Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Richard Deal 35, Male Karlsruhe Germany: Share on Facebook

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wow!
3 Replies

if ever you feel down, read this to be awestruck and realise that life just ain't that bad after all...i may send the guy a message and…Continue

Started this discussion. Last reply by Graeme Jan 17, 2011.

Hypertension

interesting article about combination blood pressure medication that may be of interest:High blood pressure combination pill…Continue

Started Jan 13, 2011

Joke to brighten your day...
1 Reply

WARNING: Do not read if you are still tender in the chest. You may laugh uncontrollably... An Italian, a Scotsman and a Chinese man, are hired at a Construction site.The foreman points out a huge…Continue

Tags: joke

Started this discussion. Last reply by Graeme Jun 10, 2010.

Scar Treatment
6 Replies

I have always been a little concerned about my sternotomy scar. In my case, not because it attracts attention as it is normally not visible, even with an open shirt, but because it is is raised in…Continue

Tags: dermatix, bio-oil, scar-reduction, treatment, zipper

Started this discussion. Last reply by Paul Finley Jul 3, 2010.

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Latest Activity

Catherine Withrow left a comment for Richard Deal

"Thanks Richard for the welcome. I've browsed the site a bit and see that everyone is a wealth of information. I am coming up on my one year surgery anniversary next month. I had endovascular repair of descending aortic…"

Aug 20, 2012

Amber Dulyanai left a comment for Richard Deal

"Hi Richard Thank you vary much for your welcome. I'm new at this stuff. The computer I mean. I only have my I phone to play with:) Not sure how to move around yet. I do look forward to chatting with people who know. Thanks again, so much! Amber…"

Jul 22, 2012

Samantha Jane Norman left a comment for Richard Deal

"Hi Richard, Thanks very much for your warm welcome. I have to admit I have never used a blog or such a site before and so it may take me a while to get properly involved! My story is at the age of 42 they discovered a type A…"

May 14, 2012

Dawn Gilling left a comment for Richard Deal

"Hi Richard, I had a chronic type B aortic dissection in March 1999. It was misdiagnosed and was not operated on until a year later in April 2000. My surgery took 13 hours and I had my aorta repaired with a Dacron graft from my left…"

Mar 8, 2012

Tom Whittaker left a comment for Richard Deal

"Hi Richard! Many Thanks for the kind welcome. I look forward to getting myself situated and familiar with the site and becoming a regular contributor. I'm very pleased to see AD is an active site, not somewhere that was created and then fizzled…"

Dec 19, 2011

There are 231 members on Aortic dissection & aortic aneurysm information support group

Dec 19, 2011

Sandra A. Ravis left a comment for Richard Deal

"Thank you Richard. I think my situation was very rare. I was told that there have only been 187 cases of Celiac Artery Aneurysm in all of medical history. I was wondering if anyone out there has lost this artery and spleen?…"

Dec 4, 2011

Sharon Masterman left a comment for Richard Deal

"Thanks for your reply. Just preparing to go to the Hospital; wondering what awaits us today.xx"

Aug 21, 2011

Julia Holley left a comment for Richard Deal

"Hi Everyone, so glad to have found you and will post blog with my story. I have felt really alone with this as I live and was treated in Spain. Thanks for just being there. Julia"

Jul 9, 2011

Richard Deal commented on Gary Davis's blog post Sunday 26th September 2010, a lot changed that day.

"blimey! what a great read! another amazing story where lady luck played her cameo role once more... i related to the swabs bit, as the only nurse i was convinced wasn't trying to kill me in intensive care was the one swabbing my lips whenever…"

Jun 21, 2011

Richard Deal replied to Graeme's discussion Risk Factor Identified For Acute Aortic Dissections

"i guess it could have been worse for us then, we could all have been hyperactive schizophrenics! imagine the forums and blogs then... good to have you back! r"

Jun 20, 2011

Richard Deal commented on Terry Holt's blog post A close encounter

"hey there terry, this sounds exactly like my story, only without the wait between presentation and correct diagnosis. provided you take your medication religiously there is no need to feel like a ticking time-bomb - in essence though, you are! the…"

Jun 16, 2011

Richard Deal replied to vickie mckasson's discussion Husband had triple A's would like info of complications and hospital stay

"hey there vickie, are you sure the doctors were talking about palliative care, and not convalescent care? palliative care is where they stop treating your illness and try and make 'the end' comfortable - convalescent care is basically…"

Jun 16, 2011

Richard Deal left a comment for Dale Santos

"hey dale, welcome to the group! in the blog section you can find other members stories, maybe you can post yours there too. there are also probably a few interesting discussions in the forums for you - take a look, and don't be afraid to post…"

Jun 16, 2011

Terry Holt left a comment for Richard Deal

"Thanks for the welcome Richard...Its great to be able to share, I will tell more of my story to the group. It feels a bit strange opening up to others but I will get there...again thanks. All the best Terry."

Jun 16, 2011

Richard Deal left a comment for Terry Holt

"Hi Terry, welcome to the group! make yourself at home - post a little bit more about yourself in a blog for other members to get to know you. take a look in the forums at some of the ongoing discussion which may be of interest to you - don't be…"

Jun 15, 2011

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Which Country do you live in?: Karlsruhe, Germany

Richard Deal's Blog

eventful week

aye aye,

at the weekend i was intermittently tachycardic and my resting pulse has been around the 100 mark since then. i went to see my doctor on monday and he took some blood and sent it off for analysis. the results came back today and showed positive for some sort of infection (elevated CRP values - mine was 9.5 mg/l and normally it should be under 5). tomorrow morning i am at the cardiologist in order to rule out a bacterial infection on the heart valve.

i'll keep you all…

Continue

Posted on March 8, 2011 at 21:40 — 6 Comments

Look what I found...

so, i was doing a bit (well, actually i have been putting it off for quite a while so it turned out to be quite a lot) of filing and stumbled upon my first ever cat scan pictures 6 months post-op. unfortunately, i either gave my doctor or the consultant i went to see in the uk the CD with the pictures on, but i will take the paper copies to work tomorrow and scan them in (i can only do A4 at home and these are A3). what i find interesting to see are the mechanical valve, dacron conduit and…

Continue

Posted on January 16, 2011 at 22:11 — 4 Comments

30.05.2010 - readings

BP: 124/71

INR: 2,5

Weight: 95,2 kgs

thankfully the systolic looks like it might be dropping... started intake of fruit daily from 26th. back to x-training 4 x 45 mins.

Posted on May 30, 2010 at 0:30 — 2 Comments

23.05.2010 - readings

BP: 135/72

INR: 2,4

Weight: ? (age...)

Posted on May 23, 2010 at 0:30

Comment Wall (19 comments)

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At 14:24 on August 20, 2012, Catherine Withrow said…: Thanks Richard for the welcome. I've browsed the site a bit and see that everyone is a wealth of information. I am coming up on my one year surgery anniversary next month. I had endovascular repair of descending aortic aneurysm and aortic dissection. My condition was accidentally discovered when I had a minor cardiac surgery for an electrical problem. I actually experienced the aortic tear three months prior to my surgery but managed to function very well. Am experiencing a very slow recovery and that prompted my visit to this site. Hoping to learn from everyone.

c

At 15:12 on July 22, 2012, Amber Dulyanai said…: Hi Richard
Thank you vary much for your welcome. I'm new at this stuff. The computer I mean. I only have my I phone to play with:) Not sure how to move around yet. I do look forward to chatting with people who know. Thanks again, so much!
Amber Dulyanai

At 9:14 on May 14, 2012, Samantha Jane Norman said…: Hi Richard,

Thanks very much for your warm welcome. I have to admit I have never used a blog or such a site before and so it may take me a while to get properly involved! My story is at the age of 42 they discovered a type A dissection the entire length of my aorta, and three anuerisms, 9cm at the arch then 6cms and a 4.9cms infra renal one. Long story as my first surgery had complications, I still have the infra renal one being monitored. At some point I will posy my full tale. In the meantime thanks again for your welcome, I am looking forward to being involved with people who can really understand!

Sam

At 12:53 on March 8, 2012, Dawn Gilling said…: Hi Richard,

I had a chronic type B aortic dissection in March 1999. It was misdiagnosed and was not operated on until a year later in April 2000. My surgery took 13 hours and I had my aorta repaired with a Dacron graft from my left subclavian artery down to my aortic bifurcation. Prof Bonser from Queen Elizabeth Hospital carried out the surgery. It is now 12 years later and the last part of my aorta that was left has dilated and I am waiting for my aortic root to be repaired any day now. Sorry but I haven't had time to find my way round this site yet but hope to add some more detail soon. Regards

Dawn

At 18:19 on December 19, 2011, Tom Whittaker said…: Hi Richard!

Many Thanks for the kind welcome. I look forward to getting myself situated and familiar with the site and becoming a regular contributor. I'm very pleased to see AD is an active site, not somewhere that was created and then fizzled out due to loss of interest. I'll get working on posting my experience to my blog and perhaps someone might get something from it.

Best Regards,

Tom

At 21:47 on December 4, 2011, Sandra A. Ravis said…: Thank you Richard. I think my situation was very rare. I was told that there have only been 187 cases of Celiac Artery Aneurysm in all of medical history. I was wondering if anyone out there has lost this artery and spleen? Does anyone have terrible digestive problems after surgery? What is the recovery time for the average AAA surgery? I am already 5 months into recovery and still having digestive problems and my stamina is not what it used to be. What are other people experiencing?

At 8:26 on August 21, 2011, Sharon Masterman said…: Thanks for your reply. Just preparing to go to the Hospital; wondering what awaits us today.xx

At 12:26 on July 9, 2011, Julia Holley said…: Hi Everyone, so glad to have found you and will post blog with my story. I have felt really alone with this as I live and was treated in Spain. Thanks for just being there. Julia

At 8:19 on June 16, 2011, Terry Holt said…: Thanks for the welcome Richard...Its great to be able to share, I will tell more of my story to the group. It feels a bit strange opening up to others but I will get there...again thanks.

All the best Terry.