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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts (233)

Down the Rabbit hole again...Thanks Alice..NOT!

Cutting to the chase. My original Type A emergency dissection repair is nearly worn out. Aneurysm forming around the  Dacron graft onto the original Aorta. Complete aortic arch replacement now scheduled for late September early October.  called 'Elephant Trunk' Procedure. It's the Godzilla of all heart operations. Thankful and VERY grateful that I can have this performed as usually restricted to under 60s. …


Added by Graeme on July 25, 2019 at 10:00 — 2 Comments

Staring Death in the face, 3 dissections in 20 years

20 Years ago give or take a couple years I went into the hospital for chest pains. A CT scan showed a dissection in the left carotid artery. I was told I had a 70% chance of death without surgery and a 50% chance during surgery.

In essence a coin toss.

The cause of the dissection was and still is a mystery. I was around 30 years old at the time and had none of the contributing factors for…


Added by Byron W Eastridge Jr on June 25, 2019 at 12:30 — 1 Comment

Merry Christmas 2014 - The Story of My Aortic Dissection

I had an emergency Type B, descending aortic dissection on Christmas day 2014. I would love to share my story. While we were opening gifts on Christmas morning, I reached for a present and I literally felt something tear in my chest and abdomen. I had no prior health issues of any kind. I was fit, had low blood pressure, was never a smoker....basically I had no risk factors. I knew something was very wrong as the pain was severe in my chest and back and I was having a difficult time…


Added by Randy Croce on February 21, 2019 at 17:52 — 1 Comment


A little behind schedule for updated info.  I had my AD surgery October 31, 2008, celebrated 9 years this past October. Meanwhile, went to a new Vascular Surgeon and he wanted the last 6 years of MRI's, Cat Scans, etc, plus he did his own Sonar abdominal and chest.  After review of all tests from the past 6/7 years, and the current year. Final conclusion, NOTHING HAS CHANGED, since my surgery. All looks good, AND I'm doing…


Added by Sue Breslin on February 17, 2019 at 22:43 — 1 Comment



I have not been on here for a while so I thought I better update my story.

I retired ( early! 57yrs 8 months) at the end of May 2017. I was offered a deal that paid two years pay.

I was also able to take my pension early. I should have been able to take it at 60yr and would get the full amount but I thought there was no point in waiting for another 2 years to take it (might not be around ).

Since then I have been on a few cruises. Norway for Northern lights,…


Added by Patrick Gethin on November 2, 2018 at 22:39 — 2 Comments

8 years coming up.

On 2nd June, it will be 8 years since my AAD. Everything has been going fine with no problems until January this year. I blacked out at the cardiac rehab gym and was taken to hospital to be checked out. Because of my medical history they were very concerned with my heart, thinking that it may have suddenly stopped beating for a moment but despite all their tests they could find nothing wrong so after 2 days they sent me home. Shortly after, I had a very intense pain in my back, so I returned…


Added by Gregory Smith on May 17, 2018 at 9:46 — 2 Comments

6.5 Years On...

I just wanted to share my latest update.  This week, 6.5 years on from my surgery and at the age of 63, I had my latest consultation with my cardiologist here in Berlin (and an ultrasound).  The good news change.  Yes, there are minor heart valve problems, but nothing new and no worsening of anything (and as far as I can tell, I'm symptom free).  She doesn't want to see me for another two years.

I asked point-blank about life expectancy; her response was that, assuming…


Added by Tim Manning on December 22, 2017 at 11:58 — 2 Comments

5 months on from an AD Type B

Good to have found this site.  I have always been a supporter of support groups, and have been connected to a few others over the years.  

I am 66, living in northern England.  A regular runner over many decades, I did the London marathon last April and wonder whether the exertion of doing this at my age is connected to the dissection ?  Any opinions on this ?  I have mentioned this to doctors, but got  completely no-committal replies.   Either way I won't be running…


Added by Alastair Sharp on January 21, 2017 at 12:31 — 5 Comments

Long Long Time

Greetings again after so many years. It's been 7+ years since my aortic dissection August 30, 2009. I had an abscessed tooth in the Spring of 2013 which infected my spine and heart valve. After several months of treatment including 5 weeks in hospital (again), I partially recovered. It may have been Faulkner who said that when we're struck with adversity we have two choices: throw in the towel or use it to wipe off the sweat. I'll always take the last choice. Wishing y'all my fond regards…


Added by Deryck Muehlhauser on October 13, 2016 at 14:05 — 1 Comment

My Story

As a fit healthy 65 years old enjoying my recent retirement I was a very happy bunny!

On July 10th after driving my friends to the next town for a garden club meeting I was sitting happily listening to a talk, when a pain across my back forced me to leave the room!

I never told anyone and as I visited the loo often! no one took any notice.…


Added by Carol Buckley on October 1, 2016 at 6:29 — 4 Comments

Sorry I haven't been around much.

I recently had a total of 2 surgeries with traction in between to straighten my cervical spine(neck) so I have been and still am in recovery. I don't spend much time online. Once I am back to health, I will continue to be busy finally starting my new life over and looking to move out of my parents house.(which was delayed because we felt it best I was here for recoverying for this surgery) I haven't forgotten everyone and I will still be around.



Added by Kimberlee Jones on October 1, 2016 at 1:38 — 3 Comments


Two weeks ago I was diagnosed with a 4.7 cm ascending aortic aneurysm and a 1.5 cm SMA dissection so this world is all very new to me. I'm grateful to have found this group.  My primary care physician (PCP) has referred me to the chief of cardio thoracic surgery at a Boston hospital.  I have not met him yet, but based on my CT scans he told my PCP that mine is not a case for surgery and that he would follow me.  He in turn referred me to a cardiovascular surgeon for my dissection. Based on…


Added by Ann Sullivan on August 15, 2016 at 15:28 — 3 Comments

Six years and counting.

Yes it's 6 years since I suffered an acute aortic dissection. I'm still here and going strong. Recovery has been slow but steady and apart from the occasional dizzy spell, I'm doing fine. I go for long walks every day and ride my motorbike whenever the weather is good enough. In a couple of months I'll be 70! My son asked me what I wanted and I said, "another 10 years". Here's hoping.

Added by Gregory Smith on June 4, 2016 at 15:08 — 5 Comments

My Story - Troy De Smet

I venture to guess that my story is not atypical from others who have experienced this traumatic event.  

On October 12, 2012 while watching a Football game I experienced what at first felt like a painful case of acid indigestion.  My chest was burning and after a minute or two I began to grow very concerned that something was seriously wrong.  Please understand, I am a man who does not typically enjoy Emergency Rooms or others making a big deal of my health, so making the…


Added by Troy DeSmet on April 28, 2016 at 18:18 — 7 Comments

Warfarin by the kilo :-)

OK - hows this for a statistic! Since my Aortic Dissection and replacement of my aortic Valve 13 YEARS AGO last week - I have chewed my way through 1/3 of a kilo of warfrain..and 2 kilos of Atenolol..scary!  13 Down - 17 to go! :-) 

Added by Graeme on April 28, 2016 at 17:28 — 1 Comment


  Three months ago I had never heard the words “aortic dissection”.  Then, after it happened to me, I did a bit of research on the internet but all I could find were medical articles describing the symptoms, diagnosis and treatment of dissections, nothing which was written from the point of view of people who had suffered from this horrible illness.   So I was really pleased to find this site and to read the stories of those who have experienced and survived AD.  This is my story –…


Added by Julie Lever on February 25, 2016 at 13:51 — 16 Comments

4.5 years on...

It's been a long time since I last posted, and happily, the news is good.

When I first came out of hospital after unexpected emergency surgery, I found it impossible in the first months to imagine that I would ever feel really well again. But I do, really well. Four and a half years on from that surgery, I've just had another round of check-ups for everything, not just the aortic dissection and happily, I'm told that - taking into account the fact that I'm chronically…


Added by Tim Manning on December 12, 2015 at 15:00 — 1 Comment

post surgery blues

Well I'm home after a hemi arch repair and single artery bypass graft.  Bit of a roller coaster, off my head hallucinating for a couple of days followed by listening to two docs discussing me at the end of the bed to glean that I bled post op, needed massive transfusions of blood and frozen plasma and apparent had a cardiac arrest to boot!  I look forward to a debrief with my surgeon at my post op appt.

Developed AF after a week (apparently common) but unfortunately developed a severe…


Added by norma bell on December 9, 2015 at 14:07 — 1 Comment


hey all,

just an update for you all on my condition as I haven't been on here in a while.

at the beginning of August I had a nosebleed that wouldn't stop. I went to an ENT doctor who packed my nose and was sent home to recover. The nosebleed didn't stop, so I was admitted to my local hospital while they tried to ascertain the cause and stop the bleeding. The cause was my INR which despite being a week in hospital without taking any Marcumar was still reading over 7.0…


Added by Richard Deal on November 30, 2015 at 10:24 — 4 Comments

surgery 18th November 2015

Hi Guys I'm just off to Wythenshawe Hospital to book in for surgery on my aneurysm.  As I'm already on warfarin I have to go in 3 days early to come off warfarin and go on the shorter acting heparin.

The procedure will either be a dacron graft to the ascending aorta or if it may be more extensive needing a new valve and root, apparently they dont know until they get in there. 

Fingers crossed I'll be home in 2 weeks and on the mend.  Hope you're all keeping well. xxx

Added by norma bell on November 14, 2015 at 11:20 — 1 Comment

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