"Paul, I figured some of my oddities that I developed after my surgery (like your drinking tea) came from the bags and bags of blood I had transfused during the surgery (I know that is highly unlikely - kind of like one of those crappy horror movies…"
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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
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Paul Finley
- 52, Male
- Preston, Lancashire
- United Kingdom
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Carol Pont commented on Paul Finley's blog post Loeys-dietz Syndrome anyone??"Hi Paul. I found out more from the internet than from the cardiologist. The genetics doctor is very good. I know its still early days. My sleep pattern is crazy at the moment. Mixture of pills. Sometimes i wake up just pleased i am alive. Some…"
Paul Finley commented on Paul Finley's blog post Loeys-dietz Syndrome anyone??"Hi Carol,
Wow 6 in the family. That is some family history. Remember you are still here and although August 2010 is only a few months ago, the anxiety will go in time. How is your rehabilitation going?
I look at the Loeys Dietz / connective tissue…"
Carol Pont commented on Paul Finley's blog post Loeys-dietz Syndrome anyone??"Hi Paul. I been diagnosis. In my dads family i am number 6 too have a type a dissection. I am the only one too be still alive. My emergence surgery was on 28.08.10 i am going through so many emotions at the moment. The surgery and the Loeys Dietz…"
Paul Finley commented on Paul Finley's blog post Loeys-dietz Syndrome anyone??"Hi Cheryl again!!, sorry, I haven't got the hang of this blogging yet.
Whilst I understand ascending aortic dissection is the most immediately life threatening condition, we seem to be lucky in that our valves can be repaired (sometimes)…"
"First off - you amaze me that you finished a 110 mile bike ride only a year after your surgery. Our family cabin is 100 miles away and it takes us bare minimum 2 hours driving at 55 - 70 mph on average. I know you said it was over 2…"
"Incredibly story. My AD the docs say was due to my pregnancy(I'm one of the lucky 2%) I was never tested for anything, they basically took my history and my family history and said due to pregnancy. When my AD happened I'm on one of the…"
"wikipedia took me to polyethylene tetraphthalate (comically named PETE) when i searched there. so assuming dacron is made of a PE derivative, it will still be around when all of our nuclear waste is no longer radioactive.
i just hope it…"
"Hey Paul,
good blog post! Re your question on how long a dacron graft lasts..I asked my cardio specialist that last week at my now 8th yearly set of checks at the fabulous Medway Hospital cardio department.. his answer - same as others- a…"
"hey paul,
what a story, especially the inspiring aftermath! i am also a whole lot fitter after my dissection than before because my leaky bicuspid valve is no longer...
to address your questions: connective tissue disorder? the doctors have…"
A blog post by Paul Finley was featuredLoeys-dietz Syndrome anyone??
It was 8pm on 7th June 2006 and in preparation for doing a charity walk at the weekend, I decided to go on a bike ride to prepare the legs a bit (I like cycling to keep fit). 8 or 9 miles in to a 20 mile ride and I felt this incredible pain in what I thought was my lower throat. I pulled up on a country lane and got off my bike, thinking it will go in a minute. It didn't and the acute pain worsened. I ended up on the floor with my bike in the middle of the coutry lane. I was found luckily by…See More
Paul Finley posted a blog postLoeys-dietz Syndrome anyone??
It was 8pm on 7th June 2006 and in preparation for doing a charity walk at the weekend, I decided to go on a bike ride to prepare the legs a bit (I like cycling to keep fit). 8 or 9 miles in to a 20 mile ride and I felt this incredible pain in what I thought was my lower throat. I pulled up on a country lane and got off my bike, thinking it will go in a minute. It didn't and the acute pain worsened. I ended up on the floor with my bike in the middle of the coutry lane. I was found luckily by…See More
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Loeys-dietz Syndrome anyone??
It was 8pm on 7th June 2006 and in preparation for doing a charity walk at the weekend, I decided to go on a bike ride to prepare the legs a bit (I like cycling to keep fit). 8 or 9 miles in to a 20 mile ride and I felt this incredible pain in what I thought was my lower throat. I pulled up on a…
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