Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Kimberlee Jones Female Toledo, OH United States: Share on Facebook

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It is nice to see Aortic Dissection getting some attention.
3 Replies

may be hard to watch For those who didn't know, this week's episode of Grey's Anatomy involved a case of…Continue

Started this discussion. Last reply by Graeme Feb 19, 2011.

Interesting Article
2 Replies

Women are more likely than men to die from aortic dissection,a tear in the inner wall of the aorta, according to one of the first studies of its kind reported in today’s rapid access issue of…Continue

Started this discussion. Last reply by Carol Pont Feb 9, 2011.

Losing ones mind.
15 Replies

One of the things that happens with AD and what I would have never expected is the mental recovery. I pretty much lost my mind there for awhile after the surgery(wish this site was around back in…Continue

Started this discussion. Last reply by Kimberlee Jones Feb 21, 2011.

Check this out!

Check this guy out, what an amazing invention! Wish I would have know about him and his invention pre-op. Tal Golesworhty Back in 2000, British engineer Tal Golesworhty was told he suffered from…Continue

Tags: Inventor, AD

Started Jan 27, 2011

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Janie left a comment for Kimberlee Jones

"Thank's for the hug"

Feb 26

Cynthia Lind left a comment for Kimberlee Jones

"Bless you Kimberly and your 6 years. I'm inspired and you calm my heart and soul. Cynthia Lind "

Jan 6

Cynthia Lind left a comment for Kimberlee Jones

"It's January 2011 now and I'm still alive and feeling rather good if you omit the constant fear. I'm trying to start a local support group (I live in Oakland County in the state Of Michigan in the usA) but so far I…"

Jan 4

Tom Whittaker left a comment for Kimberlee Jones

"Hi Kimberlee! Thanks for the hello :-) Tom"

Dec 19, 2011

Kimberlee Jones posted a blog post

6yrs.

Well today is my youngest daughter's sixth birthday, and we know what that means. It is also my six year anniversary of my dissection. Of course I just had to make that announcement and celebrate with my family here too. *hugs* to all of you.KimberleeSee More

Dec 16, 2011

8 Comments

Sandra A. Ravis left a comment for Kimberlee Jones

"Hi Kimberlee, Thank you for your welcoming note. Sandi "

Dec 5, 2011

Marc Wagmeister left a comment for Kimberlee Jones

"Thanks so much for being there Kimberlee, when did you have your surgery, your girls look beautiful, how did they handle your surgery? My kids have been great, I live in las Vegas , if ever out here I'd love to meet you. I look forward to…"

Nov 19, 2011

Julia Holley left a comment for Kimberlee Jones

"Just browsing through a few of your comments and cant agree more about getting the bra off. I actually do a quick mental assesment as to whether I could get away without one before I go out! My scars itch like mad too and the area…"

Aug 15, 2011

Debra Michelle Harris left a comment for Kimberlee Jones

"Thanks Kimberly for welcoming me. This all is a little scary to me with all the unanswered questions. I appreciate your hug and send one back to you for everything you have been through."

Jul 10, 2011

hobson mills left a comment for Kimberlee Jones

"Kimberlee, now don't go suggesting that I vent my frustrations because I have so many of them!!! Part of my problem is that there are so many perplexing things about my symptoms and getting a diagnosis. I'm in the Uk and my docs seem a…"

Jul 5, 2011

Graeme left a comment for Kimberlee Jones

"He lovely Kimberlee... Happy July 4th for you yankee doodle dandees over the pond! Take cae and hope you have a great day today! cheers x Graeme"

Jul 4, 2011

Graeme commented on Kimberlee Jones's blog post ECHO today.

"Hey Kimberlee... gr8 news lovely one! I also now only have echos.. seems they do the trick nicely! So hows your busy summer going..we are in the middle of Wimbledon and Glastonbury here in England, that means rain ...:-( Would not be…"

Jun 24, 2011

Kimberlee Jones commented on Maria Trinidad Herrera's blog post UPDATE

"I'm so sorry to hear about your son, I can't imagine going through what you are right now. I'm happy to hear he is doing well and on the road to recovering. Just don't push yourself too hard, it's a good thing your…"

Jun 24, 2011

A blog post by Kimberlee Jones was featured

ECHO today.

So I had my 6m ECHO today and doc says nothing has changed since my last echo. My enlarged aortic root/aneurysm is holding steady at 5.1 and my leak is still considered moderate. Even better news no more CT scans for me, doc feels due to my age that having an ECHO(now once a year) instead of being exposed to radiation once a year is good enough. He does say if the ECHO ever shows change or I start to develop any symptoms then of course a CT scan will be necessary. Now let's just hope that my…See More

Jun 24, 2011

6 Comments

Cheryl Kerber commented on Kimberlee Jones's blog post ECHO today.

"Great news and I'm thrilled for you. As to the medical terminology stuff - it amazes me that the medical field can even remember all the technical mumbo -- but then again based on my directional ability it would be "the long thing…"

Jun 23, 2011

Kimberlee Jones left a comment for Laura Grosz

"Welcome Laura! Don't be shy about jumping into any ongoing discussions or even starting one of your own. We would love for you to share your story with us and have your input on ours as well. *hugs* Kimberlee"

Jun 23, 2011

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6yrs.

Kimberlee

Posted on December 16, 2011 at 1:41 — 8 Comments

ECHO today.

Now let's…

Continue

Posted on June 23, 2011 at 16:49 — 6 Comments

Just a thought.

After joining this site and reading and posting here for I do believe well over a year now, I've noticed so many people state how much trouble they had finding support after their ADs. The support that is so very needed. Being able to calm your fears by talking with others that truly understand, the ability to ask "Hey is this normal" or "How do you..." Most of all knowing your not alone. But thanks to one man we have that place! A place where we can share our stories, a place we can vent our… Continue

Posted on January 15, 2011 at 13:26 — 2 Comments

Site issues.

Today I tried to post to three blogs. I was able to post to one but with the other two I could type in my message but could not click on add/comment(whatever the button says) I also tried to e-mail the two people who started those two blogs and was unable to do so, I also tried to email you Graeme but was unable too. Help please. Thank you in advance.

Edit 2:28pm est. I couldn't comment on here to give an update and could not e-mail you via the reply button. Must be issues with… Continue

Posted on October 29, 2010 at 18:30 — 5 Comments

Comment Wall (33 comments)

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At 21:30 on February 26, 2012, Janie said…: Thank's for the hug

At 1:06 on January 6, 2012, Cynthia Lind said…: Bless you Kimberly and your 6 years. I'm inspired and you calm my heart and soul.

Cynthia Lind

At 23:09 on January 4, 2012, Cynthia Lind said…: It's January 2011 now and I'm still alive and feeling rather good if you omit the constant fear. I'm trying to start a local support group (I live in Oakland County in the state Of Michigan in the usA) but so far I can't find anyone local who has survived. I have no idea what you have learned such as the pitfalls that we aortic dissection survivors run into. Also I'm not real good with technology so I don't travel this site very well. Have had some luch but cant repeat. I had a full dissection from the heart to the left illiac. I had an anuerism between my heart and arc and 5" of aorta were removed and replaced with a dacron graft. My aortic valve was dislodged when the dissection occurred and it dislodged my value, dropped in into my heart and that had to be reset too. I moved away from the site early on since it scared me so much but I do remember you responded and I'm pleased to see you are 'still here and active. A question I'm almost afraid to ask is 'how long do we have?' I also got back onto this site the other day and left a response for someone but I'm not even sure how to get back to where I was. I think I need some coaching just to operate on the site. I hope I find you again. Be blessed, Cynthia

At 9:53 on December 20, 2011, lisa kamp said…: Kimberlee, thanks. Lisa

At 18:55 on December 19, 2011, Tom Whittaker said…: Hi Kimberlee!

Thanks for the hello :-)

Tom

At 1:34 on December 5, 2011, Sandra A. Ravis said…: Hi Kimberlee,

Thank you for your welcoming note.

Sandi

At 14:01 on November 19, 2011, Marc Wagmeister said…: Thanks so much for being there Kimberlee, when did you have your surgery, your girls look beautiful, how did they handle your surgery? My kids have been great, I live in las Vegas , if ever out here I'd love to meet you. I look forward to chatting w / you and others who have gone through this, I know the surgery is one thing but stack a small stroke on top of that and I feel my life will never be the same, oh well , we play the hand we are dealt and move forward, take care and look forward to chatting , god bless ..... Marc

At 14:07 on August 15, 2011, Julia Holley said…: Just browsing through a few of your comments and cant agree more about getting the bra off. I actually do a quick mental assesment as to whether I could get away without one before I go out! My scars itch like mad too and the area inbetween them is cold and numb. Wierd. Love to you Julia x

At 22:38 on July 10, 2011, Debra Michelle Harris said…: Thanks Kimberly for welcoming me. This all is a little scary to me with all the unanswered questions. I appreciate your hug and send one back to you for everything you have been through.

At 12:05 on July 5, 2011, hobson mills said…: Kimberlee, now don't go suggesting that I vent my frustrations because I have so many of them!!!

Part of my problem is that there are so many perplexing things about my symptoms and getting a diagnosis. I'm in the Uk and my docs seem a bit laid back and it's hard for me to tell if I should insist on them doing a particular thing. Or alternatively should hold my tongue when I see them because they might actually be far better clinicians than they seem at first sight.

Don't let me give the wrong impression. It's not like I get into arguments. Quite the contrary. I think I have a good relationship with all the doctors who have seen me.

Right now I am worried (as I wrong in my long first post) that I might elect to have a catheter angiogram when such a procedure is too risky. It's too late to think about it after some damage got done!