Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts Tagged 'dissection' (12)

New diagnosis: ANYONE OUT THERE WITH A SMA DISSECTION?

Two weeks ago I was diagnosed with a 4.7 cm ascending aortic aneurysm and a 1.5 cm SMA dissection so this world is all very new to me. I'm grateful to have found this group.  My primary care physician (PCP) has referred me to the chief of cardio thoracic surgery at a Boston hospital.  I have not met him yet, but based on my CT scans he told my PCP that mine is not a case for surgery and that he would follow me.  He in turn referred me to a cardiovascular surgeon for my dissection. Based on…

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Added by Ann Sullivan on August 15, 2016 at 15:28 — 3 Comments

** Important News for Aortic Dissection Support Group Members **

Hello everyone - I hope you are all well, healthy and happy and enjoying our wonderful summer (Northern Hemisphere!)

 

Firstly, my apologies for not being more active on both this, our AD site and its sister site (MHV site) over the last 18 months or so, but running our own (very busy now!) specialist travel business and generally really living life…

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Added by Graeme on July 25, 2014 at 13:30 — 11 Comments

Barefoot in November

 

 

It was just endorsed by actress Amy Yasbeck  of the John Ritter…

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Added by Benjamin J. Carey on August 26, 2011 at 2:30 — 4 Comments

3rd time to the ER

My Story

 

Well I am 38 years old. Spent most of my life as a Firefighter/Paramedic. I believe prior to AD I had mild HTN.

 

heres a real fast chronicle as to my situation.Feb.6 2010 Went to an Emergency room with substernal chest pain and not feeling good at all. They ran bloods on me and it came out normal. My mistake was I left that ER that night still having pain at at a 7 on a scale of 1-10. The next night I went in again and the doctors barely paid any…

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Added by Patrick Michael on June 5, 2011 at 8:00 — 4 Comments

The begining ....



I am currently (24 January 2011) suffering from Chronic Type A Aortic Dissection.

I have been suffering from breathlessness for some weeks and was eventually persuaded by my wife to visit our GP. He thought my problems could be caused by anaemia and arranged for some blood tests. He also arranged for a chest X-ray. The results showed no abnormalities.…

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Added by David Vaughan on January 24, 2011 at 14:52 — 5 Comments

Look what I found...

so, i was doing a bit (well, actually i have been putting it off for quite a while so it turned out to be quite a lot) of filing and stumbled upon my first ever cat scan pictures 6 months post-op. unfortunately, i either gave my doctor or the consultant i went to see in the uk the CD with the pictures on, but i will take the paper copies to work tomorrow and scan them in (i can only do A4 at home and these are A3). what i find interesting to see are the mechanical valve, dacron conduit and…

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Added by Richard Deal on January 16, 2011 at 22:11 — 4 Comments

Cook Medical to launch new endovascular repair system for Type B Aortic Dissections

In an an area not generally known for its good news, this article was featured in todays newspapers in the UK. There is no doubt that medical advances for Aortic Dissection treatment in particular the stenting and robotic surgery fields are now moving very fast..



now for the repair of Type A's without surgical intervention..??!!



Story follows below..



Cook Medical has received approval to launch a new medical device system in Europe which allows type… Continue

Added by Graeme on September 29, 2010 at 14:50 — No Comments

A good example of the Public and the Media understanding (NOT) of Aortic Dissection

Hi all. I subscribe to an auto Google search for 'Aortic Dissection' that throws up any media stories on Aortic Dissection for the UK. This link - about the East Anglian Air Ambulance - to quite an incredible story - about a young mum to be (Nina Whear) who in April 2009 suffered an Aortic Dissection as she was being prepped for the birth of her twins - sadly demonstrates just how little is know about Aortic Dissection in the UK.



I have included a screen grab of the…

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Added by Graeme on March 14, 2010 at 13:00 — No Comments

Genetic Testing..is the GGG (Giant Genetic Genie) about to escape the test tube... & change our lives forever??

If you have not read the precursor forum posts to this blog about genetic screening - it would be wise to do so now..as this blog is the continuation - and expansion - and projection - of maybe things to come. Maybe good things to come in relation to screening for AD. Or maybe not. As the 'Genie in the…

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Added by Graeme on February 8, 2010 at 14:30 — 5 Comments

Working after an Aortic Dissection - Or going back to work!

Hi everyone!



Am getting this quick post up as I have noticed that "going back to work after an aortic dissection" has figured fairly prominently in a few searches on the Google analytics statistics for the site and it is of course - a VERY big deal. OK. Going back to work. I have so many mixed feelings and memories here. Frankly, in my case it took 3 months just to get my head around what had happened along with the physical… Continue

Added by Graeme on December 11, 2009 at 10:00 — 13 Comments

Recovering from Aortic Dissection Surgery - Breathing Exercises

Just a quick blog (note) as I only just thought of this this morning and wanted to share it with new entrants to the "AD zipper club"! As part of the pain management that your body automatically puts in place during the first few months after the operation to handle the pain of the chest healing - it REALLY hurts to laugh, cough, (sneezing is out of the question!) and even breathe deeply. I found that one of the defence mechanisms against this pain that I had carried over some months after the… Continue

Added by Graeme on October 28, 2009 at 9:30 — 1 Comment

My Story..22 April 2003 - No - it was NOT just bad indigestion...!!

I'm an Aortic Dissection survivor! We had moved to the UK from Australia in January 2002 after selling our online travel business in Australia in late 2001 after the effects of the Ansett Airlines failure and the devastating effects of 9/11 on the global travel industy. With the love of my life, my lovely British wife Nikki we had obtained new venture financing in mid 2002 and were deep in building our new online venture throughout late 2002 and 2003.…



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Added by Graeme on August 24, 2009 at 18:30 — 10 Comments

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