Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

I had a mechanical AVR 5 yrs ago and have just been told that I have an aneurysm that requires surgery. I have an appointment on 9th Jan with a surgeon at Wythenshawe hospital. It was originally spotted on an echo at my FU appt and I've now had a CT scan which has been converted into a 3D image in order to decide on the best option.  I'm reading your stories and thinking how courageous you all are. I know that I'm lucky that this has been found and it'll be an elective procedure rather than find out the hard way as most of you have.  I feel surprisingly angry, not sure with who or why.  I found the surgery for the value pretty traumatic and this sounds even worse. Fed up of being a 'brave little soldier'. So fingers crossed for the 9th - maybe its a mix up and someone put their coffee cup down on the scan (dream on).

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Comment by Mike Keith on January 5, 2015 at 22:02
I was an emergency, Professor Yonan was my surgeon, albeit I didn't have a choice!! I am now also under Mr Waterworth, whom I can speak highly off.
Comment by norma bell on January 3, 2015 at 19:33

thanks for your support.  Mike would you mind telling me who your surgeon was? I'm feeling a bit like the consolation prize in a game of pass the parcel - I was originally referred back to the surgeon who did the AVR, he referred me on to another surgeon (Mr Kadir) who specialises in the aorta, when I got there he'd had to leave urgently and no one knows when he'll be back. The surgeon standing in for him (Mr Carey) didnt do aortic surgery and didnt think there was anyone else at Wythenshawe who could do ascending and arch surgery, he's the one who arranged for the 3D imaging and said I would probably have to go to Liverpool.  I've now got an appt with Mr Waterworth on the 9th.  I'm hoping this is good news as Mr Carey said if it was just the ascending aorta he would be able to tackle it but if it was more extensive I'd need to go to Liverpool. This has been going on since September and all the while I'm on edge thinking it might dissect - Mr Carey said 5mm ascending and 5.4 across the arch so now I'm praying I get a surgeon who has appropriate experience. 

Comment by Kimberlee Jones on January 3, 2015 at 18:39

Keep us updated!!!  Know we are here for you...cheering you on! *hugs*

Comment by Mike Keith on January 3, 2015 at 16:52
I'm also under Wythenshawe Hospital following a dissection in 2010. Your in safe hands, best of luck..
Comment by Nicola McMeekin on January 3, 2015 at 15:39

Good luck with your appointment on the 9th, I hope it goes OK.  I understand what you mean about being a 'brave little soldier', sometimes it is hard to put on a brave face and go out into the world, it's OK to feel angry, thinking of you, hugs


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