Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts (229)

New member

Hi.I've just joined this group so am finding my way around the site. By way of introduction I thought i'd share a bit about myself. Hope that's OK .I'm 62 and (was) in good shape until recently .I had an uncomfortable feeling in my chest one day whilst driving  to an appointment. I put it down to a panic attack-in lieu of anything else to attribute it to! When my relaxation didn't work I scuttled off to my GP who thought it was due to over doing things at the gym. "Go home.Go to bed for a…

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Added by Terry Burridge on May 12, 2015 at 18:00 — 8 Comments

worst valentines day ever!

Had a bit of a scare.  Couldnt get to sleep and around 2am realised my heart was really fast and really irregular, stupidly I lay there for about 2 hrs willing it to settle down.  Eventually got up made a cup of tea and by 4am it had settled.

Hubby knew nothing about this (sound sleeper to say the least). Anyway I decided to call in at the walk in clinic in the village, the nurse advised us to go straight to A&E so we drove to Wythenshawe where they've got all my scans.  I was…

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Added by norma bell on February 15, 2015 at 19:30 — 4 Comments

Update for Members: Myself: Membership of Aortic Dissection Support Group

Hi all,

hope all had a lovely Xmas and have started a bright and shiny New Year on a positive spin.... and the Xmas pounds (certainly hope not kilograms!) are now being attacked vigorously in the gym and bracing 10 mile bicycle rides etc!



Firstly my health update. Radiation treatment now all finished and side effects fading quickly.. so it seems so very happy on that front. First check-up end of Feb as have to wait for radiated bits to cool down (joke!) so tests are…

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Added by Graeme on January 19, 2015 at 13:30 — 3 Comments

update - surgery soon

Well definitely no sugar coating.  I need a graft in the ascending aorta and the first part of the arch, it can be done in one procedure but the valve will have to come out and a new one put in. Estimated 10% mortality rate, 5% stroke risk + 2% infection risk + risk of post op bleeding and return to theatre. This information swiftly followed by what to do in the event of a searing pain in my back! I think the worse news was that it can happen again further along the aorta, dear God I cant do…

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Added by norma bell on January 12, 2015 at 19:56 — 3 Comments

Two years.

Thanks be to God I have lived 2 years after the AD that almost took my life in Jan. 2013. Thank be to all my family, friends, and the members on this support site that have had my back through the last 2 not so easy years. I appreciate all the support and encouragement that made it possible for me to make it through the 2 hardest years of my life. I feel good and look forward to yet another year one day at a time. I pray that all of you have a good year. Thanks for being here and Happy New…

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Added by Wayne Settje on January 11, 2015 at 5:20 — 3 Comments

Not feeling quite so brave

Of course it's a Happy New Year and we're all extremely thankful and grateful to be here but Norma's post about being a brave little soldier struck a chord!

My type B dissection is getting bigger, despite all the meds, and the Op I was sort of looking forward to to sort things out turns out to be very complicated and risky. So I have to live with the risk of rupture whilst waiting for the dissection to get so big that there is no choice but to operate.

With all that, the thing that… Continue

Added by Paul on January 7, 2015 at 21:55 — 4 Comments

hallo & happy new year

I had a mechanical AVR 5 yrs ago and have just been told that I have an aneurysm that requires surgery. I have an appointment on 9th Jan with a surgeon at Wythenshawe hospital. It was originally spotted on an echo at my FU appt and I've now had a CT scan which has been converted into a 3D image in order to decide on the best option.  I'm reading your stories and thinking how courageous you all are. I know that I'm lucky that this has been found and it'll be an elective procedure rather than…

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Added by norma bell on December 31, 2014 at 19:21 — 5 Comments

Just an update.

Well in 10days on the 15th it will be 9yrs since my AD. It is also my daughter's 9th birthday!  Time to celebrate!  I hope everyone has a wonderful holiday and a happy and healthy 2015.

Now a little news, my dentist gave me some news.  The lump he removed from inside my cheek, while mostly damaged saliva gland cell(like he thought it was) it also contained cancer. So I will be visiting the specialist on Monday. Hoping the dentist got it all out when he removed it and that's…

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Added by Kimberlee Jones on December 5, 2014 at 17:45 — 3 Comments

I keep loosing my story so for now 'hello'

Thankyou all for welcoming me. I have just lost 2 long posts. I am not very good on the PC so for now its just 'Hello' again !! and thankyou so much for welcoming me. Maybe my previous posts will turn up. I am Brenda and at the moment feel a bit of a calamity. I experienced the start of my story with Aorta dissection on 5th Oct 13 when a tear appeared in my descending arch. Now 1 year on I am more than ever wanting to know about other people as survivors and their life after AD so am so…

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Added by Brenda Grunwell on October 9, 2014 at 13:10 — 4 Comments

My AD story

As many have said already, date stamp August 2nd 2014 will be a day I remember for the rest of my life. I fully intend to do my best to live it to the best of my ability.

I left my expat home in Germany for a 3 week business trip on July 21st, arrived in Australia in the Northern Queensland town of Cairns on Wednesday morning of 23rd July. I felt rather good, caught up on a few hours of sleep and I was ready to meet friends by lunchtime. I should add at this point that I regularly fly long… Continue

Added by Steve Williams on September 21, 2014 at 13:01 — 5 Comments

3 months post aortic dissection repair

I am glad to have found this site/forum because I realise that aortic dissection is quite rare, so to find some fellow survivors is quite reassuring. I am now 3 months (13 wks to be exact) post op repair of a Type A aortic dissection. Before this happened to me I considered myself a fit 62 year old with no medical problems except mild asthma!

My dissection happened on 27th June 2014 at 3pm and was completely out of the blue like many other people. I was having a day off from work…

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Added by Angela Kirkham on September 19, 2014 at 12:44 — 10 Comments

I have a question.

Hello again from the great North West of the USA. I Hope all is going well for all of you.

This summer has not been the best for myself. I was just getting used to the fact that I cannot do all the things that I used to do and was quit comfortable with the changes. I had gone back to the job I had done most of my life (road construction) as a paving foreman on large scale  projects. This went well for a while until the company began to continue to add responsibliltys to the point that…

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Added by Wayne Settje on August 23, 2014 at 15:30 — 3 Comments

watch for scams

Mary Zambia, a new member,  claims to be in a refugee camp in Africa and is asking for personal information claiming she will transfer 6.5 million dollars in your account  when she has this information. To good to be true? I think so. Beware!!!

Added by Wayne Settje on July 25, 2014 at 14:53 — 1 Comment

** Important News for Aortic Dissection Support Group Members **

Hello everyone - I hope you are all well, healthy and happy and enjoying our wonderful summer (Northern Hemisphere!)

 

Firstly, my apologies for not being more active on both this, our AD site and its sister site (MHV site) over the last 18 months or so, but running our own (very busy now!) specialist travel business and generally really living life…

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Added by Graeme on July 25, 2014 at 13:30 — 11 Comments

My Story,

My story.



Gary D Salow

EX concrete finisher.





ON THE MORNING OF FEBRUARY 4th 1997. WE WERE GETTING A BIG SLAB POUR READY FOR THE NEXT DAY, WE HAD POURED HALF OF THE MAIN BUILDING FLOOR ALREADY DAYS EARLIER AND WERE GETTING READY FOR THE OTHER HALF..WE HAD IT ALL GRADED AND READY TO GO SO IT WAS GOING TO BE AN EASY DAY, ALL WE HAD TO DO WAS SNAP CHALK LINES FOR GRADE MARKS ON THE STEM WALLS, SO WE KNEW HOW HIGH TO POUR THE CONCRETE ON THE FOLLOWING DAY...

I…

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Added by Gary Dan Salow JR on July 24, 2014 at 21:28 — 3 Comments

Sorry I haven't been active.

Sorry I have been on here much lately. Life got a little nuts.  Moved to Ohio and bought a house(needs lots of work) So I've been pretty busy discovering my physical limitations..lol  About a half day of work generally equals 2 to 3 days of rest. No worries, I'm listening to what my body tells me and not pushing myself.  I will try to be an active member yet again, just remember I love my aortic family and you all are not forgotten! 

*hugs*

Kimberlee

Added by Kimberlee Jones on June 14, 2014 at 8:41 — 5 Comments

4th Anniversary of my AAD

Today I celebrate 4 years of survival after suffering an Acute Aortic Dissection. It was only the quick action of my wife Eve, and the skills of the cardiac surgery team at Southampton General that saved my life.

Next week, we are heading for the South of Spain on my BMW R1200RT motorcycle after crossing by ferry from Poole in Southern England to Gijon in Northern Spain. We'll be back on June 29th.

Added by Gregory Smith on June 2, 2014 at 9:24 — 6 Comments

Couple of updates........

Thanks for the comments about the meds. I'm now off the Diltiazem and feeling a bit more with it. I asked about the Diabetes risk associated with Bisoprolol / Indapamide combination and Consultant suggested a new modified release version of Indapamide which can be prescribed at a lower dose, so I'm happy with that.

Since my AD happeneded I've been thinking about support group meetings as a possible help, so I finally got round to writing to the Lead Clinician of the Vascular Team at St…

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Added by Paul on April 16, 2014 at 20:00 — 3 Comments

One year ago today!

Hello everyone! 

I'm 64, married for over 30 years, no longer work (art gallery assistant) and no children. Oh, and we live in Cumbria in the north of England which is incredibly beautiful. That's me in a nutshell except I have Marfan syndrome, had a planned aortic valve & root replacement in 2007 and from a remark made by my surgeon at that time 'luckily' realised I was having a dissection on 19th March last year which no doubt speeded things up in A & E as far as diagnosis…

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Added by Mo Sanderson on March 19, 2014 at 7:20 — 8 Comments

first CT scan results

A very great day in my life. At last I have recieved the results from the first yearly CT scan. I had the scan done on the 8th of Jan. and the pictures got lost for a while. At first I thought no news was good news, but I needed to hear it was all good. I still wake up at night and worry. The heart surgen called yesterday and said that all looks good on the pics from the scan. This is great information and really helps with the way I look at the future. I made it though one year healthy I…

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Added by Wayne Settje on January 31, 2014 at 16:08 — 2 Comments

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