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Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Elaine Howlin
Elaine Howlin
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Hi all I went to the hospital today for my latest check up. The news was both good and not so good. The Consultant checked my CT scan and confirmed what we already knew ie that the descending…

Hi allI went to the hospital today for my latest check up. The news was both good and not so good. The Consultant checked my CT scan and confirmed what we already knew ie that the descending dissection was clearly still there,but that the diameter of the aortic arch (descending ) was 4.4. He said that further surgery would be required when it reached 5, The good news is that it could take 10 years to grow to that size although it could be a lot quicker. He ended the consultation by telling me…See More
Blog post by Elaine Howlin Jan 24
5 Comments
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Graeme left a comment for Elaine Howlin
Elaine, I am so sad about Celia's passing... It's never easy and I dont know what to say when this happens...I will post a remembrance message on the group tomorrow....   best.. Graeme
Dec 5, 2011
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Celia left a comment for Elaine Howlin
Elaine, just a note from Celia's husband. I'm afraid to say Celia passed away on the 14h October during the night when her aneurysm ruptured. Its taken me a while to trace her email accounts. Thank you for welcoming her into the group,…
Dec 5, 2011
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Celia left a comment for Elaine Howlin
hey, thanks for asking Elaine, well I had a pre op assessment, had a row with the anethetist as he scared the crap out of me, told me the 'op would kill me.so I sent a complaint in, I also complained that they don't do the op' in…
Aug 23, 2011
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Time to off load my anger

Hi everyoneI feel particularly angry and frustrated today about what has happened over the past few months so I think it is time to offload some of the anger and channel it more productively.Unfortunately for you that means you get to hear all the things that frustrate me!!Before the AD I was working full time as a nurse in a very busy department,I seemed to thrive on stressful situations but definitely got stressed out when I couldn't change things the managers had made decisions about.In my…See More
Blog post by Elaine Howlin Aug 22, 2011
4 Comments
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Amiodarone

Hi everyoneJust thought I would check in with you guys as I have been having some visual problems which I now attribute to Amiodarone medication I am taking. I have researched this drug and it really has some horror stories which have persuaded me to stop the tablet and take my chances that I will get some abnormally fast heart rhythms in the future although by the look of it the medication stays in your system for months! Did any of you start off on this tablet. I know the Docs have reduced it…See More
Blog post by Elaine Howlin Jul 15, 2011
8 Comments
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Update

Hi everyone,Just thought I would update you all on my progress which seems to be good.I flew to Portugal for a weeks holiday last week and had a great time. I hardly thought about the AD and what had happened as I was too busy people watching. No one seemed to take any notice of my scar which I was concerned about but as I watched behind my sunglasses I realised quite quickly that it was not the case at all. I was very lucky with my holiday insurance as my husband has a group policy which we…See More
A blog post by Elaine Howlin was featured Jul 7, 2011
2 Comments
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Update

Hi everyone,Just thought I would update you all on my progress which seems to be good.I flew to Portugal for a weeks holiday last week and had a great time. I hardly thought about the AD and what had happened as I was too busy people watching. No one seemed to take any notice of my scar which I was concerned about but as I watched behind my sunglasses I realised quite quickly that it was not the case at all. I was very lucky with my holiday insurance as my husband has a group policy which we…See More
Blog post by Elaine Howlin Jul 5, 2011
2 Comments
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Kev A commented on Elaine Howlin's blog post 'My story'
Had to google 'atrial fibrillation'  ... wiki gave me a brief outline The night my AD struck I was admitted with an abnormal heart rate of sorts - normal>fast>slow>normal sort of thing  (a few…
Jun 10, 2011
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Kimberlee Jones commented on Elaine Howlin's blog post 'My story'
I had issues with an extremely rapid heart rate about 2 weeks after I was released from hospital. Which resulted in another week or so in hospital. Since then I have what they tell me is an extra beat, it's not constant but when in occurs if…
Jun 10, 2011
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Elaine Howlin commented on Elaine Howlin's blog post 'My story'
Did any of you have atrial fibrillation? I seem to have flipped back into AF today which is a bit annoying as I have been in sinus rhythmm since discharge from hospital. The trouble is I dont know whether to report to the GP or the hospital or just…
Jun 10, 2011
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Graeme commented on Elaine Howlin's blog post 'My story'
Hi Elaine... Firstly you are doing well for the short time you have been post op...... secondly I had my Type A on St Georges Day and was operated on at St Georges as well.. :-) Dr Sarsam and his team spent over 10 hours on my train wreck! Now,…
Jun 9, 2011
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Harry commented on Elaine Howlin's blog post 'My story'
Keep going your really doing well. Its takes months but each week you will be able to walk further & you will regain your stamina. It took me a good 8-12 months & the only thing holding me back is the medication - which slows you down…
Jun 9, 2011
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Kimberlee Jones commented on Elaine Howlin's blog post 'My story'
Elaine, thank you for sharing our story. By the way you are doing amazingly 4 weeks out!!  If you have any questions for anyone or just need to vent your frustration, please do. Trust me the venting can make a bad day better. Remember we are…
Jun 3, 2011
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Cheryl Kerber commented on Elaine Howlin's blog post 'My story'
First of all - congrats on being a survivor --- I keep hearing how lucky we all are.  As I sat at my 2nd son's high school graduation I felt an overwhelming appreciation for still being here to see him walk the walk and toss the tassle to…
Jun 3, 2011
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Kev A commented on Elaine Howlin's blog post 'My story'
Hello and welcome Elaine Great to have you here! All things considered sounds like you're doing very well indeed really!  I'm six weeks into my recovery from an emergency AD - type A too.  I've been home for nearly 3…
Jun 1, 2011

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Elaine Howlin's Blog

Elaine Howlin

Hi all I went to the hospital today for my latest check up. The news was both good and not so good. The Consultant checked my CT scan and confirmed what we already knew ie that the descending…

Hi all

I went to the hospital today for my latest check up. The news was both good and not so good. The Consultant checked my CT scan and confirmed what we already knew ie that the descending dissection was clearly still there,but that the diameter of the aortic arch (descending ) was 4.4. He said that further surgery would be required when it reached 5, The good news is that it could take 10 years to grow to that size although it could be a lot quicker. He ended the consultation by…

Continue

Posted on January 24, 2012 at 6:26pm — 5 Comments

Elaine Howlin

Time to off load my anger

Hi everyone

I feel particularly angry and frustrated today about what has happened over the past few months so I think it is time to offload some of the anger and channel it more productively.Unfortunately for you that means you get to hear all the things that frustrate me!!

Before the AD I was working full time as a nurse in a very busy department,I seemed to thrive on stressful situations but definitely got stressed out when I couldn't change things the managers had made…

Continue

Posted on August 22, 2011 at 11:07am — 4 Comments

Elaine Howlin

Amiodarone

Hi everyone

Just thought I would check in with you guys as I have been having some visual problems which I now attribute to Amiodarone medication I am taking. I have researched this drug and it really has some horror stories which have persuaded me to stop the tablet and take my chances that I will get some abnormally fast heart rhythms in the future although by the look of it the medication stays in your system for months! Did any of you start off on this tablet. I know the Docs have…

Continue

Posted on July 15, 2011 at 6:12pm — 8 Comments

Elaine Howlin

Update

Hi everyone,Just thought I would update you all on my progress which seems to be good.I flew to Portugal for a weeks holiday last week and had a great time. I hardly thought about the AD and what had happened as I was too busy people watching. No one seemed to take any notice of my scar which I was concerned about but as I watched behind my sunglasses I realised quite quickly that it was not the case at all. I was very lucky with my holiday insurance as my husband has a group policy which we…

Continue

Posted on July 5, 2011 at 8:00pm — 2 Comments

Comment Wall (5 comments)

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At 10:27pm on December 5, 2011, GraemeGraeme said…

Elaine,

I am so sad about Celia's passing... It's never easy and I dont know what to say when this happens...I will post a remembrance message on the group tomorrow....

 

best..

Graeme

At 5:23pm on December 5, 2011, CeliaCelia said…

Elaine,

just a note from Celia's husband. I'm afraid to say Celia passed away on the 14h October during the night when her aneurysm ruptured. Its taken me a while to trace her email accounts. Thank you for welcoming her into the group, please pass my thanks to Graeme for his help as well.

regards,

 

Stewart

 

At 9:11pm on August 23, 2011, CeliaCelia said…

hey, thanks for asking Elaine, well I had a pre op assessment, had a row with the anethetist as he scared the crap out of me, told me the 'op would kill me.so I sent a complaint in, I also complained that they don't do the op' in my health board, and for the fact that they were holding back because of my other conditions, anyway, when I saw the consultant I told him and said that I wanted something done, he said I was suitable for endovascular repair but would have to send me to another area, so I will have to be assessed all over again, so Forth valley health board are gonna get another letter off me!!  I am at war!!!  My GP knew I had made a complaint and was rather cool with me, hell, if he had an aneurism 5.8 x 5.7 I don't think he would be so smart!! I am totally - excuse the French - pissed off with them all.  So  I more waiting to do, I think they hope it'll blow before they have to do anything.  Trying to keep cool,  and reading all of my records which sent them insane but I wanted to know what they are saying.  That's me at the moment and cutting a long story short, but will let you know of knew developments.....Thanks again, so much, for asking.....

Celia

xx

At 11:17pm on May 31, 2011, Kimberlee JonesKimberlee Jones said…

Welcome Elaine! I hope you feel welcome enough to join in any ongoing discussions, or maybe start one of your own. Tell us your story, ask questions, or just vent when necessary.

 

*hugs*

Kimberlee

At 11:11pm on May 31, 2011, Richard DealRichard Deal said…

hey there elaine,

welcome to the group! by way of a very short orientation: the blog is for posting updates on your treatment, or telling us your dissection story (if you want). the forums are for discussions and advice concerning your dissection. there are probably some interesting discussions in there for you - don't be scared to post comments, or start new topics - none of us bite!

good to have you here,

take care,

r

 
 
 

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