Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts (233)

The new beginning

Just want to wish you all a very Happy New year. Let's hope it keeps us safe xxx

Added by Alison Roberts-Pagent on January 4, 2011 at 19:01 — 2 Comments

My presentation

    The  very fact  that I survived is  10 times  more  unlikely  when  one  considers,   a) I  am single  and  lived with my  now  deceased  dog. (I  had  to reconize something  &  call ..  she was a great dog, But..     and  b) My  Ascending Aortic Aneurysm was  not  pre  diagnosed.   I  was  a  51  year  old  Career Firefighter with 20 years (with 5 left to go minumum)    Generally  speaking in good  health and though I'd  had gallbladder ectomy a couple years  prior and had made some…

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Added by Jim Sanquedolce on January 1, 2011 at 19:30 — 2 Comments

My Presentation and survival....

On June 28, 2010 I was co-chairing a golf tournament and while driving home after a very long day, I felt pressure in the middle of my chest and tightness in my jaw. I knew what this meant but thought I was just over tired and I would be fine after a good night's sleep. I woke the next morning and was fine. I followed my usual routine of coffee, newspaper and cigarettes and as I sat down to check my emails, my heart began to race and I became light heading. I sat trying to calm myself and…

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Added by Paul Altilia on December 30, 2010 at 20:12 — 1 Comment

My Dissection Event

My wife and I were about to embark on a 6 mile hike in Arches National Park in Moab, Utah when I lost sight in my right eye. The rangers gave her directions to the local community hospital that was about 2 miles away. It took the hospital staff about 20 minutes to determine that my condition was too severe for them to treat. They called a Medevac helicopter that transported me to St Mary's Hospital in Grand Junction, Colorado. It…

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Added by Deryck Muehlhauser on November 11, 2010 at 22:33 — 7 Comments

The rehabilitation lottery

Southampton NHS, where I had my aortic surgery, runs a cardiac rehabilitation service which features an 8 week monitored course of exercise and relaxation classes. However, because I do not live in the Southampton catchment area, I do not qualify. I come under Hampshire NHS which does not seem to have a similar rehabilitation service and will not fund me to attend the Southampton one. The only option I have is the GP referral service. This should allow me to attend the local sports centre for… Continue

Added by Gregory Smith on November 1, 2010 at 11:17 — 9 Comments

HAIR LOSS FROM BETA BLOCKERS?

Hi all,


Has anyone suffered from hair loss? I have been taking Bisoprolol 1.25mg for about 2 years now and my hair has definitely got thinner. I have always had a very thick head of hair so I didn't notice at first. However now I have a real problem around the crown area.


Did a bit of research on the internet to discover that a lot of other people have had this problem while taking beta blockers. My GP has confirmed this too but says that it…
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Added by Marianne Santamera on November 1, 2010 at 11:17 — 5 Comments

Site issues.

Today I tried to post to three blogs. I was able to post to one but with the other two I could type in my message but could not click on add/comment(whatever the button says) I also tried to e-mail the two people who started those two blogs and was unable to do so, I also tried to email you Graeme but was unable too. Help please. Thank you in advance.





Edit 2:28pm est. I couldn't comment on here to give an update and could not e-mail you via the reply button. Must be issues with… Continue

Added by Kimberlee Jones on October 29, 2010 at 18:30 — 5 Comments

A little update.

Just an added update, so we know I already had a dissection repaired and that I developed another aneurysm shortly after dissection was repaired, I finally remembered to ask doc what was the size of the aneurysm. It is 5.1cm, hasn't grown in almost 5yrs according to last CT scan. She wasn't sure how large before surgery is required, but I see the cardiologist Monday, I already have a list of questions for him.

Added by Kimberlee Jones on October 28, 2010 at 1:08 — 1 Comment

New to the site. Looking for some advice and reassurance. Thanks

Hello everybody. Great to find this site. Here’s my story:

In May 2008 I had a CT Scan at a general medical screening which revealed a functioning bicuspid valve and a dilated ascending aorta measuring 4.4cm. I'm under the care of Dr Bunce at St George's Hospital Tooting. He describes the aneurysm as "mildly dilated". Not sure how this differs from other aneurysms but when I have been surfing the internet I read that surgery is usually advised around 5.0 so feel that 4.4 is not so far…

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Added by Marianne Santamera on October 4, 2010 at 10:00 — 9 Comments

First follow-up

On Tuesday this week, 28th September 2010, I had my first follow-up appointment since my operation. It was supposed to be 6 weeks after the operation but ended up being 17 weeks, due to the consultant having been on holiday, having to attend a conference or two and spending time on the lecture circuit. As it happened, I didn't get to see the consultant anyway. I had to settle for his registrar. (So why did I have to wait?)



Anyway, I got weighed and measured, had an x-ray and a ECG and… Continue

Added by Gregory Smith on October 1, 2010 at 14:37 — 5 Comments

Cook Medical to launch new endovascular repair system for Type B Aortic Dissections

In an an area not generally known for its good news, this article was featured in todays newspapers in the UK. There is no doubt that medical advances for Aortic Dissection treatment in particular the stenting and robotic surgery fields are now moving very fast..



now for the repair of Type A's without surgical intervention..??!!



Story follows below..



Cook Medical has received approval to launch a new medical device system in Europe which allows type… Continue

Added by Graeme on September 29, 2010 at 14:50 — No Comments

rehab?

Instead of Greg himself, this is Eve, his wife. Yes, I do read his messages sometimes!

I'm proud of him, he is doing quite well, even if he gets a bit despondent at the slow rate of recovery. Do other people still get dizzy spells after 14 weeks post-op? Certainly the beta-blockers take the edge off things and that includes a glass of wine or any other euphoria! No more disappearing to the shed for a quiet puff on the pipe, that's for sure... Well, he was lucky: for me to be there and for… Continue

Added by Gregory Smith on September 7, 2010 at 20:14 — 4 Comments

Three months and going strong

It's now 3 months since my aortic dissection. The chest infection cleared up a couple of weeks ago and my sleep patterns are improving - 2-3 hours at a time instead of the one hour I was getting.



I went out on my motorbike today for the first time since the operation. It was terrific! Best medicine ever. 40 mile round trip through fast twisty country lanes. No problems whatsoever.



I was a bit hesitant about doing it at first as I have had the occasional dizzy spell - once when… Continue

Added by Gregory Smith on September 1, 2010 at 19:30 — 16 Comments

My aortic dissection experience- living in China

Well this is the second time to start writing this. The first was 2 months after my operation and that was just way too soon. I'm a 29 year old female who in July 2009 moved from the UK to China with my boyfriend. I never realised that moving to China would probably save my life. On November 15th in the early hours I woke from my sleep with pain in my chest that was most painful when I was breathing. This lasted…

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Added by Kate Hughes on August 3, 2010 at 6:32 — 5 Comments

Just joined - looking for info, help and advice

My Type A Aortic Dissection occurred exactly 8 weeks ago and was surgically repaired.



I found this site and came here looking for information but it seems very thin on the ground and difficult to locate (if it exists at all).



Information I'm after:



Drugs & their side effects - for example, I'm on beta-blockers (bisoprolol fumarate 2.5mg) and diuretics (furosemide 40mg).



I'm also on antibiotics for a chest infection… Continue

Added by Gregory Smith on July 28, 2010 at 11:30 — 7 Comments

Bad News, Good News

I have been feeling so well lately, taking on the cross trainer was one of the best things I have done and it really gave my recovery the kick start it needed. I had begun to think that I had reached the plateau of my recovery, which was good, I certainly wasn’t complaining, but deep down inside I was hoping for better.…

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Added by Marion Millington on July 19, 2010 at 14:01 — 2 Comments

Hoping for the best

Hello everyone,

I am posting this for a very close friend. He just turned 49 years old, was going to be married in Dec of this year and moved back to Brazil for a new life as he was living between USA and Brazil. This was his special moment to re-invent himself and finally get married and looking forward for a bright future to restart a new family with kids.

On May 23rd, a Saturday, he was alone and felt terrible chest pain, back pain, breathless and cold sweat.…

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Added by Jose Kfuri on June 3, 2010 at 15:40 — 7 Comments

30.05.2010 - readings

BP: 124/71
INR: 2,5
Weight: 95,2 kgs

thankfully the systolic looks like it might be dropping... started intake of fruit daily from 26th. back to x-training 4 x 45 mins.

Added by Richard Deal on May 30, 2010 at 0:30 — 2 Comments

23.05.2010 - readings

BP: 135/72
INR: 2,4
Weight: ? (age...)

Added by Richard Deal on May 23, 2010 at 0:30 — No Comments

The zipper, a tool for inspiration?

I have another story to share with you about the zipper.

My scar is still very pink and welted, I guess. Although most of the time I even forget is there, some one always remains me. Any way, this was a neat experience:
Last week during a visit to the hospital, I notice an older couple ( probably around my age, but they looked older) seating across from me. They were busy doing their own…
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Added by Maria Trinidad Herrera on May 21, 2010 at 2:30 — 1 Comment

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