Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Social media support group dedicated to questions & information for aortic dissection survivors & aortic aneurysm sufferers family & friends

Latest Activity

Graeme posted a discussion

A lovely message from one of our original members...

Hi Graeme,I hope you are doing well and I am so sorry to hear about your cancer. But if anybody can beat it, is you.You have given thousands of people hope and support. You were my rescuer when I felt completely lost after my surgery. I did not understand what had just happened, and then I found your website. I think I was the fourth person to join. You gave me the knowledge to understand my disease and normalize it. I will never forget you and Julie. You gave me the courage to keep trying when…See More
Tuesday
Graeme posted a blog post

Update for Members: Myself: Membership of Aortic Dissection Support Group

Hi all,hope all had a lovely Xmas and have started a bright and shiny New Year on a positive spin.... and the Xmas pounds (certainly hope not kilograms!) are now being attacked vigorously in the gym and bracing 10 mile bicycle rides etc! Firstly my health update. Radiation treatment now all finished and side effects fading quickly.. so it seems so very happy on that front. First check-up end of Feb as have to wait for radiated bits to cool down (joke!) so tests are done on a normalised basis…See More
Jan 19
norma bell posted a blog post

update - surgery soon

Well definitely no sugar coating.  I need a graft in the ascending aorta and the first part of the arch, it can be done in one procedure but the valve will have to come out and a new one put in. Estimated 10% mortality rate, 5% stroke risk + 2% infection risk + risk of post op bleeding and return to theatre. This information swiftly followed by what to do in the event of a searing pain in my back! I think the worse news was that it can happen again further along the aorta, dear God I cant do…See More
Jan 12
Donald Hill is now a member of Aortic dissection & aortic aneurysm information support group
Jan 12

Important Links

The Aortic Dissection Forum UK supports the International Register of Acute Aortic Dissections (IRAD)

Follow the Aortic Dissection Blog

Robin Williams talks about his recent heart valve replacement - 1 year on - and also takes the 'mick' out of us Aussies.. Very Funny!

Photos

Loading…
  • Add Photos
  • View All
 

The Aortic Dissection Social Network - A special meeting place..

Our photograph of the month.. Something to remind us of the beauty - and the fragility of life - to make us wonder, to make us laugh, to make us think.. and to remind us that most of us have beaten the odds. Life is for living. Seize the day. Live it! Love it!

ALL MEMBERS! Do you have a a favourite picture!? Here's your chance to get it featured on the front page! Send it to me and if suitable it will be featured here!

Well, here's to a GREAT New Year in 2015 for all of us and our families and friends!!

This months picture: The Tower of London with its 'Sea of Blood' exhibition in October 2014. Each of the 850,000 hand made ceramic poppies represented a fallen soldier from the UK during World War 1. Overwhelming and very very special for all those who saw it...

Forum

UK guidelines for Thoracic AD 11 Replies

Started by Brenda Grunwell in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by Brenda Grunwell Dec 5, 2014.

Femoral Bypass Along With AD 12 Replies

Started by Jeff Frank in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by Jim Sanquedolce Jul 24, 2014.

Anyone else diabetic too? 4 Replies

Started by Gary Davis in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by JEN WILLIAMS May 28, 2014.

My Story 5 Replies

Started by John Dighton in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by Charles Jackson May 14, 2014.

Green tea and Nadolol 2 Replies

Started by Richard Deal in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by John Dighton Apr 8, 2014.

Blog Posts

update - surgery soon

Posted by norma bell on January 12, 2015 at 19:56 — 3 Comments

Two years.

Posted by Wayne Settje on January 11, 2015 at 5:20 — 3 Comments

Not feeling quite so brave

Posted by Paul on January 7, 2015 at 21:55 — 4 Comments

hallo & happy new year

Posted by norma bell on December 31, 2014 at 19:21 — 5 Comments

Just an update.

Posted by Kimberlee Jones on December 5, 2014 at 17:45 — 3 Comments

I keep loosing my story so for now 'hello'

Posted by Brenda Grunwell on October 9, 2014 at 13:10 — 4 Comments

My AD story

Posted by Steve Williams on September 21, 2014 at 13:01 — 5 Comments

3 months post aortic dissection repair

Posted by Angela Kirkham on September 19, 2014 at 12:44 — 10 Comments

I have a question.

Posted by Wayne Settje on August 23, 2014 at 15:30 — 3 Comments

watch for scams

Posted by Wayne Settje on July 25, 2014 at 14:53 — 1 Comment

My Story,

Posted by Gary Dan Salow JR on July 24, 2014 at 21:28 — 3 Comments

Sorry I haven't been active.

Posted by Kimberlee Jones on June 14, 2014 at 8:41 — 5 Comments

4th Anniversary of my AAD

Posted by Gregory Smith on June 2, 2014 at 9:24 — 6 Comments

Groups

 
 
 

LIFELONG MEMBERS

Our AD Facebook Page!

Visit Our Facebook Page/

OR - Post our Website Link to your Facebook Wall Profile
If you have the QR decode app in your smart camera phone - hold your camera phone over this QR CODE and it will automatically take your smart phone (*if you have the internet enabled on your phone) to our Facebook Page!

 OR - Use the QR Code above

What's a QR Code??
Download QR Reader App.

Our Twitter Feed!

Events

Badge

Loading…

RSS

Loading… Loading feed

Members

© 2015   Created by Graeme.

Badges  |  Report an Issue  |  Terms of Service