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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts (233)

For anyone wondering I'm only 35. I was operated on September 15 2010. I wasn't like this before my operation. I'm simply not the same person what so ever. I continue to try and become the old me but…

For anyone wondering I'm only 35. I was operated on September 15 2010. I wasn't like this before my operation. I'm simply not the same person what so ever. I continue to try and become the old me but fail constantly. I'm trying to live a healthy life. I'm not into any drugs, or anything. Continue

Added by Bernie Bertrand on September 28, 2012 at 1:59 — 3 Comments

I need help

Ever since my surgery I have felt different. Almost different I can't completely put into words how it feels inside only that it almost feels like I shouldn't have survived. I don't know if that makes sense to anyone else but that is how I feel on a day to day basis. I have a wife and two nine year olds that love me unconditionally and yet I can't figure out why. I feel like I don't deserve anything I have and why I haven't been able to straighten out my life since my surgery. Almost like I… Continue

Added by Bernie Bertrand on September 27, 2012 at 8:34 — 3 Comments

Miracle Lady Part 2

  We had moved into our beautiful five bedroom, three bath home on a golf course on March 29th, my husbands 56th birthday. I had turned sixty on March 19th and was due to fly to Washington and then to California in mid June to visit family. This was a busy spring and I was really frustrated to find myself being rushed to the emergency room. I didn't have time to be sick. I was convinced I would be told it was my old back injury acting up and I would be sent home with pain pills and told to…

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Added by Deborah Levering on September 22, 2012 at 22:22 — 6 Comments

The Miracle Lady

  May 31st, 2009 was like any other day for me. I was tired from doing yard work the day before and hadn't been feeling very well but contributed that to the extreme heat here in Kansas. I had been lying down on a futon reading a book in the spare bedroom I had turned into a little sitting room. It was 9:30 p.m. and I sat up as I needed to change positions. In the process of sitting up the most excruciating pain shot through my upper back clear through to the front of my chest. I felt like I…

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Added by Deborah Levering on September 22, 2012 at 19:30 — No Comments

When things are only normal on the outside...

I wear my scar proudly. I know a lot of people, my mother-in-law, for instance, would prefer that I hide it behind a high collar or a scarf, but I'm not ashamed of what I've been through. 

In the beginning, my family treated me like a fragile thing. I was cherished and pampered in all the right ways. But as my body started to heal on the outside, as I've been able to stay awake longer, walk longer distances, do more around the house, eat a bigger variety of food, work, drive,…

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Added by Dale Santos on August 30, 2012 at 4:36 — 3 Comments

how the hell did i get here??

Those were my first thoughts when i awoke from the 2 week induced coma at my local hospital.

My last memory was of being home alone, standing, about to roll a joint when a strange sensation that had nothing to do with the dope, began.

No sharp pains, no symptoms of what was about to overwhelm my body, just a logical thought ...this does not feel ok... and my last thought before i blacked out was to press the emergency buttons on my mobile phone for ambulance service.

The…

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Added by thomas hankin on August 30, 2012 at 4:23 — 2 Comments

2nd aortic anuerysm CT scan 11 sept my birthday

i', now 47 years old woman,it 6 years since my last 5.5 major complicatedaortic anuerysm opI have a nice scar to remind me I'm alive. it two years since I was diagnosed with dillated cardiomyopthy & 3.5 cm TAA. just the other day I got Appiontment for CT angiogram aorta.It brought all back of my first one. i've been there done & got through it with my support  network. who was brillant.  It may be that it ok just needs scanning again in another year. all do wait. i dont know the…

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Added by mrs elizabeth hurcombe on August 25, 2012 at 13:57 — No Comments

My Story

On May 5, 2011 I was (literally) running to catch a plane with my husband en route to a dream cruise to the UK (transatlantic).  Halfway to the departure gate (of course it was the last gate) I had a sudden, unbelievable, ripping pain down my back that dropped me to my knees. I insisted my husband continue to the gate and hold the door for me - wasn't going to miss my trip.  I sat in the concourse holding my chest and trying to breathe - no idea what was wrong.  Apparently I was making noise…

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Added by Catherine Withrow on August 20, 2012 at 16:04 — 5 Comments

My first holiday post AD

I have just returned from my first holiday since my AD last August.  It has been a long year recovering but most of all it's been great just being here.  My husband, sons, parents, brother and his family spent a week together at Centre Parcs.  I managed to swim and cycle which was a real treat as I wasn't sure whether I'd be able to do either of these things.  There certainly is life as AD and it's there for the taking, I can't do all the things that I could before my AD but I appreciate the…

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Added by Nicola McMeekin on August 14, 2012 at 11:58 — 3 Comments

Thank god for girl friends.

I'm Amber

Hi! I guess I'll tell you my storie. It was June 2010. My son was at his dad's house. His birthday was the following day. I called my girlfriend to go birthday shopping with me. While we were out shopping I was incredibly grumpy, bordering on mean. She asked "what is wrong with you!" I told her I wasn't feeling well, I had a pinched nerve in my back. She pulled out her fancy phone and googled all of my symptoms. She then said "my phone says you are having a hart attac." So we… Continue

Added by Amber Dulyanai on July 22, 2012 at 19:04 — 3 Comments

10 months on

Hi, I am a new member and I thought I'd share a bit of my story with you.

Last August I had a type A dissection, I was lucky enough to have it diagnosed correctly and then a dacron graft fitted at the Freeman hospital in Newcastle by 2 amazing surgeons.

I am 10 months post op, it hasn't been an easy recovery, I have been amazed at how long it has taken me to get back to 'normality'. I am painfree mostly, just odd aches and discomfort.  I walk every day - despite the weather(!)…

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Added by Nicola McMeekin on June 22, 2012 at 13:30 — 7 Comments

Righting a wrong ....

... or maybe that should be writing the wrong ...

 

Moving on, a year or so on from my dissection.  Final update … hopefully.

For those who endured my previous blog will (maybe) remember that my troubles came shortly after a training run for a…

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Added by Kev A on June 17, 2012 at 22:07 — 2 Comments

Rear Left Should Pain

Hi all,

Some of you may be aware I had a Dacron fitted last August. Since then I have been recovering well & have returned to work, all be it on a part time basis.

My left rear shoulder is still causing me issues. I know the tissues probably haven’t had enough time to heal with possible nerve damage so I get a throbbing pain below the shoulder blade. This is mainly after doing something or on my walks. The Physiotherapist says the muscle is wasted & I have tried…

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Added by Harry on June 13, 2012 at 19:07 — 5 Comments

2 years since my AD

On 2nd June, I celebrated the 2nd anniversary of my Type A Aortic Dissection. On that day I had arrived in Gargnano, on the Western side of Lake Garda in Italy, having ridden my BMW motorcycle through France, Belgium, Luxembourg and Switzerland, over a period of 3 days, to get there. This was some achievement for me, as only a few weeks before, I found it hard to do more than a few tens of miles without getting very tired. I stayed with several other biker friends at our hotel in Gargnano…

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Added by Gregory Smith on June 13, 2012 at 13:22 — 2 Comments

My Story

I was getting ready to walk out my front door and drive to work when my little dog decided that he needed to go out for a second time that morning, this is something he never does (and has not done it again). I took him outside and waited for him to do his biz,we then went back upstairs into our apartment. When I reached to remove his leash i suddenly felt a very sharp burning pain in my back that shot to my legs.I have never felt a pain like this in my life. I was able to make it from my…

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Added by Logan Mason on May 20, 2012 at 17:14 — 3 Comments

Longest ride since my AD

Sunday 22nd April 2012

Did a 200 mile round trip on my BMW R1200RT motorcycle today.

This is the longest trip I've done since my AD 22 months ago. A mixture of motorway, A-roads and country lanes. Wasn't too bad. First 100 miles was pretty easy. Stopped for one hour for lunch then headed back home. Hands were a bit tired and bum was a bit sore by time I got home. I need to get more riding practice in, doing longer trips, in preparation for my trip to Italy at the end of May, as…

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Added by Gregory Smith on April 23, 2012 at 12:15 — 4 Comments

Dissection of the descending Aorta

Hi

I have just returned from an appointment with my vascular consultant and I have been informed that I need two more operations, one to fix the tear in my descending aorta which is torn from the arch to my kidneys the aneurysm measures approx 5cm it has enlarged .2cm in 3 months.  The second one is to fit a stent also I need my sub-clavian artery re plumbed!

Last June I had an emergency operation to fix a type A dissection and I suffered a stroke.

Has anyone any…

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Added by Linda Hill on March 27, 2012 at 20:27 — 5 Comments

Healing times & suggestions?

Hi All

After my first opp, repair of the descending arch & valve, it took a good 8/9 months to start to feel normal again.

This time around I had a Dacron implant from the rear of the left shoulder.The healing is going well after seven months, but it’s not back to normal yet. I still feel pain along the scar & general tissue / muscle ache, especially after exercise,  & wondered generally how long it’s taken you.

Are there any herbal remedies or exercises you…

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Added by Harry on March 26, 2012 at 20:35 — 3 Comments

2 years later

I've tried, so many times, to write my story, but I can't seem to get the words out. In the beginning, I was depressed so much, feeling like I'd lost so much of myself. Now, I float through days wondering if I'm doing enough. Of course, I've learned to make time for my kids and to spend a little bit of my day with something that makes me happy. But being only 47 years old and only able to work part time (the meds, oh boy!) has put quite a strain on the finances and now I'm wondering if I've…

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Added by Dale Santos on March 25, 2012 at 4:54 — 4 Comments

Warm Welcome

Hi Graeme

 

Thanks for the warm welcome.  I will be chatting and learning from this site.  Did you have Type B descending as well and how is it being treated?  I will know if I will need a stent after they do a cat scan or if meds alone will help it.

 

Thanks for this site.

 

Florence Smith

Added by Florence Smith on March 9, 2012 at 17:47 — 2 Comments

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