Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
I'm not going to say that everything is wonderful and pain free and perfect as I think you all know that would be false but I have to say, I'm glad to be on this side of it.
I'm back home now - got home Saturday afternoon. They got the Heparin level to a point where I don't have to give myself shots (there was no way - as is I got to the point of crying just seeing the lab people come in to draw more blood. They all tried so hard to not hurt me using pediatric needles, warming the area etc., but just having been stuck so many times developed scar tissue and well, it just didn't want to allow the needles to go through).
Turns out I have this Factor 10 issue in my blood that intefers with getting a true measurement of how thin my blood is (so the standard INR doesn't work for me). Right now I'm good according to my blood draw today - I have to go back Thursday for my next draw. I never was put on blood thinners after my first surgery so this is new to me.
My scar doesn't look so bad but it lets me know it's there.
The surgery itself I guess went well - was supposed to be 4 - 5 hours, but ended up being 9 since when the surgeon went to work on my arteries to my kidneys, the tissues kind of fell apart, so he ended up replacing the whole thing.
Now they are doing a bunch of testing (I meet with a genetic counselor soon) as they are still stumped by how, why, and so forth for someone starting at 38 and ending up with 2 surgeries for this issue.
I get tired easily, but they keep reminding my of everything they had to do including shutting down my systems. My white count finally came down - they don't know if my spleen was rebelling having been monkeyed with.
I know I'm jumping all around here - I have had to accept to stay on the 2 at a time NORCO pain meds every 4 hours as when I've tried to cut back, I regret it as I feel like I'm crawling out of my skin. I just don't like not being able to type and read and stuff like that as you can't focus very well. Just writing this consists of many backing and rewriting.
I'm so thrilled to be on this side of the surgery. I'm thankful for all of your well wishes and prayers. Alison I will be in contact soon. Every day is a bit different, but I'll try to be in touch.
I'm just glad to be home. The hospital was wonderful, and the nurses I could never thank enough. I'm amazed by how far our medical system has come (even though my surgery was still the old standard) there are options out there. Now I just have to take it one step at a time to become the best "new" me possible.
Love ya guys,
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