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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

January 2011 Blog Posts (14)

A few questions

David's recovery from the actual surgery is going well and he is now on an ordinary ward :-)  

One thing he has is really bad indigestion which is distressing him. They are giving him omneprazole and gaviscon but it isn't having any effect. Is this a common problem? No one else on the ward seems to have it.

 

He is feeling quite down atm due to the fact that its just like he has had another stroke although they say its the effects of the old one come back not a new one.…

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Added by David Vaughan on January 31, 2011 at 8:45 — 6 Comments

He is awake :-)

Thank you so much for your posts I don't think anyone else  really realises what a big deal this is. They replaced the whole of the aortic arch and the valve in the end although when he went in they had said they would leave the valve. We haven't spoken to Mr Bryan yet so don't know why. I am pleased they did it as hopefully everything will work ok now. The aorta was 10cm !

 

Much to our amazement they started to wake him up yesterday morning, by lunch time he was responding to…

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Added by David Vaughan on January 29, 2011 at 10:57 — 3 Comments

Update from Davids family

So David has finally had the surgery and after 8 1/2 of the longest hours in my life has made it back to CICU :-)  Thats the good news, the bad news is we still have to wait until they wake him up to see if he is ok. They are not sure when they will attempt this it may be tomorrow or it may not.

 

One of the surgeons came and spoke to us and said " this as big as it gets in terms of surgery" tbh i wish he hadn't said that. To us he looks like death barely warmed up, to them he…

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Added by David Vaughan on January 27, 2011 at 23:59 — 4 Comments

Final Countdown!

17 hours to go and counting!  I'm first on the list at 8:00am tomorrow.

They got some good images from my echo this morning so I hope they will be useful.

My aortic valve does leak a bit but I hope they will be able to repair it.  Not sure I like the idea of a ticking valve like yours, Graeme but I guess it's a lot better than nothing at all!

I don't really know a lot more, about what they are going to do, than I was told after I was first admitted.  I believe the tear…

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Added by David Vaughan on January 26, 2011 at 15:13 — 4 Comments

My angiogram

Cheryl and Kimberlee - thanks for the heads-up. It's good to be pre-warned about these things then you can be better prepared. Hadn't thought about the car issue but I think I should be OK. Fortunately I drive a Land Rover Discovery so I think that fits the bill. My wife's BMW will be a definite no no!

Well, I got through my angiogram with good results. My coronary arteries appear to be in good shape. Shame the same thing can't be said about my aorta. It's massive!

Because it…

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Added by David Vaughan on January 25, 2011 at 21:58 — 2 Comments

Thanks for your support

Thanks to you for your comments and support.  Its good to know you are out there.   I still feel quite detatched from all this but it's going to hit me soon.  My wife and family are the ones suffering most right now.  This is the second time in two years that they have had to watch me go through a major life threatening event.  First my stroke. now this.  They are the ones who most need support at times like this.

My angiogram is scheduled for early afternoon and hopefully that will…

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Added by David Vaughan on January 25, 2011 at 9:02 — 6 Comments

The begining ....



I am currently (24 January 2011) suffering from Chronic Type A Aortic Dissection.

I have been suffering from breathlessness for some weeks and was eventually persuaded by my wife to visit our GP. He thought my problems could be caused by anaemia and arranged for some blood tests. He also arranged for a chest X-ray. The results showed no abnormalities.…

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Added by David Vaughan on January 24, 2011 at 14:52 — 5 Comments

Can somebody help me.

Since i had my surgery on 28.08.10. I keep losing the feeling in my right arm. It lasts less than a minute. Does anybody else have this happen or know why its happening. Thank you.

Added by Carol Pont on January 23, 2011 at 13:30 — 15 Comments

Look what I found...

so, i was doing a bit (well, actually i have been putting it off for quite a while so it turned out to be quite a lot) of filing and stumbled upon my first ever cat scan pictures 6 months post-op. unfortunately, i either gave my doctor or the consultant i went to see in the uk the CD with the pictures on, but i will take the paper copies to work tomorrow and scan them in (i can only do A4 at home and these are A3). what i find interesting to see are the mechanical valve, dacron conduit and…

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Added by Richard Deal on January 16, 2011 at 22:11 — 4 Comments

Just a thought.

After joining this site and reading and posting here for I do believe well over a year now, I've noticed so many people state how much trouble they had finding support after their ADs. The support that is so very needed. Being able to calm your fears by talking with others that truly understand, the ability to ask "Hey is this normal" or "How do you..." Most of all knowing your not alone. But thanks to one man we have that place! A place where we can share our stories, a place we can vent our… Continue

Added by Kimberlee Jones on January 15, 2011 at 13:26 — 2 Comments

Loeys-dietz Syndrome anyone??

It was 8pm on 7th June 2006 and in preparation for doing a charity walk at the weekend, I decided to go on a bike ride to prepare the legs a bit (I like cycling to keep fit). 8 or 9 miles in to a 20 mile ride and I felt this incredible pain in what I thought was my lower throat. I pulled up on a…

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Added by Paul Finley on January 13, 2011 at 19:11 — 11 Comments

My not-so-short "long story short"

There is no such thing as a long story short when it comes to an aortic dissection is there?

Just before Thanksgiving 2004, I couldn't seem to shake a cough that mainly felt like pressure in my chest.  Being a preschool teacher, I was not a stranger to bronchitis and pneumonia.  After talking with my sister, she convinced me to go to urgent care where they did a chest xray just to make sure it wasn't pneumonia.  I left with a prescription and what he thought "most likely" was a…

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Added by Cheryl Kerber on January 11, 2011 at 19:19 — 8 Comments

The new beginning

Just want to wish you all a very Happy New year. Let's hope it keeps us safe xxx

Added by Alison Roberts-Pagent on January 4, 2011 at 19:01 — 2 Comments

My presentation

    The  very fact  that I survived is  10 times  more  unlikely  when  one  considers,   a) I  am single  and  lived with my  now  deceased  dog. (I  had  to reconize something  &  call ..  she was a great dog, But..     and  b) My  Ascending Aortic Aneurysm was  not  pre  diagnosed.   I  was  a  51  year  old  Career Firefighter with 20 years (with 5 left to go minumum)    Generally  speaking in good  health and though I'd  had gallbladder ectomy a couple years  prior and had made some…

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Added by Jim Sanquedolce on January 1, 2011 at 19:30 — 2 Comments

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