I don't know who to talk too and I wish I had somebody that understood in my life. I'm going to vent a little here and hope it helps. I'm just so tired about being tire. It's not the dissection that is keeping me down but this stupid leaky aortic valve. I'm exhausted all the time, I can't even walk from one room to another without running out of breath. My heart feels like it's in overdrive whenever I'm doing anything active at all(including just standing up) I'm dizzy all day long and at times… Continue
Added by Kimberlee Jones on May 9, 2010 at 15:56 —
BP before pills.
Added by Richard Deal on May 9, 2010 at 10:43 —
Added by Richard Deal on May 3, 2010 at 16:30 —
I would like to share with ever body an experience from last Saturday night.
A bridal shower was held for one of my cousins who is getting married in June. Of course, I attended. The guess were all women, and most of them were my relatives.
I was wearing a nice dress with a low cut neckline. As we know, especially the women, unless we wear a turtle neck our scars are…
Added by Maria Trinidad Herrera on May 1, 2010 at 3:00 —
Added by Richard Deal on April 25, 2010 at 11:30 —
Weight: 101.1 kgs
bloody hell... when i left rehab i was 80kgs...
sales meeting last week, put the spike in INR down to 2 or 3 beers a night for the past 4 days. aim to be under 100 kgs next sunday. see how it pans out ;)
Added by Richard Deal on April 18, 2010 at 19:46 —
I had a cardiologist appointment this morning and was given the all clear for the aorta - no changes since the last check up 6 months ago. ECG was also ok, but the one thing that struck me as strange was my blood pressure: 110/80.
I guess it was a leftover from the blowout on Friday ;)
Added by Richard Deal on April 12, 2010 at 12:33 —
I thought that I had better start using the forums correctly - so I need a blog. Firstly this is for you all to pore over, secondly it is for me to see any changes over the course of time.
Bear with me as I am likely to mess this up! If it turns into an incoherent mess held together by a bad idea I guess I can delete it...
Added by Richard Deal on April 12, 2010 at 12:24 —
I was dreading this one, but since getting my coat back after Friday (and hence the new test strips for the CoaguChek) I measured today at 3.0. Took a good few minutes to get the bleeding to stop. I also think I hit a bit of scar tissue from a previous reading because it hurt like buggery! Ho hum... Will measure again on Tuesday to make sure...
Added by Richard Deal on April 11, 2010 at 12:30 —
A Survivors Zipper by Kimberlee Jones
What do you see, when you look down at your scar? The one we lovenly
call our zipper.
Are you like me? Are there times you look down and your eyes fill with
tears? Times when the fear comes back and you wonder if the end is near.
Do you sometimes feel like a time bomb that is just waiting to go off?
But without a countdown you… Continue
Added by Kimberlee Jones on April 4, 2010 at 15:00 —
My story: I was 34 weeks pregnant(12/14/05) and developed what I that
was indigestion(a small pressure feeling in the middle of my chest) Now
it was not painful or really bothering me but I could not take my mind
off it. I called both my midwife and my doctor and both advised me to
take some maloxx. After being awake a...ll night because my brain was in
overdrive when my boyfriend woke up the next morning around 7am or so I
told him I was going to try to take a nap… Continue
Added by Kimberlee Jones on April 3, 2010 at 11:33 —
Hi all. I subscribe to an auto Google search for 'Aortic Dissection' that throws up any media stories on Aortic Dissection for the UK. This link - about the East Anglian Air Ambulance - to quite an incredible story - about a young mum to be (Nina Whear) who in April 2009 suffered an Aortic Dissection as she was being prepped for the birth of her twins - sadly demonstrates just how little is know about Aortic Dissection in the UK. Continue
I have included a screen grab of the…
Added by Graeme on March 14, 2010 at 13:00 —
If you have not read the precursor forum posts to this blog about genetic screening - it would be wise to do so now..as this blog is the continuation - and expansion - and projection - of maybe things to come. Maybe good things to come in relation to screening for AD. Or maybe not. As the 'Genie in the… Continue
Added by Graeme on February 8, 2010 at 14:30 —
I'm a 45 year old guy from Nottingham, who is currently unemployed and I had what i call my episode really on the 24 Nov 2009.
I was at home chatting to a friend on the phone, and felt like i had been hit hard between my shoulder blades and in my chest, this lasted for 5 mins then went away. I told my friend about it but we both concluded that this was probably indigestion. About 10 minutes later the pain returned times 10, I could barely stand and had broken out in a cold sweat, I… Continue
Added by Norv Morgan on January 20, 2010 at 12:00 —
It took me a while for me to get round to sharing my story, writing it down seems somehow to give my experience substance, but if we don’t talk about it who will. I am a successful 52 year old woman living in a small village in the north of England; I have 4 children, 6 grandchildren and hopefully no more on the way.
I woke up on June 6th 2008, life was good my new business was growing and after years of working hard to bring up my family, my husband and I were on our own and looking… Continue
Added by Marion Millington on January 11, 2010 at 13:23 —
Hi I am Patrick Gethin
I live in the UK(Shropshire ) originally from Scotland . My Aortic dissection happened on 17th September 2008.I had just had my 49th birthday on 16th! I was in a business meeting being held at a local hotel. The meeting broke for coffee and I took the opportunity go go out for some fresh air as I was feeling strange. no pain just like my blood pressure was up and a bit faint. I sat outside when the Duty Manager passed going back into the hotel and he said I didn't… Continue
Added by Patrick Gethin on January 5, 2010 at 21:00 —
I am still finding my way around this site so excuse mistakes.
My husband Peter suffered from an Aortic Dissection type A last october. He was taken ill at work suddenly dispite being fit never smoking and eating healthily, he was just 49. In hospital they nearly cost him his life by diagnosing pulmonary embolism and treating him with Heparin. It was 5 days before someone decided to do a ct scan. Within hours he was transferred to a specialist hospital and endured almost 14 hours of… Continue
Added by Judy Naden on December 26, 2009 at 13:17 —
Hi Everyone. I am here to met up with people that have also had this life changing condition!.
I had my dissection also on year ago, 23 Decemebr 2008 at 2am to be exact. I am still trying to get over this. will fill you in further on my situation later as it is now late over here!. Watch this space
Added by Robin King on December 17, 2009 at 12:34 —
Hi everyone!Am getting this quick post up as I have noticed that "going back to work after an aortic dissection" has figured fairly prominently in a few searches on the Google analytics statistics for the site and it is of course - a VERY big deal. OK. Going back to work. I have so many mixed feelings and memories here. Frankly, in my case it took 3 months just to get my head around what had happened along with the physical… Continue
Added by Graeme on December 11, 2009 at 10:00 —
Just a quick blog (note) as I only just thought of this this morning and wanted to share it with new entrants to the "AD zipper club"! As part of the pain management that your body automatically puts in place during the first few months after the operation to handle the pain of the chest healing - it REALLY hurts to laugh, cough, (sneezing is out of the question!) and even breathe deeply. I found that one of the defence mechanisms against this pain that I had carried over some months after the… Continue
Added by Graeme on October 28, 2009 at 9:30 —