Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
My 1yr 10mnths older broher died from this in 2009, he had a Aneurysm/Dissection in 2001, then had to have further surgery a week before his 60th Birthday November2009 , he died on the operating table, he had explained to me that it was genetic and keep an eye out for signs, told me what to expect if it happened! On April 13th 2015 I was Oakham, Rutland, UK and it happened. I knew what it was straight away. 999 Ambulance to Leicester Royal, then transfer to Glenfield Hospital. I had a former neighbour/friend (A Doctor/Consultant) who had said that LRI/Glenfield had best Cardiac surgeons in the UK, so when Ambulance crew offered me Peterborough or Leicester it was an easy choice! Over the following week they tried to get my BP down but without success, so surgery or die anyway, I was so drugged up I dont remember that time at all, the docs told my family a 95% chance I would die in surgery for an Aortic Stent... Surgery on 25th April and I lived... I think Kidney failure was the first main problem, then after surgery my left lung collapsed. I have been like so many people on here so affected by all this! It is now July 21st and still no energy, very weak and tired most of the time, some memory loss and still some confusion! Yet I read some stories on here and feel Very Very Lucky! I have to say I had no post op briefing from my surgeon, he did brief my 3 older sons and they told me quite a lot, whatever, I need to know more about my future, I was informed 6 - 9 months to recover fully, I should get another 7+ years, but nothing about any longer term affects on me as a person. What if any limitations, can and cannot do? Since my discharge from Glenfield on 20th May 15, I managed another 2 days in Kettering General Hospital, sent in by my nurse on 23rd May, I was having severe jaw pain, I thought dental probs but was told this is a sign of Aorta Probs as well! In Kettering one doc wanted me to have a blood transfusion, another said defintiely not, a call to Glenfield tem and they said dont, taking the slow boat to a normal blood count is best! I was released on the 25th once they had done a couple of CT Scans to check all was OK. So its Iron pills, Oily Fish, Liver, Cabbage etc diet right now, and its still 40% low!! I also get some small pains/irritations in my chest, almost certainly Heart/Aorta area, I dont know what these mean? Any ideas anyone? As I was not told what to expect I do not know? And where they entered to re inflate my left lung, I now have fluid there this last week or so, at the top of my rib cage and under my armpit, got to go for a scan next week! Again, no idea if this is normal or to be expected? I suppose it is life goes on, and I am still here. Finding this site was good as I have been able to read other people stories and know that I am not alone, and can look forward to my 64th Birthday next month, a lot more luck than my brother and many others have had, so I am Very Very Lucky.
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