Aortic dissection & aortic aneurysm information support group
Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection
mandy b
Added by mandy bungay on May 3, 2013 at 7:00 — 9 Comments
My story. And a question.
Hello everyone on this useful website. I'm writing about my experience with an aortic dissection as a non-native English speaker. Please forgive my many mistakes.
Living in Switzerland I had my AD, type A, one and a half years ago at age 50. I was misdiagnosed in a hospital of a major Swiss city and continued living five more days (even went jogging on day four) before a guardian angel…
ContinueAdded by Meier on April 29, 2013 at 17:28 — 3 Comments
Living with AAA
How does everyone live with an AAA?
Added by Gretchen Doss on March 12, 2013 at 15:31 — 14 Comments
"A little bit of sinusitis!"
Firstly it is good to find this site and share experiences, as the main feeling I have had since 'that day' is one of feeling alone, and not a little scared! My cardiac surgical team at Southampton General were brilliant, but although they have unprecedented skills and experience working with AD, they have not, to the best of my knowledge, experienced AD at first hand, and nor would I wish it on them!
Time for my story. Are you sitting comfortably? Then, I'll begin! (Anyone remember…
ContinueAdded by John Greenstreet on February 23, 2013 at 17:30 — 10 Comments
I'm over the why me....
I've done a lot of thinking these days, about what it is that still upsets about my AD. I've long since past the feeling sorry for myself, the why me, again?(I have had a few prior surgeries, not heart related) What lingers on and on and frustrates me still is that I can't go one day without something causing me to think about my AD and my current aneurysm. Either my heart does it's little extra beat thing, or I get a pain when I sneeze or just for no reason in my chest bone area, etc.…
ContinueAdded by Kimberlee Jones on February 8, 2013 at 1:33 — 4 Comments
Back to training
At last I have a medication that works. Yesterday I was out for a 14 km run (in slow pace). Today I was out again for 16 km (slower pace than yesterday). It makes me feel good. I have extra attention to my average pulse. I don't want it to go above 150. Now I will have some rest from training and to recover. That's important too.
Added by Stefan Manning on February 3, 2013 at 19:29 — 1 Comment
Away for a while.
Hmmm... It was a while ago since I was here. I'm sorry for that. There has been both up's and down's during this time. But it's going in right direction. Since my 6 hours race in november I had a lot of problem with my kne. I finnaly got the diagnosis atrosis. It means it will work to run but hurt sometimes. I have a wonderful doctor. She helped me to adjust my medicines and now I got the correct mix which will work for my training. I have started up my running again (but it's not any fast…
ContinueAdded by Stefan Manning on January 29, 2013 at 20:30 — 3 Comments
Scary flashbacks
Today I got the word that a working collegue to me passed away in stroke. She was heading home and and got the stroke when was on the way to get in to the car. Other collegues found her on the parking besides her car. She was transported to the emergency - in the same place there I was fighting for my life 6 months earlier. Another collegue was there to visit her. And today when she told me about it I found out that she has been taken to the same room there I was laying for 8 days.
I…
ContinueAdded by Stefan Manning on November 12, 2012 at 20:48 — 3 Comments
DNF
I home from my 6 hours run. It didn't went well. I was forced to give up after a littele more than 3 hours and 21,5 km. It was nothing regarding to my Ad and something like that. This time it was pain in my right knee that made it impossible to continue. Of course I'm very dissapointed but this status will not last any long. Next time I will get my revenge.
Tomorrow it's exactly 6 months since my AD, so running 21,5 km must be OK.
But we AD-people know how to fight and we…
ContinueAdded by Stefan Manning on November 10, 2012 at 20:00 — 3 Comments
Tomorrow is the day
Tomorrow I will start in a 6 hours footrace around a small lake in the city of Boras in Sweden. I hope to reach the marathon distance and I admit that I'm a little bit nervous, but just a little bit. I will think you all. Tomorrow I will tell you how it went...
Have a nice weekend all of you :-)
Added by Stefan Manning on November 9, 2012 at 19:50 — 3 Comments
25 hours spinning with an AD
Hi,
I’m back to report from my latest event. The weekend 27-28 of October this year (2012) I participated in an event called Rosa Dygnet – free translation: the Pink day. This is an event to raise money for the Swedish breast cancer research (Pink Ribbon – Sweden) and it’s annual. The main event there is a 25 hour spinning, containing 25 different one hour contiguous spinning classes. I have participated in this event since the start, six years ago and it’s very important for me to do…
ContinueAdded by Stefan Manning on November 4, 2012 at 17:38 — 5 Comments
Gulp!!!!!
Added by Bernie Bertrand on October 24, 2012 at 10:01 — 3 Comments
My story and my dreams
Hi,
I will warn you for two things. First I can’t be brief so this will be a long story. Second. My English is not perfect, especially the medical terms, but I’m learning, so I apologize if my English is poor sometimes. However I think you will understand me anyway (I took help of Google translation sometimes). Now to the story.
My name is Stefan Manning and I'm a dedicated ultra-runner born 1956. I'm living in a small town called Partille about 10 km east from Gothenburg in…
ContinueAdded by Stefan Manning on October 8, 2012 at 16:57 — 5 Comments
Hello again
Added by Bernie Bertrand on October 6, 2012 at 13:48 — 1 Comment
Yet another question?¿
Added by Bernie Bertrand on October 2, 2012 at 7:31 — 3 Comments
Words can't describe
Thank you so much Graeme, it means so much for you to allow me to continue. Everyone who has responded to what I have written up until now. All of you are so caring.
Added by Bernie Bertrand on September 30, 2012 at 7:30 — No Comments
Hi again
Added by Bernie Bertrand on September 29, 2012 at 12:38 — 4 Comments
For anyone wondering I'm only 35. I was operated on September 15 2010. I wasn't like this before my operation. I'm simply not the same person what so ever. I continue to try and become the old me but…
Added by Bernie Bertrand on September 28, 2012 at 1:59 — 3 Comments
I need help
Added by Bernie Bertrand on September 27, 2012 at 8:34 — 3 Comments
Miracle Lady Part 2
We had moved into our beautiful five bedroom, three bath home on a golf course on March 29th, my husbands 56th birthday. I had turned sixty on March 19th and was due to fly to Washington and then to California in mid June to visit family. This was a busy spring and I was really frustrated to find myself being rushed to the emergency room. I didn't have time to be sick. I was convinced I would be told it was my old back injury acting up and I would be sent home with pain pills and told to…
ContinueAdded by Deborah Levering on September 22, 2012 at 22:22 — 4 Comments
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