Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
Since my last update, I've moved from Spain to Germany, and so, with a new health service and new doctors, I've been subjected to a a full health check.
The news is good (BP is averaging around 100/60 btw), and summed up in two words by the cardiologist I saw who said "you're healthy". My potential heart valve problem is still just that, and I've been told the chances are it will never need surgery. And I've been told it's ok to live life normally (no more excuses about lifting…Continue
I notice several of you have problems with circulation in the leg. I also suffer with this. After walking a distance, my left leg will burn as if I just did 200 leg squats. This is a condition of the AD causing this lack of circulation to the leg! My GP put me on neurotin for this which made the pain about half as bad. They have no intention of doing any surgeries for my AD or for the leg.
Hello my name is Sonya, I'm from Louisiana, and I have been out of the hospital for two months after a diagnosis of AD. For me, this was not a disease I was unfamiliar with. Five years ago, I buried my mother, who passed away two years after her first surgery for her dissection. Upon a second surgery, her body could not handle it anymore! She suffered severely and left me too soon, but she is free now! Three years ago, my brother was hospitalized and also diagnosed with AD. He also…Continue
Hello everyone on this useful website. I'm writing about my experience with an aortic dissection as a non-native English speaker. Please forgive my many mistakes.
Living in Switzerland I had my AD, type A, one and a half years ago at age 50. I was misdiagnosed in a hospital of a major Swiss city and continued living five more days (even went jogging on day four) before a guardian angel…Continue
How does everyone live with an AAA?
Firstly it is good to find this site and share experiences, as the main feeling I have had since 'that day' is one of feeling alone, and not a little scared! My cardiac surgical team at Southampton General were brilliant, but although they have unprecedented skills and experience working with AD, they have not, to the best of my knowledge, experienced AD at first hand, and nor would I wish it on them!
Time for my story. Are you sitting comfortably? Then, I'll begin! (Anyone remember…Continue
I've done a lot of thinking these days, about what it is that still upsets about my AD. I've long since past the feeling sorry for myself, the why me, again?(I have had a few prior surgeries, not heart related) What lingers on and on and frustrates me still is that I can't go one day without something causing me to think about my AD and my current aneurysm. Either my heart does it's little extra beat thing, or I get a pain when I sneeze or just for no reason in my chest bone area, etc.…Continue
At last I have a medication that works. Yesterday I was out for a 14 km run (in slow pace). Today I was out again for 16 km (slower pace than yesterday). It makes me feel good. I have extra attention to my average pulse. I don't want it to go above 150. Now I will have some rest from training and to recover. That's important too.
Hmmm... It was a while ago since I was here. I'm sorry for that. There has been both up's and down's during this time. But it's going in right direction. Since my 6 hours race in november I had a lot of problem with my kne. I finnaly got the diagnosis atrosis. It means it will work to run but hurt sometimes. I have a wonderful doctor. She helped me to adjust my medicines and now I got the correct mix which will work for my training. I have started up my running again (but it's not any fast…Continue
Today I got the word that a working collegue to me passed away in stroke. She was heading home and and got the stroke when was on the way to get in to the car. Other collegues found her on the parking besides her car. She was transported to the emergency - in the same place there I was fighting for my life 6 months earlier. Another collegue was there to visit her. And today when she told me about it I found out that she has been taken to the same room there I was laying for 8 days.
I home from my 6 hours run. It didn't went well. I was forced to give up after a littele more than 3 hours and 21,5 km. It was nothing regarding to my Ad and something like that. This time it was pain in my right knee that made it impossible to continue. Of course I'm very dissapointed but this status will not last any long. Next time I will get my revenge.
Tomorrow it's exactly 6 months since my AD, so running 21,5 km must be OK.
But we AD-people know how to fight and we…Continue
Tomorrow I will start in a 6 hours footrace around a small lake in the city of Boras in Sweden. I hope to reach the marathon distance and I admit that I'm a little bit nervous, but just a little bit. I will think you all. Tomorrow I will tell you how it went...
Have a nice weekend all of you :-)
I’m back to report from my latest event. The weekend 27-28 of October this year (2012) I participated in an event called Rosa Dygnet – free translation: the Pink day. This is an event to raise money for the Swedish breast cancer research (Pink Ribbon – Sweden) and it’s annual. The main event there is a 25 hour spinning, containing 25 different one hour contiguous spinning classes. I have participated in this event since the start, six years ago and it’s very important for me to do…Continue
I will warn you for two things. First I can’t be brief so this will be a long story. Second. My English is not perfect, especially the medical terms, but I’m learning, so I apologize if my English is poor sometimes. However I think you will understand me anyway (I took help of Google translation sometimes). Now to the story.
My name is Stefan Manning and I'm a dedicated ultra-runner born 1956. I'm living in a small town called Partille about 10 km east from Gothenburg in…Continue
Thank you so much Graeme, it means so much for you to allow me to continue. Everyone who has responded to what I have written up until now. All of you are so caring.
Added by Bernie Bertrand on September 30, 2012 at 7:30 — No Comments