Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Kimberlee Jones's Comments

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At 8:45 on June 16, 2011, Terry Holt said…

Kimberlee you look so young to have had all these problems, at least I had turned 60 when fate dealt me a blow. Life can be cruel at times, It's difficult to come to turms with what has happend especialy like I say to one so young.

I now consider myself very lucky that fate poked me in the side in my later years instead of dealing me a blow in my youth. All the very best Terry.

At 8:27 on June 16, 2011, Terry Holt said…

Thanks for your warm welcome Kimberlee...I stumbled upon this group by shear chance while looking for more information about my condition, I'm glad I did.

I will post more of my story just hope I won't bore the members. Again thanks, warm regards Terry.

At 6:11 on June 5, 2011, Patrick Michael said…

Thanks Kimberlee!!!

 

Plan to participate with the group. :-)

 

Thanks for the comment. Lets chat soon. Patrick

At 21:53 on May 29, 2011, Kev A said…

Thanks for warm welcome Kimberlee

Like all stories on here my tale is oh so similar to many AD sufferers - 'just in time' being the 'operative' word!

Still, I may write my story - as it basically highlights 'what not to do' when the time comes!  In fact I think I've already got a title from one mistakes ... 'Google may be good but it didn't diagnose my Aortic Dissection!'

 

All the best

Kev

At 3:56 on May 12, 2011, edward michael said…
thanks for the comments. Ive learned to put things in the back of my mind as far as the dissection goes. I bike and walk but dont do any heavy lifting and i keep close track of my blood pressure.
At 6:58 on May 11, 2011, edward michael said…
thanks Kimberlee. My dissection started as a displaced heartbeat, no pain or anything. I didnt even want to got to a dr. but luckily the ambulance crew talked me into it. I was perfectly healthy and strong before it and now have to watch everything i do. Operation was performed by a top surgeon but i had huge problems recovering from it, kidneys shutting down, swelling, heart out of sync, fluid in chest so bad i could hardly breathe, grinding weakness for months. Big problem is i still have dissection in my aorota that is not operable so its kind of like living with a gun to my head. good luck to you and everyone else here.
At 0:47 on April 28, 2011, Kevin T Morgan said…

Hi! Kimberlee,

You seem to be a really nice friendly bunch.

Very much appreciated.

Kevin

At 21:06 on February 15, 2011, Susan King said…

Thank you for the warm welcome Kimberlee...

Sending you ((healing hugs)) xxooxx

Susan :-)

At 19:49 on February 11, 2011, pandit kumar said…
hi kj i think from my own experiece i try to pray and meditate  i do suffer from anxiety and that was seeing my close relative pass away and this brought on the attacks what i suggest is give all ur time and thought in doing things enjoying everything and thanking god all the time tks
At 19:48 on February 10, 2011, pandit kumar said…
hi kj i am now 14 yrs post op i have sunk into a worrying mode hence have not replied to everyone but if any members like to talk or or know the pains and experieces i have had u are all welcome

or call me if i can leave my number my number with permission 07931227160 thks
At 14:29 on February 7, 2011, David Wenzel said…
Thanks Kimberlee!
At 15:33 on January 17, 2011, Carol Pont said…
I also have pain wearing a bra. If i am not going out i do not wear one. Also anything rubbing on my scar causes pain. I am so glad i am not the only one. Thank you for all the support.
At 0:44 on January 1, 2011, Jim Sanquedolce said…
Thanks  for the  Welcome Kimberly, 
At 19:42 on December 31, 2010, Paul Altilia said…
Thanks Kimberlee....
At 5:38 on December 31, 2010, Maria Trinidad Herrera said…
Thanks Kimberlee!
At 16:01 on December 17, 2010, Freddy R. Atkins said…
Thanks.
At 12:05 on November 13, 2010, Deryck Muehlhauser said…
Hi Kimberlee,

I was very happy to read that your exam and the results were very positive.

Cheers, Deryck
At 10:29 on November 13, 2010, Graeme said…
Kimberlee..

Good news :-) about your doc visit! Well done you..! Keep us posted..

cheers


Graeme
At 21:38 on October 18, 2010, jodi bevan said…
i feel for you. i have no energy most of the time and feel i am too young too be dealing with this. i think the drs dont believe you sometimes or something and i dont know if my pains and fatigue are from the dissection or something else is now going on because it seems they believe it all stems from a connective tissue disorder and with that diagnosis that has alot of symptoms included from what i have read. i have 2months 2 go of working full time then i am not working much. the past 6 months or so my life has changed so much and it is so frustrating. hope to hear from you and hope your luck is better
At 8:37 on September 20, 2010, Graeme said…
Hey Kimberlee,

thank you very much for your lovely comments..Yes I still read this story every 6 months or so when I feel a bit low and it truly gets me right back up again..and feeling how lucky I am to have what I have and to have triumphed...as we all have who made it through! You take care - you are a special person!

stay safe and well..

bestest

Graeme

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