Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

All Blog Posts (233)

6.5 Years On...

I just wanted to share my latest update.  This week, 6.5 years on from my surgery and at the age of 63, I had my latest consultation with my cardiologist here in Berlin (and an ultrasound).  The good news change.  Yes, there are minor heart valve problems, but nothing new and no worsening of anything (and as far as I can tell, I'm symptom free).  She doesn't want to see me for another two years.

I asked point-blank about life expectancy; her response was that, assuming…


Added by Tim Manning on December 22, 2017 at 11:58 — 2 Comments

Essential Kitchen Equipment Checklist

If you are in the phase of learning how to cook or really want to improve the overall look of your kitchen by putting all the required equipment and utensils, then this article can help them. Here we are going to discuss which utensils are important and should be there in your…


Added by Emma Miah on December 22, 2017 at 6:57 — No Comments

6 Proven Tips to Live an Ideal Healthy Life

More than 60% of the adult around the world are consider being overweight. Being overweight does not only temper your physical appearance but also cause heart diseases, diabetes, cancer and joint problems. So, it’s time to pay attention to you before it gets too late.…


Added by Emma Miah on November 16, 2017 at 6:58 — No Comments

Positive Aspects of Drinking Wine and Beer

Plan to be stunned and calmed. You're going to figure out how your wine and beer drinking custom can be an intense wellbeing solution. Look at the accompanying event of wine and beer that go route past heart constitution.



Added by Emma Miah on September 29, 2017 at 5:55 — No Comments

Home Remedies to Relief all Kinds of Allergies

It's that time once more.  Allergy season is upon us, and a huge number of Americans will swing to Benadryl, Claritin and other unsafe chemicals to get help.

Fortunately common hyper allergy alleviation cures, for example, frankincense, eucalyptus, and quercetin can viably free you of your allergy manifestations. Here are eight astonishing, every single characteristic cure that can give you speedy allergy help.



Added by Emma Miah on September 5, 2017 at 7:51 — No Comments

Healthy Habits that will Lower the Risk of Heart Disease

There are different types of heart diseases and each has its symptoms and warning signs. It is important to take proper care of the heart so you can lower the risk of heart diseases. The heart is a muscle and you should treat it like one. Exercising is an excellent way of…


Added by Emma Miah on August 4, 2017 at 10:41 — No Comments

5 months on from an AD Type B

Good to have found this site.  I have always been a supporter of support groups, and have been connected to a few others over the years.  

I am 66, living in northern England.  A regular runner over many decades, I did the London marathon last April and wonder whether the exertion of doing this at my age is connected to the dissection ?  Any opinions on this ?  I have mentioned this to doctors, but got  completely no-committal replies.   Either way I won't be running…


Added by Alastair Sharp on January 21, 2017 at 12:31 — 5 Comments

Long Long Time

Greetings again after so many years. It's been 7+ years since my aortic dissection August 30, 2009. I had an abscessed tooth in the Spring of 2013 which infected my spine and heart valve. After several months of treatment including 5 weeks in hospital (again), I partially recovered. It may have been Faulkner who said that when we're struck with adversity we have two choices: throw in the towel or use it to wipe off the sweat. I'll always take the last choice. Wishing y'all my fond regards…


Added by Deryck Muehlhauser on October 13, 2016 at 14:05 — 1 Comment

My Story

As a fit healthy 65 years old enjoying my recent retirement I was a very happy bunny!

On July 10th after driving my friends to the next town for a garden club meeting I was sitting happily listening to a talk, when a pain across my back forced me to leave the room!

I never told anyone and as I visited the loo often! no one took any notice.…


Added by Carol Buckley on October 1, 2016 at 6:29 — 4 Comments

Sorry I haven't been around much.

I recently had a total of 2 surgeries with traction in between to straighten my cervical spine(neck) so I have been and still am in recovery. I don't spend much time online. Once I am back to health, I will continue to be busy finally starting my new life over and looking to move out of my parents house.(which was delayed because we felt it best I was here for recoverying for this surgery) I haven't forgotten everyone and I will still be around.



Added by Kimberlee Jones on October 1, 2016 at 1:38 — 3 Comments


Two weeks ago I was diagnosed with a 4.7 cm ascending aortic aneurysm and a 1.5 cm SMA dissection so this world is all very new to me. I'm grateful to have found this group.  My primary care physician (PCP) has referred me to the chief of cardio thoracic surgery at a Boston hospital.  I have not met him yet, but based on my CT scans he told my PCP that mine is not a case for surgery and that he would follow me.  He in turn referred me to a cardiovascular surgeon for my dissection. Based on…


Added by Ann Sullivan on August 15, 2016 at 15:28 — 3 Comments

Six years and counting.

Yes it's 6 years since I suffered an acute aortic dissection. I'm still here and going strong. Recovery has been slow but steady and apart from the occasional dizzy spell, I'm doing fine. I go for long walks every day and ride my motorbike whenever the weather is good enough. In a couple of months I'll be 70! My son asked me what I wanted and I said, "another 10 years". Here's hoping.

Added by Gregory Smith on June 4, 2016 at 15:08 — 5 Comments

My Story - Troy De Smet

I venture to guess that my story is not atypical from others who have experienced this traumatic event.  

On October 12, 2012 while watching a Football game I experienced what at first felt like a painful case of acid indigestion.  My chest was burning and after a minute or two I began to grow very concerned that something was seriously wrong.  Please understand, I am a man who does not typically enjoy Emergency Rooms or others making a big deal of my health, so making the…


Added by Troy DeSmet on April 28, 2016 at 18:18 — 7 Comments

Warfarin by the kilo :-)

OK - hows this for a statistic! Since my Aortic Dissection and replacement of my aortic Valve 13 YEARS AGO last week - I have chewed my way through 1/3 of a kilo of warfrain..and 2 kilos of Atenolol..scary!  13 Down - 17 to go! :-) 

Added by Graeme on April 28, 2016 at 17:28 — 1 Comment


  Three months ago I had never heard the words “aortic dissection”.  Then, after it happened to me, I did a bit of research on the internet but all I could find were medical articles describing the symptoms, diagnosis and treatment of dissections, nothing which was written from the point of view of people who had suffered from this horrible illness.   So I was really pleased to find this site and to read the stories of those who have experienced and survived AD.  This is my story –…


Added by Julie Lever on February 25, 2016 at 13:51 — 16 Comments

4.5 years on...

It's been a long time since I last posted, and happily, the news is good.

When I first came out of hospital after unexpected emergency surgery, I found it impossible in the first months to imagine that I would ever feel really well again. But I do, really well. Four and a half years on from that surgery, I've just had another round of check-ups for everything, not just the aortic dissection and happily, I'm told that - taking into account the fact that I'm chronically…


Added by Tim Manning on December 12, 2015 at 15:00 — 1 Comment

post surgery blues

Well I'm home after a hemi arch repair and single artery bypass graft.  Bit of a roller coaster, off my head hallucinating for a couple of days followed by listening to two docs discussing me at the end of the bed to glean that I bled post op, needed massive transfusions of blood and frozen plasma and apparent had a cardiac arrest to boot!  I look forward to a debrief with my surgeon at my post op appt.

Developed AF after a week (apparently common) but unfortunately developed a severe…


Added by norma bell on December 9, 2015 at 14:07 — 1 Comment


hey all,

just an update for you all on my condition as I haven't been on here in a while.

at the beginning of August I had a nosebleed that wouldn't stop. I went to an ENT doctor who packed my nose and was sent home to recover. The nosebleed didn't stop, so I was admitted to my local hospital while they tried to ascertain the cause and stop the bleeding. The cause was my INR which despite being a week in hospital without taking any Marcumar was still reading over 7.0…


Added by Richard Deal on November 30, 2015 at 10:24 — 4 Comments

surgery 18th November 2015

Hi Guys I'm just off to Wythenshawe Hospital to book in for surgery on my aneurysm.  As I'm already on warfarin I have to go in 3 days early to come off warfarin and go on the shorter acting heparin.

The procedure will either be a dacron graft to the ascending aorta or if it may be more extensive needing a new valve and root, apparently they dont know until they get in there. 

Fingers crossed I'll be home in 2 weeks and on the mend.  Hope you're all keeping well. xxx

Added by norma bell on November 14, 2015 at 11:20 — 1 Comment

Miles from story.

On May 2nd this year (2015), I started to feel ill during the day... Thought I had a migraine and so went to sleep for a couple of hours. I was away for a weekend, on my own for the first time since my husband of 25 years had left me. My 4 kids (ages 16 to 24) were all away doing various things for the bank holiday weekend. So I was taking the opportunity to be 'brave' and do something for myself for once!

As the late afternoon and evening came, I felt more and more unwell, with a degree… Continue

Added by Anne Cotton on October 20, 2015 at 21:01 — 11 Comments

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