Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
We had moved into our beautiful five bedroom, three bath home on a golf course on March 29th, my husbands 56th birthday. I had turned sixty on March 19th and was due to fly to Washington and then to California in mid June to visit family. This was a busy spring and I was really frustrated to find myself being rushed to the emergency room. I didn't have time to be sick. I was convinced I would be told it was my old back injury acting up and I would be sent home with pain pills and told to…Continue
May 31st, 2009 was like any other day for me. I was tired from doing yard work the day before and hadn't been feeling very well but contributed that to the extreme heat here in Kansas. I had been lying down on a futon reading a book in the spare bedroom I had turned into a little sitting room. It was 9:30 p.m. and I sat up as I needed to change positions. In the process of sitting up the most excruciating pain shot through my upper back clear through to the front of my chest. I felt like I…Continue
Added by Deborah Levering on September 22, 2012 at 19:30 — No Comments
I wear my scar proudly. I know a lot of people, my mother-in-law, for instance, would prefer that I hide it behind a high collar or a scarf, but I'm not ashamed of what I've been through.
In the beginning, my family treated me like a fragile thing. I was cherished and pampered in all the right ways. But as my body started to heal on the outside, as I've been able to stay awake longer, walk longer distances, do more around the house, eat a bigger variety of food, work, drive,…Continue
Those were my first thoughts when i awoke from the 2 week induced coma at my local hospital.
My last memory was of being home alone, standing, about to roll a joint when a strange sensation that had nothing to do with the dope, began.
No sharp pains, no symptoms of what was about to overwhelm my body, just a logical thought ...this does not feel ok... and my last thought before i blacked out was to press the emergency buttons on my mobile phone for ambulance service.
i', now 47 years old woman,it 6 years since my last 5.5 major complicatedaortic anuerysm opI have a nice scar to remind me I'm alive. it two years since I was diagnosed with dillated cardiomyopthy & 3.5 cm TAA. just the other day I got Appiontment for CT angiogram aorta.It brought all back of my first one. i've been there done & got through it with my support network. who was brillant. It may be that it ok just needs scanning again in another year. all do wait. i dont know the…Continue
Added by mrs elizabeth hurcombe on August 25, 2012 at 13:57 — No Comments
On May 5, 2011 I was (literally) running to catch a plane with my husband en route to a dream cruise to the UK (transatlantic). Halfway to the departure gate (of course it was the last gate) I had a sudden, unbelievable, ripping pain down my back that dropped me to my knees. I insisted my husband continue to the gate and hold the door for me - wasn't going to miss my trip. I sat in the concourse holding my chest and trying to breathe - no idea what was wrong. Apparently I was making noise…Continue
I have just returned from my first holiday since my AD last August. It has been a long year recovering but most of all it's been great just being here. My husband, sons, parents, brother and his family spent a week together at Centre Parcs. I managed to swim and cycle which was a real treat as I wasn't sure whether I'd be able to do either of these things. There certainly is life as AD and it's there for the taking, I can't do all the things that I could before my AD but I appreciate the…Continue
Hi, I am a new member and I thought I'd share a bit of my story with you.
Last August I had a type A dissection, I was lucky enough to have it diagnosed correctly and then a dacron graft fitted at the Freeman hospital in Newcastle by 2 amazing surgeons.
I am 10 months post op, it hasn't been an easy recovery, I have been amazed at how long it has taken me to get back to 'normality'. I am painfree mostly, just odd aches and discomfort. I walk every day - despite the weather(!)…Continue
... or maybe that should be writing the wrong ...
Moving on, a year or so on from my dissection. Final update … hopefully.
For those who endured my previous blog will (maybe) remember that my troubles came shortly after a training run for a…Continue
Some of you may be aware I had a Dacron fitted last August. Since then I have been recovering well & have returned to work, all be it on a part time basis.
My left rear shoulder is still causing me issues. I know the tissues probably haven’t had enough time to heal with possible nerve damage so I get a throbbing pain below the shoulder blade. This is mainly after doing something or on my walks. The Physiotherapist says the muscle is wasted & I have tried…Continue
On 2nd June, I celebrated the 2nd anniversary of my Type A Aortic Dissection. On that day I had arrived in Gargnano, on the Western side of Lake Garda in Italy, having ridden my BMW motorcycle through France, Belgium, Luxembourg and Switzerland, over a period of 3 days, to get there. This was some achievement for me, as only a few weeks before, I found it hard to do more than a few tens of miles without getting very tired. I stayed with several other biker friends at our hotel in Gargnano…Continue
I was getting ready to walk out my front door and drive to work when my little dog decided that he needed to go out for a second time that morning, this is something he never does (and has not done it again). I took him outside and waited for him to do his biz,we then went back upstairs into our apartment. When I reached to remove his leash i suddenly felt a very sharp burning pain in my back that shot to my legs.I have never felt a pain like this in my life. I was able to make it from my…Continue
Sunday 22nd April 2012
Did a 200 mile round trip on my BMW R1200RT motorcycle today.
This is the longest trip I've done since my AD 22 months ago. A mixture of motorway, A-roads and country lanes. Wasn't too bad. First 100 miles was pretty easy. Stopped for one hour for lunch then headed back home. Hands were a bit tired and bum was a bit sore by time I got home. I need to get more riding practice in, doing longer trips, in preparation for my trip to Italy at the end of May, as…Continue
I have just returned from an appointment with my vascular consultant and I have been informed that I need two more operations, one to fix the tear in my descending aorta which is torn from the arch to my kidneys the aneurysm measures approx 5cm it has enlarged .2cm in 3 months. The second one is to fit a stent also I need my sub-clavian artery re plumbed!
Last June I had an emergency operation to fix a type A dissection and I suffered a stroke.
Has anyone any…Continue
After my first opp, repair of the descending arch & valve, it took a good 8/9 months to start to feel normal again.
This time around I had a Dacron implant from the rear of the left shoulder.The healing is going well after seven months, but it’s not back to normal yet. I still feel pain along the scar & general tissue / muscle ache, especially after exercise, & wondered generally how long it’s taken you.
Are there any herbal remedies or exercises you…Continue
I've tried, so many times, to write my story, but I can't seem to get the words out. In the beginning, I was depressed so much, feeling like I'd lost so much of myself. Now, I float through days wondering if I'm doing enough. Of course, I've learned to make time for my kids and to spend a little bit of my day with something that makes me happy. But being only 47 years old and only able to work part time (the meds, oh boy!) has put quite a strain on the finances and now I'm wondering if I've…Continue
Thanks for the warm welcome. I will be chatting and learning from this site. Did you have Type B descending as well and how is it being treated? I will know if I will need a stent after they do a cat scan or if meds alone will help it.
Thanks for this site.