were apparently not sure I would pull through the surgery until after 9 hours had passed - basically just after they got my heart pumping again after the circulatory arrest.
The coagulants caused the second trauma my body had to endure later on the next day when I had a "massive" stroke. There is no better place on earth to have a stroke than the intensive care unit of a well equipped hospital, so luckily I have no real residual side effects from the stroke, but I look upon it as providence... It certainly was fateful timing, because whilst they were inserting 2 stents in either side of my carotid arteries to keep the blood flow open to my brain they somehow discovered that I was suffering from internal bleeding and they had to open me up for a second time to minimise the damage to my lungs from the pulmonary contusion and also to fix the leak.
The 8th of July was a Tuesday, and I woke up from the coma that I was in on the Sunday. Initially I was shocked because I had a tube down my throat, and I couldn't move, but soon that shock paled in comparison to the shock from the fact that I had lost 6 days of my life. I guess it could have been much worse :)
When your body goes into deep shock your body centralises it's efforts on maintaining the functions of your vital organs - brain, heart, lungs, liver, and kidneys - however, when it gets the feeling it is losing the battle, most of the time the first vital organs it closes down are the kidneys. I was surprised to find out I was on dialysis, although no one else was surprised. I was also very worried about the 4 big tubes coming out of my stomach and disappearing down the side of the bed. I was also concerned that there were 4 strange machines with great big syringes on them attached to a veritable plumber's dream that was hanging out of my neck. However, I couldn't move, let alone talk with a tube down my throat, and I had absolutely no idea what was best for me at that time. So, I just lay there and accepted the situation...
I am told when my parents first saw me after the operation I was attached to 14 different machines, and over the course of the first week I was gradually removed from one after the other, until I was just left on an anti-coagulant infusion drip (I think I started off on 4), an IV antibiotic drip, the ECG, the O2 sensor and the drains (the 4 tubes coming out of my stomach). When I woke up from the coma I remember 8 machines I think, and when I moved to the non-critical ICU I think I was on 4. In the non-critical ICU 2 drains were removed (what a weird feeling that is) and I when I went to the normal ward I was just on one infusion drip and only attached to the ECG whenever I was in my room.
I suppose this is as good a point as any to stop, as the rest of my story concerns itself with the aftermath, the rehabilitation and trying to work off the psychological effects of knowing just how close I came to sitting at the bar in hell... my 22 minutes of clinical death were also quite interesting from a NDE perspective, because I now know a little about the afterlife... no, I didn't see a "God", nor was there a tunnel and a bright light (let's face it... a light in a tunnel is likely to be an oncoming train anyway!) but there was a card shop and 2 doors. Luckily I went out the door I came in...
I hope this hasn't made your eyes bleed, and that I managed to put it across in a clear, and hopefully entertaining way. If anyone wants to talk to me about my experience then feel free to get in touch with me either via this forum, or via Facebook. I only bite, apparently, if you are trying to check that I haven't swallowed my tongue ;)
take care,
r

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Comment by Graeme on June 20, 2010 at 21:36
Awesome Mrs Deal! Richard, you are a lucky son to have such a wonderful Mum! cheers g
Comment by Olga Deal on June 20, 2010 at 19:01
Hi Rich, reading your story brought back so many memories to me son. It was a terrible time watching you so ill in hospital, however, I knew in my heart you would pull through.

It was a real roller coaster of emotion but also inspiring to watch you improve everyday with the doctors advising me that they would start removing some of the tubes and syringe drivers. They told me that your kidneys had failed but I was not to worry as the dialysis machine would kick start them working again by the Monday or Tuesday and they were right.

You were very lucky to be sent to Lahr the medical staff were brilliant they never stopped working to get you better. The one thing that really impressed me was the joy showed by all the staff that you had recovered so well.

You see Richard miracles do happen nearly two years now and many more to come. I love you son. Mum xxx

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