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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Kimberlee Jones
  • Female
  • Toledo, OH
  • United States
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Kimberlee Jones's Discussions

Need Opinion
3 Replies

For those who don't know I was 34 weeks pregnant when I dissected. In fact over half of the AD cases in women are pregnancy related, usually in 3rd trimester or shortly after birth. 2 percent of…Continue

Started this discussion. Last reply by Graeme Feb 28.

GERD
1 Reply

I've noticed that there are a few of us ladies at another site, that all developed GERD after surgery/AD.  And not just a light case, the kind of GERD that feels like extreme chest pain, in fact I…Continue

Started this discussion. Last reply by Graeme Feb 28.

Still Here
8 Replies

I know I haven't been around for awhile, life got a little busy there for awhile. I am truly sorry if I caused anyone any worry.  So a little update. I moved to a new state and life is happy. I have…Continue

Started this discussion. Last reply by Kimberlee Jones Jan 2.

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Kimberlee Jones's Page

Latest Activity

mandy bungay left a comment for Kimberlee Jones
"Thankyou it good to see the comments just been told i maybe experiencing tia mini strokes only taken them since op to look into does anyone else feel they on their own after the op mandy"
Apr 26
Tom Alderman left a comment for Kimberlee Jones
"THank you so much, Iam not alone with this,God ha answered my prayers"
Apr 15
Tom Alderman left a comment for Kimberlee Jones
"I know you have herd this before I really need to hear therer a chance I mght live for more than 5 yrs,every thing I read it says 5, Iam only 60??????"
Apr 15
Vincenzo & Alexis left a comment for Kimberlee Jones
"Thank you, Kimberlee!"
Apr 11
Kimberlee Jones posted a discussion
Mar 19
Gretchen Doss left a comment for Kimberlee Jones
"Thank you and just knowing other people going through this that I can talk to instead of just the Doctors helps."
Mar 12
Kimberlee Jones posted discussions
Feb 26
Kimberlee Jones posted photos
Feb 8
Kimberlee Jones posted a blog post

I'm over the why me....

I've done a lot of thinking these days, about what it is that still upsets about my AD. I've long since past the feeling sorry for myself, the why me, again?(I have had a few prior surgeries, not heart related) What lingers on and on and frustrates me still is that I can't go one day without something causing me to think about my AD and my current aneurysm. Either my heart does it's little extra beat thing, or I get a pain when I sneeze or just for no reason in my chest bone area, etc. There's…See More
Feb 8
Tracey Alvarez left a comment for Kimberlee Jones
"Hi Kimberlee. Thx for the welcome..."
Dec 3, 2012
John Mark Bell left a comment for Kimberlee Jones
"Hi Kimberley Many thanks for the welcome and the hug John"
Oct 11, 2012
Jim Miller left a comment for Kimberlee Jones
"Many thanks for this welcome. "
Sep 14, 2012
Kimberlee Jones posted a discussion

Still Here

I know I haven't been around for awhile, life got a little busy there for awhile. I am truly sorry if I caused anyone any worry.  So a little update. I moved to a new state and life is happy. I have found a new doctor here and he has sent referrals to both a cardiologist and a cardio thoracic surgeon. Surgery to repair my aneurysm and leaky valve is in my future, we will find out when I see surgeon how near of a future it will be. Part of me hopes soon, living with the fear of the aneurysm…See More
Sep 14, 2012
Janie left a comment for Kimberlee Jones
"Thank's for the hug"
Feb 26, 2012
Cynthia Lind left a comment for Kimberlee Jones
"Bless you Kimberly and your 6 years.  I'm inspired and you calm my heart and soul. Cynthia Lind  "
Jan 6, 2012
Cynthia Lind left a comment for Kimberlee Jones
"It's January 2011 now and I'm still alive and feeling rather good if you omit the constant fear.  I'm trying to start a local support group (I live in Oakland County in the state Of Michigan in the usA) but so far I…"
Jan 4, 2012

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Kimberlee Jones's Blog

I'm over the why me....

I've done a lot of thinking these days, about what it is that still upsets about my AD. I've long since past the feeling sorry for myself, the why me, again?(I have had a few prior surgeries, not heart related) What lingers on and on and frustrates me still is that I can't go one day without something causing me to think about my AD and my current aneurysm. Either my heart does it's little extra beat thing, or I get a pain when I sneeze or just for no reason in my chest bone area, etc.…

Continue

Posted on February 8, 2013 at 1:33 — 4 Comments

6yrs.

Well today is my youngest daughter's sixth birthday, and we know what that means.  It is also my six year anniversary of my dissection.  Of course I just had to make that announcement and celebrate with my family here too. *hugs* to all of you.

Kimberlee

Posted on December 16, 2011 at 1:41 — 8 Comments

ECHO today.

So I had my 6m ECHO today and doc says nothing has changed since my last echo. My enlarged aortic root/aneurysm is holding steady at 5.1 and my leak is still considered moderate. Even better news no more CT scans for me, doc feels due to my age that having an ECHO(now once a year) instead of being exposed to radiation once a year is good enough. He does say if the ECHO ever shows change or I start to develop any symptoms then of course a CT scan will be necessary.

 

Now let's…

Continue

Posted on June 23, 2011 at 16:49 — 6 Comments

Just a thought.

After joining this site and reading and posting here for I do believe well over a year now, I've noticed so many people state how much trouble they had finding support after their ADs. The support that is so very needed. Being able to calm your fears by talking with others that truly understand, the ability to ask "Hey is this normal" or "How do you..." Most of all knowing your not alone. But thanks to one man we have that place! A place where we can share our stories, a place we can vent our… Continue

Posted on January 15, 2011 at 13:26 — 2 Comments

Comment Wall (41 comments)

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At 22:27 on April 26, 2013, mandy bungay said…
Thankyou it good to see the comments just been told i maybe experiencing tia mini strokes only taken them since op to look into does anyone else feel they on their own after the op mandy
At 16:06 on April 15, 2013, Tom Alderman said…

THank you so much, Iam not alone with this,God ha answered my prayers

At 15:34 on April 15, 2013, Tom Alderman said…

I know you have herd this before I really need to hear therer a chance I mght live for more than 5 yrs,every thing I read it says 5, Iam only 60??????

At 21:44 on April 11, 2013, Vincenzo & Alexis said…

Thank you, Kimberlee!

At 19:43 on March 12, 2013, Gretchen Doss said…

Thank you and just knowing other people going through this that I can talk to instead of just the Doctors helps.

At 20:00 on December 3, 2012, Tracey Alvarez said…
Hi Kimberlee. Thx for the welcome...
At 13:28 on October 11, 2012, John Mark Bell said…

Hi Kimberley

Many thanks for the welcome and the hug

John

At 15:33 on September 14, 2012, Jim Miller said…

Many thanks for this welcome. 

At 21:30 on February 26, 2012, Janie said…

Thank's for the hug

At 1:06 on January 6, 2012, Cynthia Lind said…

Bless you Kimberly and your 6 years.  I'm inspired and you calm my heart and soul.

Cynthia Lind

 

 
 
 

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