Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Kimberlee Jones's Blog (14)

Sorry I haven't been around much.

I recently had a total of 2 surgeries with traction in between to straighten my cervical spine(neck) so I have been and still am in recovery. I don't spend much time online. Once I am back to health, I will continue to be busy finally starting my new life over and looking to move out of my parents house.(which was delayed because we felt it best I was here for recoverying for this surgery) I haven't forgotten everyone and I will still be around.



Added by Kimberlee Jones on October 1, 2016 at 1:38 — 3 Comments

Just an update.

Well in 10days on the 15th it will be 9yrs since my AD. It is also my daughter's 9th birthday!  Time to celebrate!  I hope everyone has a wonderful holiday and a happy and healthy 2015.

Now a little news, my dentist gave me some news.  The lump he removed from inside my cheek, while mostly damaged saliva gland cell(like he thought it was) it also contained cancer. So I will be visiting the specialist on Monday. Hoping the dentist got it all out when he removed it and that's…


Added by Kimberlee Jones on December 5, 2014 at 17:45 — 3 Comments

Sorry I haven't been active.

Sorry I have been on here much lately. Life got a little nuts.  Moved to Ohio and bought a house(needs lots of work) So I've been pretty busy discovering my physical  About a half day of work generally equals 2 to 3 days of rest. No worries, I'm listening to what my body tells me and not pushing myself.  I will try to be an active member yet again, just remember I love my aortic family and you all are not forgotten! 



Added by Kimberlee Jones on June 14, 2014 at 8:41 — 5 Comments

Surgery Date

Well surgery is scheduled for early early morning of Oct 22.    I'll update everyone as soon as I am able.



Added by Kimberlee Jones on October 13, 2013 at 2:38 — 22 Comments

My yearly ECHO/CT.

For the first time since I dissected 7 1/2 yrs ago I went a whole yr before a checkup. Kind of exciting when the docs feel you're stable enough to move from 6m to 1yr.  Well excitement is over.  I went for my checkup(this time an ECHO since they are safer than CT scans) doc called yesterday with results.  My leaky valve has gotten worse, and there is a possible expansion of the aorta, they are sending me for a CT scan to confirm the expansion. Doc called in the referral yesterday, so…


Added by Kimberlee Jones on September 7, 2013 at 13:49 — 5 Comments

I'm over the why me....

I've done a lot of thinking these days, about what it is that still upsets about my AD. I've long since past the feeling sorry for myself, the why me, again?(I have had a few prior surgeries, not heart related) What lingers on and on and frustrates me still is that I can't go one day without something causing me to think about my AD and my current aneurysm. Either my heart does it's little extra beat thing, or I get a pain when I sneeze or just for no reason in my chest bone area, etc.…


Added by Kimberlee Jones on February 8, 2013 at 1:33 — 4 Comments


Well today is my youngest daughter's sixth birthday, and we know what that means.  It is also my six year anniversary of my dissection.  Of course I just had to make that announcement and celebrate with my family here too. *hugs* to all of you.


Added by Kimberlee Jones on December 16, 2011 at 1:41 — 8 Comments

ECHO today.

So I had my 6m ECHO today and doc says nothing has changed since my last echo. My enlarged aortic root/aneurysm is holding steady at 5.1 and my leak is still considered moderate. Even better news no more CT scans for me, doc feels due to my age that having an ECHO(now once a year) instead of being exposed to radiation once a year is good enough. He does say if the ECHO ever shows change or I start to develop any symptoms then of course a CT scan will be necessary.


Now let's…


Added by Kimberlee Jones on June 23, 2011 at 16:49 — 6 Comments

Just a thought.

After joining this site and reading and posting here for I do believe well over a year now, I've noticed so many people state how much trouble they had finding support after their ADs. The support that is so very needed. Being able to calm your fears by talking with others that truly understand, the ability to ask "Hey is this normal" or "How do you..." Most of all knowing your not alone. But thanks to one man we have that place! A place where we can share our stories, a place we can vent our… Continue

Added by Kimberlee Jones on January 15, 2011 at 13:26 — 2 Comments

Site issues.

Today I tried to post to three blogs. I was able to post to one but with the other two I could type in my message but could not click on add/comment(whatever the button says) I also tried to e-mail the two people who started those two blogs and was unable to do so, I also tried to email you Graeme but was unable too. Help please. Thank you in advance.

Edit 2:28pm est. I couldn't comment on here to give an update and could not e-mail you via the reply button. Must be issues with… Continue

Added by Kimberlee Jones on October 29, 2010 at 18:30 — 5 Comments

A little update.

Just an added update, so we know I already had a dissection repaired and that I developed another aneurysm shortly after dissection was repaired, I finally remembered to ask doc what was the size of the aneurysm. It is 5.1cm, hasn't grown in almost 5yrs according to last CT scan. She wasn't sure how large before surgery is required, but I see the cardiologist Monday, I already have a list of questions for him.

Added by Kimberlee Jones on October 28, 2010 at 1:08 — 1 Comment

Sorry, had to vent!

I don't know who to talk too and I wish I had somebody that understood in my life. I'm going to vent a little here and hope it helps. I'm just so tired about being tire. It's not the dissection that is keeping me down but this stupid leaky aortic valve. I'm exhausted all the time, I can't even walk from one room to another without running out of breath. My heart feels like it's in overdrive whenever I'm doing anything active at all(including just standing up) I'm dizzy all day long and at times… Continue

Added by Kimberlee Jones on May 9, 2010 at 15:56 — 7 Comments

A Survivors Zipper

A Survivors Zipper by Kimberlee Jones

What do you see, when you look down at your scar? The one we lovenly

call our zipper.

Are you like me? Are there times you look down and your eyes fill with

tears? Times when the fear comes back and you wonder if the end is near.

Do you sometimes feel like a time bomb that is just waiting to go off?

But without a countdown you… Continue

Added by Kimberlee Jones on April 4, 2010 at 15:00 — 3 Comments

My Story

My story: I was 34 weeks pregnant(12/14/05) and developed what I that

was indigestion(a small pressure feeling in the middle of my chest) Now

it was not painful or really bothering me but I could not take my mind

off it. I called both my midwife and my doctor and both advised me to

take some maloxx. After being awake a...ll night because my brain was in

overdrive when my boyfriend woke up the next morning around 7am or so I

told him I was going to try to take a nap… Continue

Added by Kimberlee Jones on April 3, 2010 at 11:33 — 4 Comments


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