Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Paul
  • United Kingdom
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Are we expert patients?
13 Replies

Given the knowledge and experience of a lot of the members, the research people do and the generous sharing of stories, I'd say this was a pretty well informed bunch.Does anyone have any experience…Continue

Tags: support, local

Started this discussion. Last reply by JEN WILLIAMS Nov 25, 2013.

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Which Country do you live in?
England

Paul's Blog

Not feeling quite so brave

Of course it's a Happy New Year and we're all extremely thankful and grateful to be here but Norma's post about being a brave little soldier struck a chord!

My type B dissection is getting bigger, despite all the meds, and the Op I was sort of looking forward to to sort things out turns out to be very complicated and risky. So I have to live with the risk of rupture whilst waiting for the dissection to get so big that there is no choice but to operate.

With all that, the thing that… Continue

Posted on January 7, 2015 at 21:55 — 4 Comments

Couple of updates........

Thanks for the comments about the meds. I'm now off the Diltiazem and feeling a bit more with it. I asked about the Diabetes risk associated with Bisoprolol / Indapamide combination and Consultant suggested a new modified release version of Indapamide which can be prescribed at a lower dose, so I'm happy with that.

Since my AD happeneded I've been thinking about support group meetings as a possible help, so I finally got round to writing to the Lead Clinician of the Vascular Team at St…

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Posted on April 16, 2014 at 20:00 — 3 Comments

Any medication tips?

Hi Folks,

Now that my vascular consultant has said my dissection is looking quite stable, I'm due a visit to my hypertension consultant and want to ask about different combinations and doses of medication.

The current mix (Adalat, Bisoprolol, Indapamide, Nifedipine and Ramipril) is doing a good job of keeping my blood pressure around 110/60 and heart rate below 55, but I feel extremely fatigued and spaced out most of the time.

I can see from other posts and web searches…

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Posted on January 6, 2014 at 20:26 — 7 Comments

Another AD survivor

Hi all,

I've enjoyed reading the other stories on this site, often finding myself nodding along to peoples' observations on their own strengths and weaknesses, the joy of family and friends, and the wonders and limitations of the various elements of the National Health Service.

So, having recently joined it seemed about time to share my tale......

The 19th May 2012 looked like being a good day. I could see I was  getting fitter due to cycling 20 miles a day as I had just run…

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Posted on November 12, 2013 at 22:30 — 3 Comments

Comment Wall (3 comments)

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At 22:29 on November 13, 2013, Kimberlee Jones said…

Yes a site can have a vibe.  It's the members who create that vibe.  We have an excellent survivors vibe and a family vibe.  Again glad you're a part of it.

*hugs*

Kimberlee

At 20:47 on November 7, 2013, Gregory Smith said…

Paul, welcome to our little group of survivors. You'll find we are a friendly bunch here, so don't be afraid to ask questions, and please, tell us your story.

At 23:16 on November 5, 2013, Kimberlee Jones said…

Welcome Paul.  So glad you found us.  Please feel free to start your own blog and share your story. Ask any questions you like, we will do are best to answer(just keep in mind we are not medical professionals)  Also go ahead and jump on into any ongoing discussions. Again welcome.

*hugs*

Kimberlee

 
 
 

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