Kimberlee you look so young to have had all these problems, at least I had turned 60 when fate dealt me a blow. Life can be cruel at times, It's difficult to come to turms with what has happend especialy like I say to one so young.
I now consider myself very lucky that fate poked me in the side in my later years instead of dealing me a blow in my youth. All the very best Terry.
Thanks for your warm welcome Kimberlee...I stumbled upon this group by shear chance while looking for more information about my condition, I'm glad I did.
I will post more of my story just hope I won't bore the members. Again thanks, warm regards Terry.
Like all stories on here my tale is oh so similar to many AD sufferers - 'just in time' being the 'operative' word!
Still, I may write my story - as it basically highlights 'what not to do' when the time comes! In fact I think I've already got a title from one mistakes ... 'Google may be good but it didn't diagnose my Aortic Dissection!'
thanks for the comments. Ive learned to put things in the back of my mind as far as the dissection goes. I bike and walk but dont do any heavy lifting and i keep close track of my blood pressure.
thanks Kimberlee. My dissection started as a displaced heartbeat, no pain or anything. I didnt even want to got to a dr. but luckily the ambulance crew talked me into it. I was perfectly healthy and strong before it and now have to watch everything i do. Operation was performed by a top surgeon but i had huge problems recovering from it, kidneys shutting down, swelling, heart out of sync, fluid in chest so bad i could hardly breathe, grinding weakness for months. Big problem is i still have dissection in my aorota that is not operable so its kind of like living with a gun to my head. good luck to you and everyone else here.
hi kj i think from my own experiece i try to pray and meditate i do suffer from anxiety and that was seeing my close relative pass away and this brought on the attacks what i suggest is give all ur time and thought in doing things enjoying everything and thanking god all the time tks
hi kj i am now 14 yrs post op i have sunk into a worrying mode hence have not replied to everyone but if any members like to talk or or know the pains and experieces i have had u are all welcome
or call me if i can leave my number my number with permission 07931227160 thks
I also have pain wearing a bra. If i am not going out i do not wear one. Also anything rubbing on my scar causes pain. I am so glad i am not the only one. Thank you for all the support.
i feel for you. i have no energy most of the time and feel i am too young too be dealing with this. i think the drs dont believe you sometimes or something and i dont know if my pains and fatigue are from the dissection or something else is now going on because it seems they believe it all stems from a connective tissue disorder and with that diagnosis that has alot of symptoms included from what i have read. i have 2months 2 go of working full time then i am not working much. the past 6 months or so my life has changed so much and it is so frustrating. hope to hear from you and hope your luck is better
thank you very much for your lovely comments..Yes I still read this story every 6 months or so when I feel a bit low and it truly gets me right back up again..and feeling how lucky I am to have what I have and to have triumphed...as we all have who made it through! You take care - you are a special person!
Aortic dissection & aortic aneurysm information support group
Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
Kimberlee Jones's Comments
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Kimberlee you look so young to have had all these problems, at least I had turned 60 when fate dealt me a blow. Life can be cruel at times, It's difficult to come to turms with what has happend especialy like I say to one so young.
I now consider myself very lucky that fate poked me in the side in my later years instead of dealing me a blow in my youth. All the very best Terry.
Thanks for your warm welcome Kimberlee...I stumbled upon this group by shear chance while looking for more information about my condition, I'm glad I did.
I will post more of my story just hope I won't bore the members. Again thanks, warm regards Terry.
Thanks Kimberlee!!!
Plan to participate with the group. :-)
Thanks for the comment. Lets chat soon. Patrick
Thanks for warm welcome Kimberlee
Like all stories on here my tale is oh so similar to many AD sufferers - 'just in time' being the 'operative' word!
Still, I may write my story - as it basically highlights 'what not to do' when the time comes! In fact I think I've already got a title from one mistakes ... 'Google may be good but it didn't diagnose my Aortic Dissection!'
All the best
Kev
Hi! Kimberlee,
You seem to be a really nice friendly bunch.
Very much appreciated.
Kevin
Thank you for the warm welcome Kimberlee...
Sending you ((healing hugs)) xxooxx
Susan :-)
or call me if i can leave my number my number with permission 07931227160 thks
I was very happy to read that your exam and the results were very positive.
Cheers, Deryck
Good news :-) about your doc visit! Well done you..! Keep us posted..
cheers
Graeme
thank you very much for your lovely comments..Yes I still read this story every 6 months or so when I feel a bit low and it truly gets me right back up again..and feeling how lucky I am to have what I have and to have triumphed...as we all have who made it through! You take care - you are a special person!
stay safe and well..
bestest
Graeme
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