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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts (229)

One year ago today.

     Today is the one year anniversary of possibly the worst day of my life a type A an b dissection and aortic aneurysm. By all accounts of the doctors and nurses who treated me I should be dead. This is how it went down.

     It was a typical day for me in Hood River Oregon.  As usual I was up early to catch the fresh powder that had once again fallen on Mt Hood Meadows. I had moved from Alaska in November of the previous year so I could be around my family, ski some different areas…

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Added by Wayne Settje on January 10, 2014 at 16:30 — 3 Comments

Any medication tips?

Hi Folks,

Now that my vascular consultant has said my dissection is looking quite stable, I'm due a visit to my hypertension consultant and want to ask about different combinations and doses of medication.

The current mix (Adalat, Bisoprolol, Indapamide, Nifedipine and Ramipril) is doing a good job of keeping my blood pressure around 110/60 and heart rate below 55, but I feel extremely fatigued and spaced out most of the time.

I can see from other posts and web searches…

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Added by Paul on January 6, 2014 at 20:26 — 7 Comments

HAPPY 2014

I just wanted to wish all of the members here a wonderful 2014. There has been a number of times this year that I did not know if I was going to see 2014. Well here it is and I am feeling great about life for another year. It will be one year on the 10th of January that I went into surgery for a type A and B AD. This is like a new year for me since I was medicly dead for more than 2 hours. I am excited to have made it one year and look forward to many more. Once again HAPPY NEW YEAR!! and…

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Added by Wayne Settje on January 1, 2014 at 17:41 — 4 Comments

A very Merry Christmas

A very Merry Christmas to you all, and I wish you and your families a happy and peaceful New Year!

Gary (in windy and wet Sussex UK)

Added by Gary Davis on December 24, 2013 at 23:28 — 1 Comment

Holiday Cheers

MERRY CHRISTMAS EVE from the great Northwest of the USA.  

Added by Wayne Settje on December 24, 2013 at 16:29 — 1 Comment

Thank you

I just wanted to thank all of the members for allowing me to join this site. It was nice to see that there were others in this world that has the same fears about living with a medical issue that could end your life at any moment. It has been less than a year since the accident. I call it this because I was skiing when this happened and I had to tell the  resort I had a skiing accident to redeem some of my season pass.  Anyways, there has not been a day that has gone by since my surgery that…

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Added by Wayne Settje on December 23, 2013 at 14:29 — 2 Comments

My Experience

I think I posted this in the wrong section before... sorry about that! 

Hi all,

I really wish I found this site before, especially when I was going through my ordeal. A couple of things about me: My name is John and I'm in the second half of my 40's (the gray hairs speak for themselves!) I'm an American in the U.K. and, from what I see, have a lot in common with a lot of you all. I've had three aneurysms and two of them dissected. It was a rough road, but I'm…

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Added by J. Hughes on December 5, 2013 at 23:23 — No Comments

My Experience

I think I posted this in the wrong section before... sorry about that! 

Hi all,

I really wish I found this site before, especially when I was going through my ordeal. A couple of things about me: My name is John and I'm in the second half of my 40's (the gray hairs speak for themselves!) I'm an American in the U.K. and, from what I see, have a lot in common with a lot of you all. I've had three aneurysms and two of them dissected. It was a rough road, but I'm…

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Added by J. Hughes on December 5, 2013 at 23:22 — No Comments

No cardio allowed!

One of the many specialists that ran tests told me "for you, cardio exercise would be counter productive". I asked him to repeat his comment to my husband, which he did. My dissection was so extensive that getting my heart rate up could be deadly. I am wondering if anyone on this site has ever been told this? 

My cardiologist has said regular walking or slow swimming would be OK, but even that would increase my heart rate. This fact scares me into being sedentary which isn't good for…

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Added by Deborah Levering on December 1, 2013 at 6:21 — 7 Comments

Another AD survivor

Hi all,

I've enjoyed reading the other stories on this site, often finding myself nodding along to peoples' observations on their own strengths and weaknesses, the joy of family and friends, and the wonders and limitations of the various elements of the National Health Service.

So, having recently joined it seemed about time to share my tale......

The 19th May 2012 looked like being a good day. I could see I was  getting fitter due to cycling 20 miles a day as I had just run…

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Added by Paul on November 12, 2013 at 22:30 — 3 Comments

My story

So pleased to find this site, I was beginning to think I was the only person this had happened to!

 

It all started on 15th March 2006, a day etched in my memory for ever I think. I had just had my 51st birthday and was very fit, weighed 7.5 stone and had never smoked and hardly drank. My husband was working away in Africa and I had spent the day completely as usual and had been for a ride on my horse that afternoon. I was just settling down to supper of pork chops ( It was…

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Added by Victoria on October 21, 2013 at 18:21 — 11 Comments

Surgery Date

Well surgery is scheduled for early early morning of Oct 22.    I'll update everyone as soon as I am able.

*hugs*

Kimberlee

Added by Kimberlee Jones on October 13, 2013 at 2:38 — 22 Comments

My Story

Where to start... I had no warning or symptoms, and was swimming 2-3 miles a day up until my acute Type A dissection on November 5, 2012.  My sister and I were visiting our terminally ill mother in Chicago and were packing to fly home (she to Idaho, I to Philadelphia) when I felt a ripping sensation in my chest.  I had time to call out to her to "call 911," which she did, thank God (I'm glad we were on good terms!!!).  I remember thinking I should sit down, then lie down, and the next few…

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Added by Judy Johnson Roth on September 20, 2013 at 13:36 — 9 Comments

My yearly ECHO/CT.

For the first time since I dissected 7 1/2 yrs ago I went a whole yr before a checkup. Kind of exciting when the docs feel you're stable enough to move from 6m to 1yr.  Well excitement is over.  I went for my checkup(this time an ECHO since they are safer than CT scans) doc called yesterday with results.  My leaky valve has gotten worse, and there is a possible expansion of the aorta, they are sending me for a CT scan to confirm the expansion. Doc called in the referral yesterday, so…

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Added by Kimberlee Jones on September 7, 2013 at 13:49 — 5 Comments

Yet another event

Hi I have had an

Other event in my life. 2 weeks ago in the early hours of the 1st August 2013 I had a seizure and was rushed to hospital. During the seizure I dislocated my shoulder. It took a week for the hospital to put it back in place as they had to take me off my blood thinning medicine just in case the had to open me up while they were resetting my shoulder. Luky they didn't need to open me up and reset the shoulder under anaesthesia.

I now have a sling on for 6 weeks with a… Continue

Added by Patrick Gethin on August 15, 2013 at 20:55 — 6 Comments

Long time ago

It has being a long time since I was here. I had a turbulent period on my job and the stress factor was very high. But me and my team stand ground and solved the situation. It's much better now. The price I have to pay,was an increased blood pressure.

Anyway. I haven't forgot this excellent site. I celebrated my first re-birth anniversary at May 11:th. I ran two 6 hours race. One in March and I missed he marathon distance with 206 meters! Arrgh! But I got my revenge in the beginning…

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Added by Stefan Manning on August 13, 2013 at 8:31 — 2 Comments

2.5 years and the news is still good

Since my last update, I've moved from Spain to Germany, and so, with a new health service and new doctors, I've been subjected to a a full health check. 

The news is good (BP is averaging around 100/60 btw), and summed up in two words by the cardiologist I saw who said "you're healthy". My potential heart valve problem is still just that, and I've been told the chances are it will never need surgery. And I've been told it's ok to live life normally (no more excuses about lifting…

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Added by Tim Manning on August 8, 2013 at 9:00 — 2 Comments

Lack of Circulation in the Leg

I notice several of you have problems with circulation in the leg.  I also suffer with this.  After walking a distance, my left leg will burn as if I just did 200 leg squats.  This is a condition of the AD causing this lack of circulation to the leg!  My GP put me on neurotin for this which made the pain about half as bad.  They have no intention of doing any surgeries for my AD or for the leg.

Added by Sonya McLendon on June 12, 2013 at 17:25 — 5 Comments

Sonya's Story

Hello my name is Sonya, I'm from Louisiana, and I have been out of the hospital for two months after a diagnosis of AD.  For me, this was not a disease I was unfamiliar with.  Five years ago, I buried my mother, who passed away two years after her first surgery for her dissection.  Upon a second surgery, her body could not handle it anymore!  She suffered severely and left me too soon, but she is free now!   Three years ago, my brother was hospitalized and also diagnosed with AD.  He also…

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Added by Sonya McLendon on June 11, 2013 at 19:57 — 1 Comment

mandy b

Ive tried going back to work and could could cope a couple of hours im a waitress in a busy beach cafe but they want me back 4 days a week didnt feel ready theyve asked me to resign getting more depressed people who seemed all concerned now seem to be getting annoyed im not back to normal is their normality after this experience had aortic dissection oct 2012

Added by mandy bungay on May 3, 2013 at 7:00 — 12 Comments

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