Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Social media support group dedicated to questions & information for aortic dissection survivors & aortic aneurysm sufferers family & friends

Important Links

The Aortic Dissection Forum UK supports the International Register of Acute Aortic Dissections (IRAD)

Got a nice shiny new Mechanical Heart Valve (Click-Tick-Thump-Whoosh-Love it!) then the Mechanical Heart Valve Forum is for you!

Now we have our OWN BLOG!

Latest Activity

Ruth Dyason updated their profile photo

1 hour ago

Graeme Archer commented on Marion Millington's blog post 'Marion's Story Type B AD'

Marion Your post made me laugh..yes we do forget that we have other aches and pains from time to time...Like you I have to sleep on my RH side as thumper is too noisy on my back..with heating off in bedroom and N always complaining she's cold - and…

5 hours ago

Marion Millington commented on Marion Millington's blog post 'Marion's Story Type B AD'

What a week I’ve had.......... Lately, besides struggling with my blood pressure, I have been well, really well so I was really taken by surprise when as I was walking to my rehab class when the muscle in my shoulder went into spasm not once but tw…

10 hours ago

Graeme Archer left a comment for John Stefanakis

on Saturday

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Robin Williams talks about his recent heart valve replacement - VERY FUNNY!

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The Aortic Dissection Social Network - A special meeting place..

The Beginning...the Inaugural Post on this network.. Why, when, how & for whom..

We have a FANTASTIC array of things you can do on this special network created just for Aortic Dissection sufferers, survivors, families and friends: create your very own PAGE, use the interactive DISCUSSION FORUM to post your thoughts, ask questions etc, write your own BLOG if you have a more detailed opinion you wish to share, upload your own PHOTOS and VIDEO, post all your events, medical papers, meetings etc to the EVENTS area, form your own GROUP, write NOTES, plus our great new CHAT facility.

You can also connect with Twitter, Flickr, You Tube, Facebook and many more applications. JOIN NOW!

Forum

Sometimes the NHS is not so bad...

Started by Graeme Archer in Tell us your Story - Aortic Dissection or Aortic Aneurysm.. Mar 3.

Long term survival Of Aortic Dissection Patients: Mt Sinai Hospital in the US 6 Replies

Started by Graeme Archer in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by Charles Jackson Mar 1.

Another misdiagnosed UK Aortic Dissection...

Started by Graeme Archer in Tell us your Story - Aortic Dissection or Aortic Aneurysm.. Mar 1.

Blog Posts

Genetic Testing..is the GGG (Giant Genetic Genie) about to escape the test tube... & change our lives forever??

If you have not read the precursor forum posts to this blog about genetic screening - it would be wise to do so now..as this blog is the continuation - and expansion - and projection - of maybe things to come. Maybe good things to come in relation to screening for AD. Or maybe not. As the 'Genie in the Bottl

… Continue

Posted by Graeme Archer on February 8, 2010 at 2:30pm — 5 Comments

Norv's Story I'm not sure whether it was a type A or B but here goes....

I'm a 45 year old guy from Nottingham, who is currently unemployed and I had what i call my episode really on the 24 Nov 2009.

I was at home chatting to a friend on the phone, and felt like i had been hit hard between my shoulder blades and in my chest, this lasted for 5 mins then went away. I told my friend about it but we both concluded that this was probably indigestion. About 10 minutes later the pain returned times 10, I could barely stand and had broken out in a cold sweat, I managed to l… Continue

Posted by Norv Morgan on January 20, 2010 at 12:00pm — 4 Comments

Marion's Story Type B AD

It took me a while for me to get round to sharing my story, writing it down seems somehow to give my experience substance, but if we don’t talk about it who will. I am a successful 52 year old woman living in a small village in the north of England; I have 4 children, 6 grandchildren and hopefully no more on the way.

I woke up on June 6th 2008, life was good my new business was growing and after years of working hard to bring up my family, my husband and I were on our own and looking forward to… Continue

Posted by Marion Millington on January 11, 2010 at 1:23pm — 6 Comments

Type A aortic dissection 17th September 2008

Hi I am Patrick Gethin
I live in the UK(Shropshire ) originally from Scotland . My Aortic dissection happened on 17th September 2008.I had just had my 49th birthday on 16th! I was in a business meeting being held at a local hotel. The meeting broke for coffee and I took the opportunity go go out for some fresh air as I was feeling strange. no pain just like my blood pressure was up and a bit faint. I sat outside when the Duty Manager passed going back into the hotel and he said I didn't look wel… Continue

Posted by Patrick Gethin on January 5, 2010 at 9:00pm — 1 Comment

My husband and his AD

I am still finding my way around this site so excuse mistakes.
My husband Peter suffered from an Aortic Dissection type A last october. He was taken ill at work suddenly dispite being fit never smoking and eating healthily, he was just 49. In hospital they nearly cost him his life by diagnosing pulmonary embolism and treating him with Heparin. It was 5 days before someone decided to do a ct scan. Within hours he was transferred to a specialist hospital and endured almost 14 hours of surgery beca… Continue

Posted by Judy Naden on December 26, 2009 at 1:17pm — 2 Comments