Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Graeme's Blog (14)

Down the Rabbit hole again...Thanks Alice..NOT!

Cutting to the chase. My original Type A emergency dissection repair is nearly worn out. Aneurysm forming around the  Dacron graft onto the original Aorta. Complete aortic arch replacement now scheduled for late September early October.  called 'Elephant Trunk' Procedure. It's the Godzilla of all heart operations. Thankful and VERY grateful that I can have this performed as usually restricted to under 60s. …



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Added by Graeme on July 25, 2019 at 10:00 — 2 Comments

Warfarin by the kilo :-)

OK - hows this for a statistic! Since my Aortic Dissection and replacement of my aortic Valve 13 YEARS AGO last week - I have chewed my way through 1/3 of a kilo of warfrain..and 2 kilos of Atenolol..scary!  13 Down - 17 to go! :-) 

Added by Graeme on April 28, 2016 at 17:28 — 1 Comment

Update for Members: Myself: Membership of Aortic Dissection Support Group

Hi all,

hope all had a lovely Xmas and have started a bright and shiny New Year on a positive spin.... and the Xmas pounds (certainly hope not kilograms!) are now being attacked vigorously in the gym and bracing 10 mile bicycle rides etc!



Firstly my health update. Radiation treatment now all finished and side effects fading quickly.. so it seems so very happy on that front. First check-up end of Feb as have to wait for radiated bits to cool down (joke!) so tests are…

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Added by Graeme on January 19, 2015 at 13:30 — 3 Comments

** Important News for Aortic Dissection Support Group Members **

Hello everyone - I hope you are all well, healthy and happy and enjoying our wonderful summer (Northern Hemisphere!)

 

Firstly, my apologies for not being more active on both this, our AD site and its sister site (MHV site) over the last 18 months or so, but running our own (very busy now!) specialist travel business and generally really living life…

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Added by Graeme on July 25, 2014 at 13:30 — 11 Comments

Cook Medical to launch new endovascular repair system for Type B Aortic Dissections

In an an area not generally known for its good news, this article was featured in todays newspapers in the UK. There is no doubt that medical advances for Aortic Dissection treatment in particular the stenting and robotic surgery fields are now moving very fast..



now for the repair of Type A's without surgical intervention..??!!



Story follows below..



Cook Medical has received approval to launch a new medical device system in Europe which allows type… Continue

Added by Graeme on September 29, 2010 at 14:50 — No Comments

A good example of the Public and the Media understanding (NOT) of Aortic Dissection

Hi all. I subscribe to an auto Google search for 'Aortic Dissection' that throws up any media stories on Aortic Dissection for the UK. This link - about the East Anglian Air Ambulance - to quite an incredible story - about a young mum to be (Nina Whear) who in April 2009 suffered an Aortic Dissection as she was being prepped for the birth of her twins - sadly demonstrates just how little is know about Aortic Dissection in the UK.



I have included a screen grab of the…

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Added by Graeme on March 14, 2010 at 13:00 — No Comments

Genetic Testing..is the GGG (Giant Genetic Genie) about to escape the test tube... & change our lives forever??

If you have not read the precursor forum posts to this blog about genetic screening - it would be wise to do so now..as this blog is the continuation - and expansion - and projection - of maybe things to come. Maybe good things to come in relation to screening for AD. Or maybe not. As the 'Genie in the…

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Added by Graeme on February 8, 2010 at 14:30 — 5 Comments

Working after an Aortic Dissection - Or going back to work!

Hi everyone!



Am getting this quick post up as I have noticed that "going back to work after an aortic dissection" has figured fairly prominently in a few searches on the Google analytics statistics for the site and it is of course - a VERY big deal. OK. Going back to work. I have so many mixed feelings and memories here. Frankly, in my case it took 3 months just to get my head around what had happened along with the physical… Continue

Added by Graeme on December 11, 2009 at 10:00 — 13 Comments

Recovering from Aortic Dissection Surgery - Breathing Exercises

Just a quick blog (note) as I only just thought of this this morning and wanted to share it with new entrants to the "AD zipper club"! As part of the pain management that your body automatically puts in place during the first few months after the operation to handle the pain of the chest healing - it REALLY hurts to laugh, cough, (sneezing is out of the question!) and even breathe deeply. I found that one of the defence mechanisms against this pain that I had carried over some months after the… Continue

Added by Graeme on October 28, 2009 at 9:30 — 1 Comment

Living with a mechanical heart valve.. Whoosh Whoosh, Thump Thump, Tick Tick!

OK. Life was not meant to be easy - so they say! The first thing I noticed with my new heart valve (My aortic valve was also shredded during my aortic dissection and had to be replaced

(see my earlier blog) after things calmed down and I went home from hospital was the 'whooshing' and 'thump thump thump'/'click click click' noises coming from inside me..



As time… Continue

Added by Graeme on October 21, 2009 at 11:30 — No Comments

Abdominal Aortic Aneurysms: Source: The British Heart Foundation: Jan08

The following are two excerpts from the British Heart Foundation Factfile on AAA (Abdominal Aortic Aneursyms). Sobering reading especially in that both abdominal aortic aneurysms and ruptured abdominal aortic aneurysms continues to grow ever year.



Introduction

The “normal” diameter of the abdominal aorta is approximately 2cm, a dimension that increases with age. An abdominal aneurysm is defined by an… Continue

Added by Graeme on October 21, 2009 at 9:30 — No Comments

My Story..22 April 2003 - No - it was NOT just bad indigestion...!!

I'm an Aortic Dissection survivor! We had moved to the UK from Australia in January 2002 after selling our online travel business in Australia in late 2001 after the effects of the Ansett Airlines failure and the devastating effects of 9/11 on the global travel industy. With the love of my life, my lovely British wife Nikki we had obtained new venture financing in mid 2002 and were deep in building our new online venture throughout late 2002 and 2003.…



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Added by Graeme on August 24, 2009 at 18:30 — 11 Comments

Media beat-up: Comparison between proposed new US medical system & NHS: Week ending August 15 2009

I CANNOT let the current "media frenzy " over the stupid, boorish, ill informed remark from Tory MEP Daniel Hannan, a recognised critic of the NHS go by unchallenged.



I refer to his interview this week on American television regarding the difference between the NHS and the newly planned (and extremely controversial) American health system in which he (Hannan) said that he… Continue

Added by Graeme on August 15, 2009 at 13:00 — No Comments

"Carpe diem quam minimum credula postero" ( "Seize the day and place no trust in tomorrow!")

I'm an Aortic Dissection survivor! The creation of this Network and Forum is something that has been high on my own personal "Bucket List" after suffering an "Type A acute aortic dissection" in 2003, and surviving a 10 hour operation to replace my ascending and…

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Added by Graeme on August 11, 2009 at 14:30 — 1 Comment

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