Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

jodi bevan
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  • Cheryl Kerber
  • pam elis
  • Kimberlee Jones
  • Graeme
 

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Latest Activity

pam elis and jodi bevan are now friends
Mar 3, 2011
jodi bevan commented on David Wenzel's blog post So how did I become part of this special community?
"it is so amazing to hear all of the stories involved with this particular diagnosis and some peoples outlook so reassuring. i wish you luck. i have not had surgery for my dissection; found 1 yr ago. i have been to numerous dr.s visits…"
Feb 25, 2011
jodi bevan replied to Cheryl Kerber's discussion Anything odd since your surgeries or diagnosis of having AD or just an aneurysm itself?
"I relate to what you saying. I have not had surgery for my dissection but still feel hyper sensitive to things. My dissection rarely leaves my mind and I recently applied for disability and was denied but inbtend on getting a lawyer also. i would…"
Feb 25, 2011
Graeme left a comment for jodi bevan
"Hey Jodi.. Yeah..its not easy//// tired yes.. but im a bit of a overachiever so i seem ot be able to push myself the extra yard if i need to...but im asleep in front of the tv/fire by 9 and in bed by 10 most nights..but i work pretty hard at my job…"
Oct 22, 2010
jodi bevan left a comment for Graeme
"Just wondering; did it take you awhile to adjust? do you have any chronic pains? fatigue? the cardiologist blames a connective tissue disorder & wondering if these problems with improve or should i just take the good days as they come?"
Oct 22, 2010
jodi bevan commented on Marion Millington's blog post Marion's Story Type B AD
"i cant say i enjoyed the story, cause am sorry for your misfortune but it does help to listen; especially when you think you are crazy sometimes with your symptoms. i had found my ad in a similar way. my bp had been 180/117 & went to er, that wk…"
Oct 20, 2010
jodi bevan updated their profile
Oct 20, 2010
jodi bevan and Kimberlee Jones are now friends
Oct 20, 2010
Graeme left a comment for jodi bevan
"Hey Jodi Yes it is incredibly frustrating..the biggest thing i had was being really angry at myself (my body!) for letting this happen..but after the long long road back to your previous life (I am past 7 years now!) it really teaches you - i guess…"
Oct 19, 2010
Kimberlee Jones left a comment for jodi bevan
"I know it is so frustrating. That thought that always pops in your head when something doesn't feel right. That question "is this my dissection" with that said if it is something else going on will the doctors catch it or just chalk…"
Oct 19, 2010
jodi bevan left a comment for Kimberlee Jones
"i feel for you. i have no energy most of the time and feel i am too young too be dealing with this. i think the drs dont believe you sometimes or something and i dont know if my pains and fatigue are from the dissection or something else is now…"
Oct 18, 2010
jodi bevan left a comment for Graeme
"thanks for the assurance. I am still puzzled by everything and it sometimes seems talking to the drs does not get me any where & so many symptoms I am unsure of. nice to know there is some people out there"
Oct 18, 2010
Graeme left a comment for jodi bevan
"Hey Jodi.. Welcome to the Aortic Dissection Group! So sorry to hear all about your troubles, I will send a much longer email to you tomorrow - but in the meantime DO NOT be afraid to ask any of us here for advice and support..as we all have been -…"
Oct 18, 2010
jodi bevan is now a member of Aortic dissection & aortic aneurysm information support group
Oct 18, 2010

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At 18:19 on October 22, 2010, Graeme said…
Hey Jodi..

Yeah..its not easy//// tired yes.. but im a bit of a overachiever so i seem ot be able to push myself the extra yard if i need to...but im asleep in front of the tv/fire by 9 and in bed by 10 most nights..but i work pretty hard at my job which is a consultant for web and media social media in the travel industry.. my double vision is back again lately..probably too much computer work.. No real chronic pains.. took 1-2 years to adjust to my new status and especially the noise of my tin heart valve which seems to be magnified by the dacron aorta graft..thats my theory anyway..i guess as its 7 years plus now i dont dwell too much on it anymore..as i am one of the lucky ones who have been "fixed" ....so..live life..love life..its good - no matter how hard it gets...

g
At 7:43 on October 19, 2010, Graeme said…
Hey Jodi

Yes it is incredibly frustrating..the biggest thing i had was being really angry at myself (my body!) for letting this happen..but after the long long road back to your previous life (I am past 7 years now!) it really teaches you - i guess - how lucky we all are to survive - in one form or another - and how sweet life is.. even with all the extra 'baggage' we now carry.. there is not a day goes by that i do not marvel at something that is good ...a sunset, a huge flock of geese flying overhead on their way back to Canada.. our dog having doggie dreams in front of the fire..whatever..its finding the things that make you smile and life and living that is what it is all about!

take care

Graeme
At 4:29 on October 19, 2010, Kimberlee Jones said…
I know it is so frustrating. That thought that always pops in your head when something doesn't feel right. That question "is this my dissection" with that said if it is something else going on will the doctors catch it or just chalk it up to the dissection. I wish you the best of luck and know that I and everyone here are here for you *hugs*
At 19:30 on October 18, 2010, Graeme said…
Hey Jodi..

Welcome to the Aortic Dissection Group! So sorry to hear all about your troubles, I will send a much longer email to you tomorrow - but in the meantime DO NOT be afraid to ask any of us here for advice and support..as we all have been - or are going through our own trials and tribulations - and we are all here to help one another..

cheers

Graeme Archer
Founder
 
 
 

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