I am a survivor of 10yrs in April this yr...I live on my own surrounded by people that dont understand that you nearly wasnt there not so long ago. You are left to build yourself up without the support of the NHS, but saying that I have become stronger as result. Its scarry sometimes when your body complains n you know where that pain is coming from.
I had an acute dissection in April 99. They of course wrongly diagnosed me as having a chest infection n gave me antibiotics. Next day no better n so pain meds followed, still no reprieve till I called 999 later that day.Deteriorating onto life support in hospital they sent me for an MRI, but had respiratory arrest inside it. They resuscitated n transfered me to Southhampton where they did emergency surgery, replacing my aortic heart valve n grafting the root.I had a type A dissection n died 3 times going thru all this. Left to my own devices til 2001 they found another dissection but it had moved down to my abdomen. All they can n will do is check on me periodically, sending me for scans etc, but have been on lots of meds since 99 n on warfarin because i have a mechanical valve. My dissection has a circumference of 4cms, not good considering that the UK will only operate when you are 6cms dilated. Yet I keep my chin up - I have my good n bad days but you have to just concentrate on the things you can do rather than what you cannot do Keep positive...have a good network of friends....I am here to tell the tale n will continue to do so no matter what! Its in the power of my hands.... :-)