Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts (233)

2.5 years and the news is still good

Since my last update, I've moved from Spain to Germany, and so, with a new health service and new doctors, I've been subjected to a a full health check. 

The news is good (BP is averaging around 100/60 btw), and summed up in two words by the cardiologist I saw who said "you're healthy". My potential heart valve problem is still just that, and I've been told the chances are it will never need surgery. And I've been told it's ok to live life normally (no more excuses about lifting…


Added by Tim Manning on August 8, 2013 at 9:00 — 2 Comments

Lack of Circulation in the Leg

I notice several of you have problems with circulation in the leg.  I also suffer with this.  After walking a distance, my left leg will burn as if I just did 200 leg squats.  This is a condition of the AD causing this lack of circulation to the leg!  My GP put me on neurotin for this which made the pain about half as bad.  They have no intention of doing any surgeries for my AD or for the leg.

Added by Sonya McLendon on June 12, 2013 at 17:25 — 5 Comments

Sonya's Story

Hello my name is Sonya, I'm from Louisiana, and I have been out of the hospital for two months after a diagnosis of AD.  For me, this was not a disease I was unfamiliar with.  Five years ago, I buried my mother, who passed away two years after her first surgery for her dissection.  Upon a second surgery, her body could not handle it anymore!  She suffered severely and left me too soon, but she is free now!   Three years ago, my brother was hospitalized and also diagnosed with AD.  He also…


Added by Sonya McLendon on June 11, 2013 at 19:57 — 1 Comment

mandy b

Ive tried going back to work and could could cope a couple of hours im a waitress in a busy beach cafe but they want me back 4 days a week didnt feel ready theyve asked me to resign getting more depressed people who seemed all concerned now seem to be getting annoyed im not back to normal is their normality after this experience had aortic dissection oct 2012

Added by mandy bungay on May 3, 2013 at 7:00 — 12 Comments

My story. And a question.

Hello everyone on this useful website. I'm writing about my experience with an aortic dissection as a non-native English speaker. Please forgive my many mistakes.

Living in Switzerland I had my AD, type A, one and a half years ago at age 50. I was misdiagnosed in a hospital of a major Swiss city and continued living five more days (even went jogging on day four) before a guardian angel…


Added by Meier on April 29, 2013 at 17:28 — 5 Comments

Living with AAA

How does everyone live with an AAA?

Added by Gretchen Doss on March 12, 2013 at 15:31 — 14 Comments

"A little bit of sinusitis!"

Firstly it is good to find this site and share experiences, as the main feeling I have had since 'that day' is one of feeling alone, and not a little scared! My cardiac surgical team at Southampton General were brilliant, but although they have unprecedented skills and experience working with  AD, they have not, to the best of my knowledge, experienced AD at first hand, and nor would I wish it on them! 

Time for my story. Are you sitting comfortably? Then, I'll begin! (Anyone remember…


Added by John Greenstreet on February 23, 2013 at 17:30 — 9 Comments

I'm over the why me....

I've done a lot of thinking these days, about what it is that still upsets about my AD. I've long since past the feeling sorry for myself, the why me, again?(I have had a few prior surgeries, not heart related) What lingers on and on and frustrates me still is that I can't go one day without something causing me to think about my AD and my current aneurysm. Either my heart does it's little extra beat thing, or I get a pain when I sneeze or just for no reason in my chest bone area, etc.…


Added by Kimberlee Jones on February 8, 2013 at 1:33 — 4 Comments

Back to training

At last I have a medication that works. Yesterday I was out for a 14 km run (in slow pace). Today I was out again for 16 km (slower pace than yesterday). It makes me feel good. I have extra attention to my average pulse. I don't want it to go above 150. Now I will have some rest from training and to recover. That's important too.

Added by Stefan Manning on February 3, 2013 at 19:29 — 1 Comment

Away for a while.

Hmmm... It was a while ago since I was here. I'm sorry for that. There has been both up's and down's during this time. But it's going in right direction. Since my 6 hours race in november I had a lot of problem with my kne. I finnaly got the diagnosis atrosis. It means it will work to run but hurt sometimes. I have a wonderful doctor. She helped me to adjust my medicines and now I got the correct mix which will work for my training. I have started up my running again (but it's not any fast…


Added by Stefan Manning on January 29, 2013 at 20:30 — 3 Comments

Scary flashbacks

Today I got the word that a working collegue to me passed away in stroke. She was heading home and and got the stroke when was on the way to get in to the car. Other collegues found her on the parking besides her car. She was transported to the emergency - in the same place there I was fighting for my life 6 months earlier. Another collegue was there to visit her. And today when she told me about it I found out that she has been taken to the same room there I was laying for 8 days.



Added by Stefan Manning on November 12, 2012 at 20:48 — 3 Comments


I home from my 6 hours run. It didn't went well. I was forced to give up after a littele more than 3 hours and 21,5 km. It was nothing regarding to my Ad and something like that. This time it was pain in my right knee that made it impossible to continue. Of course I'm very dissapointed but this status will not last any long. Next time I will get my revenge.

Tomorrow it's exactly 6 months since my AD, so running 21,5 km must be OK.

But we AD-people know how to fight and we…


Added by Stefan Manning on November 10, 2012 at 20:00 — 3 Comments

Tomorrow is the day

Tomorrow I will start in a 6 hours footrace around a small lake in the city of Boras in Sweden. I hope to reach the marathon distance and I admit that I'm a little bit nervous, but just a little bit. I will think you all. Tomorrow I will tell you how it went...

Have a nice weekend all of you  :-)

Added by Stefan Manning on November 9, 2012 at 19:50 — 3 Comments

25 hours spinning with an AD


I’m back to report from my latest event. The weekend 27-28 of October this year (2012) I participated in an event called Rosa Dygnet – free translation: the Pink day. This is an event to raise money for the Swedish breast cancer research (Pink Ribbon – Sweden) and it’s annual. The main event there is a 25 hour spinning, containing 25 different one hour contiguous spinning classes. I have participated in this event since the start, six years ago and it’s very important for me to do…


Added by Stefan Manning on November 4, 2012 at 17:38 — 5 Comments


I think I may have taken my warfarin twice today. It was just so hectic that I'm simply not sure, usually I'm so careful. Does anyone know if there are any signs that I should look out for? Or should I just shrug it off. Btw I take 6.5 mg as a daily dose. I just don't know what to do.

Added by Bernie Bertrand on October 24, 2012 at 10:01 — 2 Comments

My story and my dreams


I will warn you for two things. First I can’t be brief so this will be a long story. Second. My English is not perfect, especially the medical terms, but I’m learning, so I apologize if my English is poor sometimes. However I think you will understand me anyway (I took help of Google translation sometimes). Now to the story.

My name is Stefan Manning and I'm a dedicated ultra-runner born 1956. I'm living in a small town called Partille about 10 km east from Gothenburg in…


Added by Stefan Manning on October 8, 2012 at 16:57 — 5 Comments

Hello again

I hope all is well with everyone. I've been busy working on contacting the right people in order to get some retraining as I mentioned before. So far I've been coming up empty handed, but I'm trying to stay positive.

I was wondering something though, does anyone else get annoyed from time to time with the noise that their machanical valves make? Today is one of those days for me. Don't get me wrong, sure it's a sound that let's me know that it's still working, I just wish they could… Continue

Added by Bernie Bertrand on October 6, 2012 at 13:48 — 1 Comment

Yet another question?¿

Hello again, I kinda made an inquiry about something on a previous post that I still haven't found a solution to. And if anyone else has any insight on this I would appreciate some feed back.

I used to work in construction before my surgery and like I mentioned before I tried after my operation and I can no longer do that job. So what I was wondering is what other kind of jobs do you thing I should look into out there. I live in Sudbury Ontario Canada, and I am itching to return back… Continue

Added by Bernie Bertrand on October 2, 2012 at 7:31 — 3 Comments

Words can't describe

Thank you so much Graeme, it means so much for you to allow me to continue. Everyone who has responded to what I have written up until now. All of you are so caring.

Added by Bernie Bertrand on September 30, 2012 at 7:30 — No Comments

Hi again

To start off I would like to thank the supportive words that all of you have said, it means a lot to know that I'm not alone. Because a lot of the time that is how I feel along with the fact that nobody in my life understands how I'm feeling, both mentally and physically. I'm not the same person that I was before my surgery. Even though my heart doctor adamantly says that I'm as good as new, even better than I was. I try and explain as best I can but it often feels like I can't find the right… Continue

Added by Bernie Bertrand on September 29, 2012 at 12:38 — 4 Comments

Blog Topics by Tags

Monthly Archives














Our AD Facebook Page!

Visit Our Facebook Page/

OR - Post our Website Link to your Facebook Wall Profile
If you have the QR decode app in your smart camera phone - hold your camera phone over this QR CODE and it will automatically take your smart phone (*if you have the internet enabled on your phone) to our Facebook Page!

 OR - Use the QR Code above

What's a QR Code??
Download QR Reader App.

Our Twitter Feed!


© 2019   Created by Graeme.   Powered by

Badges  |  Report an Issue  |  Terms of Service