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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

norma bell
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waiting for surgery - what about flying?
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I'm on the waiting list now for a hemi-arch repair which may or may not include a new root and valve. Good news is that the dopplar scans on my carotid arteries were good and my angiogram showed no…Continue

Started this discussion. Last reply by norma bell Apr 27, 2015.

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norma bell posted a blog post

post surgery blues

Well I'm home after a hemi arch repair and single artery bypass graft.  Bit of a roller coaster, off my head hallucinating for a couple of days followed by listening to two docs discussing me at the end of the bed to glean that I bled post op, needed massive transfusions of blood and frozen plasma and apparent had a cardiac arrest to boot!  I look forward to a debrief with my surgeon at my post op appt.Developed AF after a week (apparently common) but unfortunately developed a severe allergic…See More
Dec 9, 2015
norma bell posted a blog post

surgery 18th November 2015

Hi Guys I'm just off to Wythenshawe Hospital to book in for surgery on my aneurysm.  As I'm already on warfarin I have to go in 3 days early to come off warfarin and go on the shorter acting heparin.The procedure will either be a dacron graft to the ascending aorta or if it may be more extensive needing a new valve and root, apparently they dont know until they get in there. Fingers crossed I'll be home in 2 weeks and on the mend.  Hope you're all keeping well. xxxSee More
Nov 14, 2015
norma bell posted a discussion

waiting for surgery - what about flying?

I'm on the waiting list now for a hemi-arch repair which may or may not include a new root and valve. Good news is that the dopplar scans on my carotid arteries were good and my angiogram showed no blocked arteries - well except the 60% occlusion to one artery that was bypassed 5 yrs ago when I had my bi-leaflet aortic valve replaced, apparently the blood continued to flow thru the narrowed artery and the bypass is now described as "vestigial".  Dont know whether the surgeon will do a second…See More
Apr 27, 2015
norma bell posted a blog post

worst valentines day ever!

Had a bit of a scare.  Couldnt get to sleep and around 2am realised my heart was really fast and really irregular, stupidly I lay there for about 2 hrs willing it to settle down.  Eventually got up made a cup of tea and by 4am it had settled.Hubby knew nothing about this (sound sleeper to say the least). Anyway I decided to call in at the walk in clinic in the village, the nurse advised us to go straight to A&E so we drove to Wythenshawe where they've got all my scans.  I was very impressed…See More
Feb 15, 2015
norma bell posted a blog post

update - surgery soon

Well definitely no sugar coating.  I need a graft in the ascending aorta and the first part of the arch, it can be done in one procedure but the valve will have to come out and a new one put in. Estimated 10% mortality rate, 5% stroke risk + 2% infection risk + risk of post op bleeding and return to theatre. This information swiftly followed by what to do in the event of a searing pain in my back! I think the worse news was that it can happen again further along the aorta, dear God I cant do…See More
Jan 12, 2015
norma bell posted a blog post

hallo & happy new year

I had a mechanical AVR 5 yrs ago and have just been told that I have an aneurysm that requires surgery. I have an appointment on 9th Jan with a surgeon at Wythenshawe hospital. It was originally spotted on an echo at my FU appt and I've now had a CT scan which has been converted into a 3D image in order to decide on the best option.  I'm reading your stories and thinking how courageous you all are. I know that I'm lucky that this has been found and it'll be an elective procedure rather than…See More
Dec 31, 2014
Gregory Smith left a comment for norma bell
"Hi Norma. Welcome to our little group of survivors. You'll find we are a friendly bunch here so don't be afraid to ask any questions."
Dec 31, 2014
Kimberlee Jones left a comment for norma bell
"Welcome Norma! Life has gotten a little crazy for you, so I am glad you found us! Please share your story with everyone, start a blog, vent, ask questions or join in any ongoing discussion.  Glad you found us. Kimberlee(Admin)"
Dec 27, 2014
norma bell is now a member of Aortic dissection & aortic aneurysm information support group
Dec 27, 2014

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Norma bell's Blog

post surgery blues

Well I'm home after a hemi arch repair and single artery bypass graft.  Bit of a roller coaster, off my head hallucinating for a couple of days followed by listening to two docs discussing me at the end of the bed to glean that I bled post op, needed massive transfusions of blood and frozen plasma and apparent had a cardiac arrest to boot!  I look forward to a debrief with my surgeon at my post op appt.

Developed AF after a week (apparently common) but unfortunately developed a severe…

Continue

Posted on December 9, 2015 at 14:07 — 1 Comment

surgery 18th November 2015

Hi Guys I'm just off to Wythenshawe Hospital to book in for surgery on my aneurysm.  As I'm already on warfarin I have to go in 3 days early to come off warfarin and go on the shorter acting heparin.

The procedure will either be a dacron graft to the ascending aorta or if it may be more extensive needing a new valve and root, apparently they dont know until they get in there. 

Fingers crossed I'll be home in 2 weeks and on the mend.  Hope you're all keeping well. xxx

Posted on November 14, 2015 at 11:20 — 1 Comment

worst valentines day ever!

Had a bit of a scare.  Couldnt get to sleep and around 2am realised my heart was really fast and really irregular, stupidly I lay there for about 2 hrs willing it to settle down.  Eventually got up made a cup of tea and by 4am it had settled.

Hubby knew nothing about this (sound sleeper to say the least). Anyway I decided to call in at the walk in clinic in the village, the nurse advised us to go straight to A&E so we drove to Wythenshawe where they've got all my scans.  I was…

Continue

Posted on February 15, 2015 at 19:30 — 4 Comments

update - surgery soon

Well definitely no sugar coating.  I need a graft in the ascending aorta and the first part of the arch, it can be done in one procedure but the valve will have to come out and a new one put in. Estimated 10% mortality rate, 5% stroke risk + 2% infection risk + risk of post op bleeding and return to theatre. This information swiftly followed by what to do in the event of a searing pain in my back! I think the worse news was that it can happen again further along the aorta, dear God I cant do…

Continue

Posted on January 12, 2015 at 19:56 — 3 Comments

Comment Wall (2 comments)

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Join Aortic dissection & aortic aneurysm information support group

At 10:58 on December 31, 2014, Gregory Smith said…

Hi Norma. Welcome to our little group of survivors. You'll find we are a friendly bunch here so don't be afraid to ask any questions.

At 13:27 on December 27, 2014, Kimberlee Jones said…

Welcome Norma! Life has gotten a little crazy for you, so I am glad you found us! Please share your story with everyone, start a blog, vent, ask questions or join in any ongoing discussion.  Glad you found us.

Kimberlee(Admin)

 
 
 

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