Aortic dissection & aortic aneurysm information support group

Aortic dissection, aortic aneurysm - The aorta - Life after an aortic dissection

Social media support group dedicated to questions & information for aortic dissection survivors & aortic aneurysm sufferers family & friends

Latest Activity

james fullwood posted a discussion

Just recovering from my SECOND AD!

On bedrest for the next month, suffered my second AD two weeks ago. It was a type B, right at the level of my T12 vertebrae, near my kidneys etc.It had been a normal Friday, met my wife aFter work and we headed to Iceland to stock up on fish. I had been feeling "under the weather" for most of the day, but nothing I could pinpoint. We finished the shopping and as we left it hit. Nausea, sweating, the feeling of bayonets being shved through my chest and out past my spine. First thought was a…See More
norma bell posted a discussion

waiting for surgery - what about flying?

I'm on the waiting list now for a hemi-arch repair which may or may not include a new root and valve. Good news is that the dopplar scans on my carotid arteries were good and my angiogram showed no blocked arteries - well except the 60% occlusion to one artery that was bypassed 5 yrs ago when I had my bi-leaflet aortic valve replaced, apparently the blood continued to flow thru the narrowed artery and the bypass is now described as "vestigial".  Dont know whether the surgeon will do a second…See More
Apr 27
mark payne is now a member of Aortic dissection & aortic aneurysm information support group
Mar 31
John Cope posted a blog post

AAA open surgery repair with left mediovisceral rotation

Hi everyone, just wondering if anyone has had their AAA repaired by the above method.See More
Mar 30

Important Links

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Robin Williams talks about his recent heart valve replacement - 1 year on - and also takes the 'mick' out of us Aussies.. Very Funny!


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The Aortic Dissection Social Network - A special meeting place..

Our photograph of the month.. Something to remind us of the beauty - and the fragility of life - to make us wonder, to make us laugh, to make us think.. and to remind us that most of us have beaten the odds. Life is for living. Seize the day. Live it! Love it!

ALL MEMBERS! Do you have a a favourite picture!? Here's your chance to get it featured on the front page! Send it to me and if suitable it will be featured here!

Well, here's to a GREAT New Year in 2015 for all of us and our families and friends!!

This months picture: The Tower of London with its 'Sea of Blood' exhibition in October 2014. Each of the 850,000 hand made ceramic poppies represented a fallen soldier from the UK during World War 1. Overwhelming and very very special for all those who saw it...


UK guidelines for Thoracic AD 11 Replies

Started by Brenda Grunwell in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by Brenda Grunwell Dec 5, 2014.

Femoral Bypass Along With AD 12 Replies

Started by Jeff Frank in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by Jim Sanquedolce Jul 24, 2014.

Anyone else diabetic too? 4 Replies

Started by Gary Davis in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by JEN WILLIAMS May 28, 2014.

My Story 5 Replies

Started by John Dighton in Tell us your Story - Aortic Dissection or Aortic Aneurysm... Last reply by Charles Jackson May 14, 2014.

Blog Posts

My Story

Posted by John Cope on March 23, 2015 at 19:47 — 5 Comments

worst valentines day ever!

Posted by norma bell on February 15, 2015 at 19:30 — 4 Comments

update - surgery soon

Posted by norma bell on January 12, 2015 at 19:56 — 3 Comments

Two years.

Posted by Wayne Settje on January 11, 2015 at 5:20 — 3 Comments

Not feeling quite so brave

Posted by Paul on January 7, 2015 at 21:55 — 4 Comments

hallo & happy new year

Posted by norma bell on December 31, 2014 at 19:21 — 5 Comments

Just an update.

Posted by Kimberlee Jones on December 5, 2014 at 17:45 — 3 Comments

I keep loosing my story so for now 'hello'

Posted by Brenda Grunwell on October 9, 2014 at 13:10 — 4 Comments

My AD story

Posted by Steve Williams on September 21, 2014 at 13:01 — 5 Comments

3 months post aortic dissection repair

Posted by Angela Kirkham on September 19, 2014 at 12:44 — 10 Comments

I have a question.

Posted by Wayne Settje on August 23, 2014 at 15:30 — 3 Comments

watch for scams

Posted by Wayne Settje on July 25, 2014 at 14:53 — 1 Comment




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