Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Kimberlee Jones
  • Female
  • Toledo, OH
  • United States
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Kimberlee Jones's Discussions

John Ritters wife discuss AD
3 Replies

http://www.thedoctorstv.com/videolib/init/1548Continue

Started this discussion. Last reply by jan nunn Apr 18, 2013.

Need Opinion
3 Replies

For those who don't know I was 34 weeks pregnant when I dissected. In fact over half of the AD cases in women are pregnancy related, usually in 3rd trimester or shortly after birth. 2 percent of…Continue

Started this discussion. Last reply by Graeme Feb 28, 2013.

GERD
1 Reply

I've noticed that there are a few of us ladies at another site, that all developed GERD after surgery/AD.  And not just a light case, the kind of GERD that feels like extreme chest pain, in fact I…Continue

Started this discussion. Last reply by Graeme Feb 28, 2013.

Still Here
8 Replies

I know I haven't been around for awhile, life got a little busy there for awhile. I am truly sorry if I caused anyone any worry.  So a little update. I moved to a new state and life is happy. I have…Continue

Started this discussion. Last reply by Kimberlee Jones Jan 2, 2013.

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Kimberlee Jones's Page

Latest Activity

Carol Buckley left a comment for Kimberlee Jones
"Hi Kimberly thank you for the warm welcome, hope you are feeling better! So pleased to find this group, but I have not paid a fee to join yet so not sure if I can post yet?"
Oct 1, 2016
Kimberlee Jones posted a blog post

Sorry I haven't been around much.

I recently had a total of 2 surgeries with traction in between to straighten my cervical spine(neck) so I have been and still am in recovery. I don't spend much time online. Once I am back to health, I will continue to be busy finally starting my new life over and looking to move out of my parents house.(which was delayed because we felt it best I was here for recoverying for this surgery) I haven't forgotten everyone and I will still be around.*hugs*KimberleeSee More
Oct 1, 2016
Ann Sullivan left a comment for Kimberlee Jones
"lol."
Aug 8, 2016
Ann Sullivan left a comment for Kimberlee Jones
"Hi  Kimberlee, Thanks very much for your kind welcome and your thoughtful response.  The information about your descending dissection was particularly helpful and reassuring.  Do they think your descending dissection was…"
Aug 8, 2016
Randy Croce left a comment for Kimberlee Jones
"Hi Kimberlee! Thank you for the warm welcome. Can you let me know how I go about posting my story?  Also, is my profile info viewable to everyone?  Just curious.  I'm looking forward to getting to know everyone and so happy to…"
Aug 1, 2016
Julie Lever left a comment for Kimberlee Jones
"Hello Kimberlee, thanks for your message.  It'll take me a little while to tell my story.  I've only been out of hospital for a month, having had two aortic dissections in six weeks.  I've just read Dermot's…"
Feb 7, 2016
Dermot left a comment for Kimberlee Jones
"Thanks Kimberlee, I will soon. Mine happened about 5 weeks ago in London so still recovering and getting over the sheer shock of it. From great health, non smoker, never in a hospital before to suddenly almost dead, it's still something…"
Dec 12, 2015
Anne Cotton left a comment for Kimberlee Jones
"Thank you for such a quick welcome. I have posted my story on the blog this evening...title 'miles from home..my story'. I am still recovering, but making good progress at last. I don't know anyone else, and my GP does not either, so…"
Oct 20, 2015
Richard Thorn left a comment for Kimberlee Jones
"Thanks Kimberlee for the welcome. I am just six weeks out from the surgery and am still finding my feet and trying to get answers to a pile of medical questions about my particular circumstances.  Already I am getting some sense of what I have…"
Sep 15, 2015
Kimberlee Jones posted a blog post

Just an update.

Well in 10days on the 15th it will be 9yrs since my AD. It is also my daughter's 9th birthday!  Time to celebrate!  I hope everyone has a wonderful holiday and a happy and healthy 2015.Now a little news, my dentist gave me some news.  The lump he removed from inside my cheek, while mostly damaged saliva gland cell(like he thought it was) it also contained cancer. So I will be visiting the specialist on Monday. Hoping the dentist got it all out when he removed it and that's the end. I will know…See More
Dec 5, 2014
Jude Carter left a comment for Kimberlee Jones
"You know if i could i would reach thru and give you a huge KIWI NZ hug, you and this group already have given me so much then today to get your message i wanted to cry happy tears.  Just to not feel alone.  I live in a little seaside town…"
Nov 26, 2014
Jude Carter left a comment for Kimberlee Jones
"Thank you so much for the welcome Kimberlee.  Just finding this site has brought me relief.  It seems that where i live there are no survivors of aortic dissection or that is what all the doctors and specialists say.  It is…"
Nov 25, 2014
Kimberlee Jones posted a blog post

Sorry I haven't been active.

Sorry I have been on here much lately. Life got a little nuts.  Moved to Ohio and bought a house(needs lots of work) So I've been pretty busy discovering my physical limitations..lol  About a half day of work generally equals 2 to 3 days of rest. No worries, I'm listening to what my body tells me and not pushing myself.  I will try to be an active member yet again, just remember I love my aortic family and you all are not forgotten! *hugs*KimberleeSee More
Jun 14, 2014
jarrod poole left a comment for Kimberlee Jones
"Hi kimberlee. I've never been on a site like this before so i'm a bit rusty with it. I hope it'll help. I've spoken to people I know who do not understand so now i'm going to talk to people I don't know who do.…"
Jan 24, 2014
J. Hughes left a comment for Kimberlee Jones
"I can see the immense support... Glad to know you're on your way back. "
Dec 7, 2013
J. Hughes left a comment for Kimberlee Jones
"Thanks! I wish I found this before... I see you just went through your own ordeal. I hope all is well now. "
Dec 5, 2013

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Kimberlee Jones's Blog

Sorry I haven't been around much.

I recently had a total of 2 surgeries with traction in between to straighten my cervical spine(neck) so I have been and still am in recovery. I don't spend much time online. Once I am back to health, I will continue to be busy finally starting my new life over and looking to move out of my parents house.(which was delayed because we felt it best I was here for recoverying for this surgery) I haven't forgotten everyone and I will still be around.

*hugs*

Kimberlee

Posted on October 1, 2016 at 1:38 — 3 Comments

Just an update.

Well in 10days on the 15th it will be 9yrs since my AD. It is also my daughter's 9th birthday!  Time to celebrate!  I hope everyone has a wonderful holiday and a happy and healthy 2015.

Now a little news, my dentist gave me some news.  The lump he removed from inside my cheek, while mostly damaged saliva gland cell(like he thought it was) it also contained cancer. So I will be visiting the specialist on Monday. Hoping the dentist got it all out when he removed it and that's…

Continue

Posted on December 5, 2014 at 17:45 — 3 Comments

Sorry I haven't been active.

Sorry I have been on here much lately. Life got a little nuts.  Moved to Ohio and bought a house(needs lots of work) So I've been pretty busy discovering my physical limitations..lol  About a half day of work generally equals 2 to 3 days of rest. No worries, I'm listening to what my body tells me and not pushing myself.  I will try to be an active member yet again, just remember I love my aortic family and you all are not forgotten! 

*hugs*

Kimberlee

Posted on June 14, 2014 at 8:41 — 5 Comments

Surgery Date

Well surgery is scheduled for early early morning of Oct 22.    I'll update everyone as soon as I am able.

*hugs*

Kimberlee

Posted on October 13, 2013 at 2:38 — 22 Comments

Comment Wall (62 comments)

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At 5:10 on October 1, 2016, Carol Buckley said…

Hi Kimberly thank you for the warm welcome, hope you are feeling better!

So pleased to find this group, but I have not paid a fee to join yet so not sure if I can post yet?

At 21:36 on August 8, 2016, Ann Sullivan said…

lol.

At 20:19 on August 8, 2016, Ann Sullivan said…

Hi  Kimberlee, Thanks very much for your kind welcome and your thoughtful response.  The information about your descending dissection was particularly helpful and reassuring.  Do they think your descending dissection was spontaneous?  Has your surgeon said at what size he'd operate?    

Ann

At 18:08 on August 1, 2016, Randy Croce said…

Hi Kimberlee! Thank you for the warm welcome. Can you let me know how I go about posting my story?  Also, is my profile info viewable to everyone?  Just curious.  I'm looking forward to getting to know everyone and so happy to have found you all. 

At 19:03 on February 7, 2016, Julie Lever said…

Hello Kimberlee, thanks for your message.  It'll take me a little while to tell my story.  I've only been out of hospital for a month, having had two aortic dissections in six weeks.  I've just read Dermot's comment from 12 December 2015 and I think I'm in the same boat.  From healthy and happy to close to death in one easy lesson.  I'm pleased to have found this forum, since I'm still trying to figure out what happened.  Be in touch soon.

At 16:18 on December 12, 2015, Dermot said…
Thanks Kimberlee, I will soon. Mine happened about 5 weeks ago in London so still recovering and getting over the sheer shock of it. From great health, non smoker, never in a hospital before to suddenly almost dead, it's still something I'm coming to terms with.
At 21:29 on October 20, 2015, Anne Cotton said…
Thank you for such a quick welcome. I have posted my story on the blog this evening...title 'miles from home..my story'. I am still recovering, but making good progress at last. I don't know anyone else, and my GP does not either, so I hope to be encouraged by this site!
Anne
At 14:45 on September 15, 2015, Richard Thorn said…

Thanks Kimberlee for the welcome. I am just six weeks out from the surgery and am still finding my feet and trying to get answers to a pile of medical questions about my particular circumstances.  Already I am getting some sense of what I have let myself in for with an AD :-) from everyone's stories.  Glad I found this group.

Richard 

At 8:57 on November 26, 2014, Jude Carter said…

You know if i could i would reach thru and give you a huge KIWI NZ hug, you and this group already have given me so much then today to get your message i wanted to cry happy tears.  Just to not feel alone.  I live in a little seaside town top of the south island New Zealand and of course aortic dissection is rare but even more so where i live.

Now i must remember to pay my membership, and write my story i am sure i will make it a novel so next wet day indoors, lol

Just one thing 4 months on and i am so so so tired its overwhelming, is this the medications or the recovery , i think i had more energy  a few months back but then i have moved my dad died i have 7 kids , on and on and on 

Probably the same as you, but even so i dispair the tiredness and anxiety (which i already had) and i feel depressed and flat,

thank you Kimberlee you probably dont realise just how much your input and support means to a lil old mum in New Zealand

I hope you are doing well these days and would love to learn some more about your life, 

kind regards Jude

At 1:55 on November 25, 2014, Jude Carter said…

Thank you so much for the welcome Kimberlee.  Just finding this site has brought me relief.  It seems that where i live there are no survivors of aortic dissection or that is what all the doctors and specialists say.  It is overwhelming at times to be told continually how lucky you are. We all know that well but its scary to hear it even so.

 I look forward to chatting with you all here and will write my story which starts at the gym lol.  But firstly i am 4 months post surgery having 3 stents placed in my aorta, 

please when will i feel like i have some energy again, the tiredness is overwhelming that and anxiety , any comments would be so appreciated

x Jude

 
 
 

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