Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

For anyone wondering I'm only 35. I was operated on September 15 2010. I wasn't like this before my operation. I'm simply not the same person what so ever. I continue to try and become the old me but…

For anyone wondering I'm only 35. I was operated on September 15 2010. I wasn't like this before my operation. I'm simply not the same person what so ever. I continue to try and become the old me but fail constantly. I'm trying to live a healthy life. I'm not into any drugs, or anything.

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Comment by Kimberlee Jones on September 30, 2012 at 0:27

I was 31 when I had my dissection and I've never fully recovered. While I feel much better than I did a year even 2 years after my dissection, most days I'm tired and exhausted as soon as I wake up. I think I feel the way I do because of the aneurysm I have that has not been operated on yet and(most likely) the leaky aortic valve. Like Graeme I'm curious to exactly how you are feeling exactly.

*hugs*

Kimberlee

Comment by Deborah Levering on September 28, 2012 at 19:19

Hi Bernie,

Before retiring I had a non-medical home care business assisting frail and elderly persons. Many of our clients were dealing with Alzheimers Disease which was always so devastating for family members. Often the family just 'didn't get it'. They expected and wanted their parents to remain the same and be like they were 'before' the onset of the disease. I had to help them understand that their parent's new reality wasn't the same as our reality. It was their responsibility to validate their parent's and accept that things would never be the same. Accepting the inevitable is often difficult but it can be done.

During my recovery, my older sister kept telling me that my fatigue and physical limitations was now my 'new normal'. The tables had been turned and I and my family were experiencing what my former clients and their families had experienced with Alzheimers. My new normal is one I accept. However, dealing with the guilt is my biggest challenge. I feel so bad for my husband who is four years younger than I. My fatigue most definitely affects our activities together. I am just learning to adapt. I cannot play golf with him but that is due to an old back injury and chronic pain. Instead, I drive the golf cart and cheer him on. He loves just having me there to show off for. I cannot climb the steep stairs at stadiums to watch sports, but I can join him in front of the TV to watch. (I hate sports, I might add.) I can still fly as long as I follow doctor's orders to stretch my legs once in awhile, wear support stockings and not drink any caffeine or alcohol while in flight. I check all of my bags and only carry a small purse. Instead of walking from gate to gate, I use the transport carts. It's all about compromise and adaption.

You are young and I truly am sorry that you have suffered from an AD. But, all of us survivors must remember that we are here for a reason. There is a purpose and a plan for our lives. I am learning to focus on what I can do and not on what I can't do. Thankfully, I love spending time on the computer and have found this support group. By encouraging others, we will realize that we aren't focusing so much on ourselves. Please keep us posted on how you are doing day to day. Remember, we care. This is an awesome 'family' we are forming.

Warm Regards,

Deborah

Comment by Graeme on September 28, 2012 at 12:39

Hi Bernie

 

can you elaborate a little bit more about how you feel - physically and mentally? Any survivor of an AD will tell you it is a huge challenge to get back to some semblance of how life was before and it takes a lot of time and effort to regain not only your health but also and most importantly your mental sate - for me it was my previous 'can do' attitude..that took a lot of work and support from my family to get back on an even keel in regard to that aspect of my life. My AD was 10 years ago and even know I sometimes have my own black days of depression but the only way to get on top of it is to talk about it, so please reach out to the members on here and lets see what we can do to help you through this! 

 

cheers

 

Graeme

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